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Advocacy Update
August 2016

Join Our Action Team!

Are you interested in getting more involved with advocacy and the IMF? Then join our ACTION Team – Advocates Committed To Inspiring Others Nationwide. This exceptional group of advocates participate in specialized programs, like webinars, and help us execute various projects to further increase awareness of multiple myeloma. Additionally, advocates foster relationships with their elected officials and work with the IMF advocacy team to help raise awareness and garner support for legislation and policies.  Moving forward we are also looking to broaden our advocacy horizons with patient, grassroots and self-advocacy efforts. 


We meet via phone on the first Wednesday of the month to discuss what’s really happening on the Hill.  Please contact Kelley Jones at kjones@myeloma.org to join today!

PEAC Federal Legislative Efforts


The Cancer Drug Coverage Parity Act is still advancing in both the House and the Senate. The House bill, HR 2739, currently sits at 108 cosponsors, evenly split between both republican and democratic parties. In the Senate, S 1566 has 20 sponsors, which is a very strong show of support. The IMF’s Patients Equal Access Coalition (PEAC) is pleased with the progress we’ve had thus far in bringing on support for the federal legislation.


Over the summer, members of the IMF Advocacy team have been meeting with several key legislators on the Hill as representatives from the Patients Equal Access Coalition (PEAC), a collection of patient advocacy organizations, provider groups, and pharmaceutical companies that work collaboratively on treatment access issues for patients at the federal level. The purpose of these meetings is to urge support of the federal oral parity legislation in the House and Senate, H.R. 2739 and S.1566, respectively.

Save our SHIPS Presentation at SGLS


In July the advocacy team presented at the Support Group Leader Summit on how you as a patient or caregiver can help “Save our SHIPs”, State Health Insurance Assistance Programs (SHIP). The SHIP programs help Medicare beneficiaries and their caregivers navigate Medicare benefits. Elimination of SHIP would leave millions of beneficiaries with nowhere to turn for help comparing coverage options, appealing denials, applying for financial assistance, and understanding an increasingly complex Medicare system. 


For those of you who missed our presentation at the Support Group Leader Summit check it out HERE.

Check us out on Facebook!


Want to know more about what the advocacy team is up to? Then go like our new and improved Facebook pages! We have revamped our IMF Advocacy page and will be sharing the latest news on legislation and policies we are tracking and updates on our fight to get oral parity passed at the state and federal levels.  Click HERE to like us and ask your Facebook friends to do the same! 

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