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Myeloma Minute
June 16, 2016
06.16.16
June 16, 2016
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This week's question: What is the difference between high-risk smoldering myeloma and high-risk myeloma?


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June 19, 2016
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Father's Day

 

June 25, 2016
Regional Community Workshop

Minneapolis/Edina, Minnesota

August 19-20, 2016
Patient & Family Seminar

Los Angeles, California

 

 

 

 

 

    

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Dr. Brian Durie: "ICER Blinks and Patients Benefit"

IMF Chairman Dr. Brian Durie calls the much-awaited Final Report from the Institute for Clinical and Economic Review (ICER) “less of a report than an admission that they do not have the expertise to adequately assess the complexities of new myeloma therapies.” In his blog this week, Dr. Durie notes that the report defers to the expertise of both doctors and patient advocates, and, importantly, that the International Myeloma Working Group has already launched an inclusive project to create treatment guidelines that can transform the cost/payer landscape. To read Dr. Durie’s blog, click HERE

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ICER'S Final Report on Myeloma Treatment Options Acknowledges Some of the Vital Concerns Shared by Patients, Caregivers, and Physicians


 

Late last week, the Institute for Clinical and Economic Review (ICER) published the final version of its report, “Treatment Options for Relapse or Refractory Multiple Myeloma: Effectiveness, Value, and Value-Based Price Benchmarks.” The report appears to have incorporated some recommendations from patients, caregivers, and myeloma experts, who raised alarms about ICER’s initial draft report. The most compelling testimony was delivered by IMF’s Senior Director of Support Groups, who appeared before the body on May 26, 2016.  For a view of the report at-a-glance, click HERE, or access the full report HERE. Robin Tuohy will once again share the patients' perspective at a congressional briefing on value frameworks in healthcare at 12PM ET on Monday, June 20.

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Video: Watch IMF's 2016 IMWG Conference Series "Making Sense of Treatment" from Copenhagen


 

For a lively discussion of the latest myeloma news by an expert panel of physician/researchers, watch the International Myeloma Working Group (IMWG) video conference series “Making Sense of Treatment.” Livestreamed from the IMWG Summit in Copenhagen, Denmark on June 9, 2016, the 90-minute program was led by Dr. Brian Durie and features experts Dr. Joseph Mikhael, Dr. Paul Richardson, and Dr. María-Victoria Mateos. The panel discussing the following topics: the impact of the new diagnostic criteria, the effect of risk status on treatment, how to be proactive about comorbidities, how to use MRD testing, the use of maintenance therapy as a standard of care, and finally, how to sequence the new therapies. Each segment of this series can be viewed HERE.

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View a Replay of Another Successful IMF Symposium at the Oncology Nursing Society Annual Conference


 

On April 28, 2016, the IMF’s Nurse Leadership Board hosted the presentation “Updates in Multiple Myeloma: Case Studies in Collaborative Nursing and Patient Care” at the Oncology Nursing Symposium at San Antonio, Texas. The event’s panel included the IMF’s Nurse Leadership Board co-chairs Beth Faiman, PhD, MSN, APRN-BC, AOCN®; and Joseph D. Tariman, PhD, ANP-BC as well as Faculty Donna D. Catamero, ANP-BC, OCN®, CCRC; and Tiffany Richards, RN, MS, ANP-BC. Six case studies of multiple myeloma patients were discussed. To view videos of these case studies, click HERE.

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Stafford Family Hosts the Red House Carnival in Memorium of their "Superhero"



 

In February of 2001, the Staffords’ father was diagnosed with multiple myeloma at the age of 45, when his children were 18, 15, and 12. The Staffords credit their father’s medical team and the IMF for being part of their father’s myeloma journey, which allowed him to see all his children graduate from college. Even though their father lost his battle to myeloma in 2013, the Staffords keep his “superhero” spirit alive by hosting the annual Red House Carnival. This evening of carnival games takes place at the Aeronaut Brewery at 7 pm–10 pm ET at 14 Tyler Street in Somerville, Massachusetts. To register or donate to the event, click HERE.

 


  


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