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Myeloma Minute
August 18, 2016
08.18.16
August 18, 2016
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This week's question: Should I change treatment regimens if my IgG myeloma protein has spiked?


Multiple Myeloma Bone Study

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Upcoming Events

August 21, 2016
Community Picnic Day

Los Angeles - Griffith Park

September 10, 2016
Regional Community Workshop

Overland Park, KS

September 17, 2016
Regional Community Workshop

Sacramento, CA

 

October 1, 2016
Regional Community Workshop

Charlotte, NC

 

 

 

 

 

 

 

    

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The Most Important Questions Facing Myeloma Experts in 2016

IMF Medical Writer Debbie Birns gives a detailed overview of the most pressing issues that currently face the myeloma community as discussed—and sometimes debated by the nearly 100 members of the International Myeloma Working Group (IMWG) at the 7th Annual IMWG Summit held earlier this summer. Topics include: the iStopMM project’s ambitious effort to screen an entire population for MGUS; the role of MRD detection in myeloma; optimal imaging methods for the disease; the best use of new immune therapies; and more. To discover the answers to these key questions, click HERE.

 

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Hot Off the Press: All IMF Patient Publications Updated for 2016

 

Now available in print and online, the IMF’s two signature patient publications, The Patient Handbook and The Concise Review, provide an overview of multiple myeloma and have been updated with the latest 2016 trends in myeloma research. Also available from the IMF are updated 2016 editions of the Understanding Series booklets, which are designed to acquaint patients and caregivers with treatments and supportive care measures for MM. Some of the most popular recent publications include Understanding Darzalex, Understanding Your Test Results, Understanding Ninlaro, among others. Download FREE pdfs of any these booklets HERE, or contact the IMF at 800-452-CURE to receive booklets by mail.

 

 

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The Department of Veteran Affairs Houses the World's Largest Genomic Database


 

The Department of Veterans Affairs announced that its Million Veterans Program is now the largest research database in the world. Because a significant number of veterans have been diagnosed with multiple myeloma, this news is especially important to myeloma researchers. The Million Veterans Program may be able to help scientists learn the causes and prevention of certain cancers within this population of veterans. This genomic database tracks DNA by drawing blood from voluntary participants and then follows up with these participants to learn about their military experiences, health, and lifestyles. The participants also grant researchers access to their electronic medical records and agree to be contacted for future studies. To learn more about the MVP, click HERE. For resources specific to veterans affected by myeloma, visit the IMF’s Veterans Against Myeloma.

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Last Chance for Tickets: Comedians Jim Jefferies and Brad Williams Headline IMF Fundraiser in Hollywood


 

On Tuesday, August 23, 2016, at 8 pm, the Hollywood Improv in Los Angeles will host an IMF Fundraiser. Comedian Forrest Shaw is the evening’s featured act. Forrest organized the benefit in honor of his mother, who is battling myeloma. He made his television debut on “Conan” in 2014 and has performed at some of the nation’s top comedy festivals. Headlining comics for the evening are globetrotter Jim Jefferies and California native Brad Williams. Tickets for the event are only $20 and can be purchased HERE.

 

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IMF's Community Picnic Day   Fabulous and Free to All




  

Take a break from watching Olympic athletes on television and get active by attending IMF’s inaugural Community Picnic Day! Thanks to event sponsor Amgen, attendance is FREE for this fun-filled event. The Picnic will take place on Sunday, August 21st, in Los Angeles’s beautiful Griffith Park! Open to all ages, the IMF Community Picnic Day will provide entertainment for the whole family. Scheduled activities include yoga sessions, Tai Chi instruction, a healthy cooking demonstration, art therapy, and a 1K fun run for kids. Don’t miss out! Click HERE to join us – we look forward to closing out the summer with you!

   
 


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