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Myeloma Minute
September 22, 2016
September 22, 2016
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This week's question:

How is the overall myeloma protein level in the blood affected by its distribution within and out of the body?

Multiple Myeloma Bone Study

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Upcoming Events

October 1, 2016
Regional Community Workshop

Charlotte, NC


October 15, 2016
Regional Community Workshop

Greater Metropolitan Atlanta

March 17-18, 2017
Patient & Family Seminar

Boca Raton, FL










European Medicine Agency's Adopts a Positive Opinion for the Conditional Approval of Ninlaro™ for Patients with Multiple Myeloma

European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) now recommends the conditional approval of Takeda Pharmaceutical’s Ninlaro™ (ixazomib) capsules in combination with lenalidomide and dexamethasone for patients with multiple myeloma who have had at least one prior therapy. If the European Commission ratifies CHMP’s positive recommendation, Ninlaro will be authorized as the first and only oral proteasome inhibitor for use throughout the European Economic Area, which includes the European Union’s 28 member states as well as Norway, Lichtenstein, and Iceland. To learn more, click HERE.



Tune in to Today's Living Well with Myeloma Teleconference


Don’t miss this teleconference in the Living Well with Myeloma series TODAY at 4 PM PT / 7 PM ET. IMF Medical Liaison Dr. Rafat Abonour (Indiana University – Simon Cancer Center) and Dr. Edward Stadtmauer (University of Pennsylvania) will present on CAR T-Cell Therapy: What Myeloma Patients & Caregivers Need to Know. CAR T-cells, or chimeric antigen receptor T-cells, are part of a class of cancer therapies known as immunotherapies. With CAR T-cell therapy, a patient’s T-cells are harvested and genetically reengineered to become better able to recognize and attack myeloma. The altered T-cells are then reinfused into the body with the hope of fighting the disease. Register for this teleconference for free HERE.




Ray Romano to Host IMF 10th Annual Comedy Celebration Nov. 5


Our premier fundraising Comedy Celebration will take place on Saturday, November 5 at the Wilshire Ebell Theatre. Actor and comedian Ray Romano returns as “Everybody’s Most-Loved Host,” with featured performers Bill Burr, Jeff Garlin, Dom Irrera, Larry Miller, Kevin Nealon, JB Smoove, Fred Willard, and more to be announced. (All performers are subject to availability.) Proceeds from the event will benefit the Peter Boyle Research Fund and support the Black Swan Research Initiative® (BSRI). Renowned actor Peter Boyle died in late 2006 after a four-year battle with myeloma. In celebration of the event’s 10th anniversary, the event will honor Boyle’s widow, Loraine Alterman Boyle, and her extraordinary work as the event chair for the past 10 years. Since the first Comedy Celebration in 2007, this annual event has raised more than $5 million for myeloma research. The evening will include a pre-show cocktail reception and silent auction for VIP guests, the Comedy Show, and a post-show party featuring a live swing band and dancing for VIP ticket holders. Tickets are now on sale HERE.


First Patient & Family Seminar in Madrid Is a Success


On September 15, 2016 the Comunidad Española Pacientes Con Mieloma Múltiple (CEMPP) hosted its first Patient & Family Seminar in collaboration with the International Myeloma Foundation in Madrid. Speakers included Drs. Jesús San Miguel, Maria V. Mateos, Bruno Paiva, and more. Teresa Regueiro López, the Founder and President of CEMPP and a myeloma patient, has been working tirelessly to reach patients throughout Spain, where 2000 new myeloma cases are diagnosed each year. The Madrid Patient & Family Seminar was a great success, with more than 100 participants. For more information about CEMPP, click HERE.



The North Texas Myeloma Support Group Fundraises for Myeloma Research with a Night of Comedy



On September 30, 2016, the North Texas Myeloma Support Group will host an IMF Member FUNdraiser with a night of comedy at the Improv Comedy Club at 4980 Beltline Rd., #250, Addison, Texas with Headliner Godfrey. The goal is to raise $24,000 ($100 for each of the 240 support group members) to go toward myeloma research, in particular the IMF’s Black Swan Research Initiative® (BSRI). The evening guarantees side-splitting laughs with veteran comic Godfrey, who has been seen on stages from New York and Los Angeles to Dubai. Along with his own one-hour special on Comedy Central, Godfrey recently starred in the FX pilot "Bronx Warrants," adding to his onscreen credits which include ZOOLANDER, "30 Rock," and a recurring role on "Louie." Purchase tickets HERE.


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