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January 17, 2002: IMF Myeloma Minute
01.17.02
IMF News:

The IMF is coming soon to a town near you! Make plans to attend the IMF's Atlanta Patient & Family Seminar (March 8th & 9th) and/or the D.C. Area Patient & Family Seminar (June 7th and 8th). Patient & Family Seminars are an excellent way to stay informed about new developments in the treatment and management of multiple myeloma. Each seminar features a distinguished panel of world-renowned myeloma experts who cover a variety of topics ranging from Myeloma 101 to emerging therapies currently in development.

Have you found your local multiple myeloma support group? The IMF works with a network of more than 60 multiple myeloma support groups around the world. Local support groups are a wonderful resource for myeloma patients, their families and friends. We encourage you to contact the support group in your area. No support group in your area? The IMF can help you start one! For more information, please contact Stephanie Colman at (800) 452-CURE x. 224 or via email at scolman@myeloma.org.

A Must-Read for Myeloma Patients!
Living With Myeloma: Survivor Stories is a book written by members of the Los Angeles Area MM Support Group. This book tells the stories of 22 MM patients and their journeys through diagnosis and treatment for their disease. Their stories are highly varied, as are their symptoms and treatments. But all are filled with hope and commitment to the best treatment possible. Order your copy today!


Items of Interest:

Diagnosis and management of multiple myeloma
British Journal of Haematology
Volume 115 Issue 3 Page 522 - December 2001
These guidelines have been compiled by the Guidelines Working Group of the UK Myeloma Forum on behalf of the British Committee for Standards in Haematology (BCSH).

Coping With Cancer Through Mind, Body, Spirit, and Emotions
By Brian Seaward, Ph. D. - University of Colorado-Boulder
(Courtesy of CancerSource.com)

Carers face poverty and isolation, report says
BMJ 2001
A News Roundup article by Jane Seymour


Research Updates:

Controversy in multiple myeloma transplants: tandem autotransplants and mini-allografts.
Bone Marrow Transplant, October 2001

Granulocyte-colony-stimulating factor (G-CSF)-primed allogeneic bone marrow: significantly less graft-versus-host disease and comparable engraftment to G-CSF-mobilized peripheral blood stem cells.
Blood, December 2001

The Vascular Endothelial Growth Factor (VEGF) Signaling Pathway: A Therapeutic Target in Patients with Hematologic Malignancies
The Oncologist, October 2001

Peripheral blood stem cell versus bone marrow allotransplantation: does the source of hematopoietic stem cells matter?
Blood, November 2001


Useful Resources:

American Chronic Pain Association
The mission of the ACPA is to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.

American Pain Society
The APS is a multidisciplinary organization of basic and clinical scientists, practicing clinicians, policy analysts, and others. The mission of the American Pain Society is to advance pain-related research, education, treatment and professional practice.


Did You Know?

Many pharmaceutical companies have patient assistance programs designed to help low-income families cover the costs of certain prescription medications. Each program has its own specific patient requirements and limitations. Of interest to myeloma patients:

ORTHO BIOTECH (Procrit) - (800) 553-3851
AMGEN (Epogen) - (800) 272-9376
NOVARTIS (Aredia) - (800) 257-3273
CELGENE (Thalidomide) - (888) 423-5436

For further information, check out the Pharmaceutical Research and Manufacturers of America's (PhRMA) Directory of Prescription Drug Patient Assistance Programs.


Help Us Help Others...

As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.


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