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Myeloma Minute
August 25, 2016
August 25, 2016
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Expanding Our Knowledge About Daratumumab and More

Three important new reports are shedding light on how daratumumab works, reports IMF Chairman Dr. Brian Durie in his blog this week. “Our understanding of its benefits—when used alone and in combinations—is evolving rapidly.” But is treatment outpacing reimbursement? Also, this week, Dr. Durie touches on cancer in 9/11 responders, a study that suggests social status may affect outcomes, and a new bestseller that explores the science-fiction-sounding “microbiome.” To read Dr. Durie’s blog, click HERE.


The IMF Hosts the 5th Annual Myeloma Master Class in Los Angeles


Last week, the IMF hosted 10 young doctors from China at the 5th Annual Myeloma Master Class in Los Angeles. Selected by the Chinese Myeloma Committee, these hematologists attended a weeklong program that consisted of lectures on key myeloma topics, a visit to the City of Hope cancer transplant center, and a tour of IMF headquarters. The week’s events culminated at the IMF’s Patient & Family Seminar in Los Angeles, where the doctors joined in patient consults with IMF Chairman Dr. Brian Durie and IMF Medical Liaison Dr. Rafat Abonour. Other faculty who led educational sessions were Drs. Vincent Rajkumar, Tom Martin, and Jean-Luc Harousseau. As IMF President and Co-Founder Susie Novis Durie noted, “China is a key country for myeloma patient support due to the large number of patients wtih the disease, coupled with the lack of adequate access to current treatment options."




Los Angeles Patient & Family Seminar Attendance Soars and Is Followed by Debut of "IMF Community Picnic Day"


The IMF's Patient & Family Seminar in Los Angeles at the Sheraton Universal Hotel last week drew nearly 300 attendees. Patients, caregivers, and their family members attended question-and-answer sessions and open-forum discussions. Twenty-year myeloma survivor, patient advocate, and IMF Board Member Yelak Biru spoke on “Living Well with Myeloma: The Art of Battling Myeloma the Giant.” Other topics covered included “Best Therapies for Patients Opting for Transplant,” “Management of Bone Disease,” “Managing Side Effects,” and “New Drugs in Clinical Trials.” Patients also received the latest news on the Black Swan Research Initiative® and much more. A busy weekend continued for IMFers at the 1st Community Picnic Day, which took place on the following Sunday afternoon in Griffith Park. Adults and children of all ages took part in yoga sessions, a healthy cooking demonstration, a raffle, and art therapy activities. Click HERE to see photos of both great IMF events.


Visit Virginia's Wine Country to Benefit the IMF


Nestled in the north neck of Virginia is wine country, boasting European grape varieties, a few hybrids, and the historic American grape Norton, originally discovered in Richmond. On Saturday, September 17th, the 4th Annual Virginia Wine Country Tour will take place, including visits to Belle Mont Vineyards, Hague Winery, and Ingleside Vineyards. If you are a wine aficionado, indulge in a fabulous day of wine tasting, scenic views of the Chesapeake Bay wine trail, and a delicious lunch, all while supporting the programs and research initiatives of the IMF. To RSVP or to specify lunch preferences, contact Nancy at nancyandclaude@verizon.net or (804) 272-7475. Space is limited to the first 40 paid guests. To learn more or donate, click HERE.








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