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Myeloma Minute
March 5, 2015
03.05.15
March 5, 2015
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This week's question: What is the recommended use of Biaxin in patients with myeloma?

Multiple Myeloma Bone Study

 

Upcoming Events


Friday, March 13, 2015
2015 Kubik Multiple Myeloma Benefit
Rowlett, Texas


Saturday, March 14, 2015 Regional Community Workshop
San Diego, California


Saturday, March 14, 2015
Art-on-the-Gogh
Virginia Beach, Virginia


Thursday, March 19, 2015
Living Well with Myeloma: Understanding the Immune System in Myeloma
7pm ET / 4pm PT Teleconference


Saturday, March 21, 2015
Cycle for a Cure
Woodbury, New York


Saturday, April 11, 2015
Myeloma Center Workshop
Dallas, Texas

 
Watch the IMF Mambo for Myeloma & Support This Challenge

Watch the Southeastern Virginia Multiple Myeloma Support Group (SEVA) Mambo for Myeloma!

 

 

 

  

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IMF Celebrates March as Myeloma Awareness Month!


 

Designed to educate and inspire myeloma patients, families, and caregivers, Myeloma Awareness Month (#MAM) is fueled by the IMF’s fervent belief that “Knowledge is Power.” The IMF first named March Myeloma Awareness Month in 2009 knowing that heightened awareness leads to early diagnosis and increased funding for research. Although multiple myeloma is the second most common blood cancer, it is unknown to many patients until their diagnosis. “The IMF empowers patients, and well-informed patients do better,” IMF President and Co-Founder Susie Novis said. CLICK HERE to learn about all of the ways you can get involved.

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Kyprolis® Meets Primary Endpoint of PFS in Head-to-Head Clinical Trial

 

The myeloma drug Kyprolis® (carfilzomib) has met the primary endpoint of progression-free survival (PFS) when compared with Velcade® (bortezomib) in patients with relapsed myeloma, according to Amgen/Onyx’s recent ENDEAVOR clinical trial interim analysis. Data from this kind of “head-to-head” clinical trial comparing different myeloma treatments “help considerably… to determine the best new treatment paradigm,” IMF Chairman Dr. Brian Durie writes in his blog this week. CLICK HERE to read.

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IMF Hosts Patient & Family Seminar in
San Francisco


 

Managing side effects, best therapies for patients opting for transplant, clinical trials, new drugs, management of bone disease, and an update on the IMF’s Black Swan Research Initiative® are the myeloma topics to be addressed Friday-Saturday, March 27-28 at a Patient & Family Seminar in San Francisco. The event will feature Dr. Bill Bensinger of Fred Hutchinson Cancer Research Center, Dr. Tom Martin of UCSF Medical Center, Dr. Martha Lacy of Mayo Clinic, Dr. Sundar Jagannath of Mt. Sinai Medical Center, and the IMF’s own Dr. Brian Durie. CLICK HERE for more information or to register for this seminar.

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Profiles in Courage: Patients Share What It's Like to Have Myeloma


 

Are you a myeloma patient with a story to share? A story shared with one person can help spread awareness, but a story shared online can reach thousands. As myeloma patient Bibi Moe, diagnosed in 2003, notes, “my story can give hope to all new patients and their families.” Since her diagnosis she has been elected to the board of the Danish Multiple Myeloma Association and devotes “all my energy to working for other patients and their families here in Denmark.” CLICK HERE to read Bibi’s story and CLICK HERE to share your own.

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Oral Parity Progress Spans the Nation

 

Wyoming is the 35th state with an oral parity law, thanks to Gov. Matt Mead’s signing of SF 62 this week. The IMF celebrates this victory for patients and is excited to see thousands get improved access to their anticancer medications. Several other states have seen progress with their respective bills: in West Virginia, HB 2493 passed the House; in South Dakota, SB 101 passed the House Health and Human Services Committee; Mississippi’s HB 952 had already passed out of the House, and just recently was voted out of the Senate Public Health committee with a full floor vote expected soon; and in Pennsylvania, HB 60 successfully passed out of the House last week, and Sen. Tomlinson has introduced a senate companion bill, SB 536. We are optimistic that we will see continued progress in each of these states; the IMF will keep you posted on any further advances.

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