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11/5/01 Myeloma Minute

Tuesday, November 6, 2001
Three program times are available:
12:30 p.m. ET, 1:30 p.m. ET and 3:30 p.m. ET

The International Myeloma Foundation is pleased to present Perspectives in Multiple Myeloma: Directions Toward New Therapeutic Options, a LIVE, interactive CME teleconference. This teleconference will feature Dr. James Berenson (Cedars-Sinai Comprehensive Cancer Center, Los Angeles, CA) discussing Rationale and Future Directions and Dr. Mohamad Hussein (Cleveland Clinic, Cleveland, OH) discussing The Clinical Experience. This program is intended for general practicing oncologists and hematologists involved in the treatment of multiple myeloma. Click here to learn more about the program or how to register.

We encourage our patient members to share this information with your physicians.

Hematologic Cancer Research Bill Approved by US Senate Committee
(From Reuters Health)

The US Senate's Committee on Health, Education, Labor and Pensions has unanimously approved a bill that would order the National Institutes of Health to establish a program to research hematologic malignancies such as myeloma. The proposal authorizes $250 million for the effort and gives an additional $25 million for a national education campaign on blood cancers. This legislation was first proposed in June 2001 by Senator Kay Bailey Hutchison (R-TX) during the first-ever Joint Advocacy Day for Blood Cancers. The IMF will continue to monitor the progress of this bill so that we may immediately alert our members of new developments.

New Program for Support Groups

The IMF is pleased to present The OMNI Network, a new community outreach effort designed to further educate myeloma patients and their caregivers about the link between multiple myeloma and bone health. The OMNI Network provides myeloma support groups with an educational 45-minute interactive session, led by a specially trained oncology nurse. Find out how you can arrange for an OMNI Network presentation for your own local support group.

Call for Nominations

The National Cancer Institute is looking for qualified candidates to fill five open positions for the Director's Consumer Liaison Group (DCLG). Members are selected by the Director, for three-year terms, beginning July 2002.

The DCLG, a chartered advisory committee comprised of fifteen consumer advocates, actively advises and makes recommendations to the NCI Director on issues that are relevant to people with cancer, their families, and the cancer advocacy community. The members of the DCLG reflect the breadth and diversity of people affected by cancer. Nominations for members can by made by organizations (including local/regional and national groups) and individuals (including self-nominations). The deadline for nominations is December 8, 2001. To request a nomination packet, please contact NCI Liaison Activities (c/o Palladian Partners) at (301) 650-8660.

Useful Resources

American Pain Foundation
The mission of the American Pain Foundation is to improve the quality of life for people with pain. The consumer-friendly website offers information about causes, treatment options and links to more than 200 carefully selected websites on pain and related topics. In addition, the APF publishes an informative Pain Action Guide. Visit the American Pain Foundation online or call (888) 615-PAIN.

Cancer Care
Cancer Care is a national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance. Cancer Care also publishes A Helping Hand, a resource guide for people with cancer.

Myeloma Expert Dr. Phil Greipp to Run in Olympic Torch Relay

In February, IMFers nationwide united in an effort to submit nominations for the 2002 Salt Lake Olympic Torch Relay. An impressive number of nominations were submitted in honor of Dr. Philip Greipp, a myeloma specialist at the Mayo Clinic. We are pleased to announce that he has been selected as one of many to have the honor of carrying the Olympic Torch during the relay. Currently, Dr. Greipp is scheduled to carry the Olympic Torch on Jan. 5, 2001 in the Wisconsin Region. Says Dr. Greipp, "When I carry the Torch, it won't be for me but for all my wonderful patients." Stay tuned as we continue to follow this exciting story that is sure to bring attention to the myeloma community.

Tell A Friend...

The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here. You can also view back issues of Myeloma Minute online.

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