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Myeloma Minute
September 1, 2016
September 1, 2016
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This week's question: What is CRISPR?

Multiple Myeloma Bone Study

New ARROW Clinical Trials: Learn How To Participate

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New Ixazomib Clinical Trials: Learn How To Participate

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Upcoming Events

September 10, 2016
Regional Community Workshop

Overland Park, KS

September 17, 2016
Regional Community Workshop

Sacramento, CA

September 22, 2016
Living Well with Myeloma: CAR-T Cell Therapy

Dial-In Teleconference

October 1, 2016
Regional Community Workshop

Charlotte, NC


October 15, 2016
Regional Community Workshop

Greater Metropolitan Atlanta











Today Marks the 100th Episode of the Video Series #AskDrDurie

In April of 2013, #AskDrDurie launched its first video, with IMF Chairman and Co-Founder Dr. Brian Durie answering the question, “How close are we to a cure?” Three years later and still going strong, this weekly series has tackled such topics as the new IMWG response criteria, if MRD testing is ready for prime time, managing bone disease, the game-changing myeloma drugs, and more. Today, September 1st, marks the 100th episode of this weekly series. If you have questions regarding myeloma treatments, research, controversies, or quality of life issues, email askdrdurie@myeloma.org! For questions of a specific personal nature, please call the IMF InfoLine coordinators at 800.452.2873 or email them at infoline@myeloma.org. View the 100th episode HERE, which explains “What is CRISPR?”


Tune in to the FREE "Living Well with Myeloma" Teleconference on CAR T-Cell Therapy


The next “Living Well with Myeloma” teleconference will focus on CAR T-Cell Therapy: What Myeloma Patients & Caregivers Need to Know. It takes place on Thursday, September 22, 2016 at 7 PM ET / 4 PM PT. Speakers are Dr. Rafat Abonour (Indiana University – Simon Cancer Center) and Dr. Edward Stadtmauer (University of Pennsylvania). CAR T cells, or chimeric antigen receptor T cells, are part of a class of cancer therapies known as immunotherapies. With CAR T-cell therapy, a patient’s T cells are harvested and genetically reengineered to become better able to recognize and attack myeloma. The altered T cells are then reinfused into the body with the hope of fighting the disease. To learn about this exciting new therapy, register for free HERE. Pre-registration is highly recommended.




Update Your IMF-Specific Amazon Login Page, and Support Myeloma Research, at No Added Cost to You!


The IMF’s partnership with Amazon is getting even better! When you shop online at amazon.myeloma.org, Amazon donates a percentage of the total of your purchased items to the IMF. The more people who purchase through the IMF portal, the greater the percentage that Amazon will donate to our organization. In fact, this month we are only 14 items away from raising that percentage from 6% to 6.5%!  If you would like to participate, it’s easy, with no added cost to you. First, make sure you log out of your existing Amazon.com account. Then click on amazon.myeloma.org and log back into Amazon.com. Donating to the IMF is now as easy as a point-and-click.


Follow John Taussig's Kayak Crusade Up the Inside Passage with This Interactive Map


John Taussig, a modern-day frontiersman, kayaks up the Inside Passage, a water route that weaves through a maze of islands starting at the Puget Sound in Washington State and extending north along the British Columbia Coast to the Alaska Panhandle. Now you can follow John’s tales of his journey HERE. The map takes you to all the islands and harbors where John has docked and invites you into his vivid “nautical log.” John organized Paddle to Battle Multiple Myeloma to raise awareness and money to support the IMF’s research programs. His travels in a kayak up the Inland Passage mark a couple of firsts: this is John’s first kayak journey along this path, and it is also his first major endeavor to raise money in honor of two family members—his mother Anne and his uncle Tom, who were both recently diagnosed with multiple myeloma. Impressed by John’s initiative, a generous donor has offered to match all donations to Paddle to Battle Multiple Myeloma dollar for dollar. You can support John’s extraordinary effort HERE.








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