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Myeloma Minute
February 26, 2015
February 26, 2014
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This week's question: What is the typical speed of improvement in the Freelite and protein levels with myeloma treatment?

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Saturday, March 7, 2015
Regional Community Workshop Denver, Colorado

Saturday, March 7, 2015
Zumba for Multiple Myeloma
St. Augustine, Florida

Friday, March 13, 2015
2015 Kubik Multiple Myeloma Benefit
Rowlett, Texas

Saturday, March 14, 2015 Regional Community Workshop
San Diego, California

Saturday, March 14, 2015
Virginia Beach, Virginia

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March 27 - 28, 2015

Patient & Family Seminar
San Francisco, California

Saturday, April 11, 2015
Myeloma Center Workshop
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FDA Approves Farydak® (panobinostat) for Myeloma

The US Food and Drug Administration (FDA) on Monday approved panobinostat for the treatment of myeloma. Marketed by Novartis under the name Farydak, panobinostat is an HDAC inhibitor intended for patients who have received at least two prior therapies. The safety and efficacy of panobinostat, which is used in combination with bortezomib and dexamethasone, was demonstrated in 193 clinical trial participants. "The approval is obviously good news for the myeloma community," IMF Chairman Dr. Brian Durie reports in his blog. CLICK HERE to read Dr. Durie's blog.


HBO Documentary Explores Measles Virotherapy to Fight Myeloma

Use of measles virotherapy to treat myeloma is one of three revolutionary cancer treatments that will be explored in “Killing Cancer,” which airs Friday, Feb. 27, as part of HBO’s Vice Special Report series. The treatment, pioneered by Dr. Stephen Russell of Mayo Clinic, involves infecting the cancerous cells with measles virus, after which they form clumps of joined and fused myeloma cells, which subsequently die. Dr. Russell (in photo, right) discussed measles virotherapy at the IMWG’s Conference Series “Making Sense of Treatment,” which you can watch HERE.


IMF Launches New Resource Page for Ixazomib

In response to the interest in Takeda’s ixazomib, an oral proteasome inhibitor, the IMF has assembled a new resource page on its website that provides a rundown on the drug’s progress through clinical trials. In one of its four ongoing Phase III trials, ixazomib recently achieved its primary endpoint of improving progression-free survival at the first pre-specified interim analysis. For more information, including how you might participate in a clinical trial, please, CLICK HERE.


Living Well with Myeloma: Understanding the Immune System in Myeloma


Learn about the latest information regarding a robust immune system’s effects on long-term remission by tuning in to the IMF’s first Living Well with Myeloma teleconference of 2015. “Understanding the Immune System in Myeloma,” a 60-minute presentation hosted by Dr. Brian Durie, will be broadcast Thursday, Mar. 19 at 7 pm ET/4 pm PT. CLICK HERE to register for the teleconference.


Have Your Hometown Proclaim "March is Myeloma Awareness Month"


With Myeloma Awareness Month starting this weekend, consider leading the charge to have your city, county or state declare March “Myeloma Awareness Month.” Advocates have already secured proclamations from Los Angeles, Charlotte, Wisconsin and Washington State. These proclamations don’t take a lot of time to get started but have a potentially huge positive impact and lead to increased funding for research and earlier diagnoses. If you are interested in getting a proclamation in your area, visit http://mam.myeloma.org/proclaim or contact Taylor Patton at tpatton@myeloma.org for more details.

A Bicycle Built for Myeloma Outreach


Myeloma patient Andy Sninsky is once again biking across the country in support of myeloma awareness and research. Andy will start in El Paso, Texas and continue to New Orleans, Louisiana, with stops along the way at myeloma support groups in cities that include Austin, Houston, and Baton Rouge. In the course of his travels he will blog, tweet, and solicit media coverage through local newspapers and television stations. “I look forward to being inspired by people along my route and I hope I can give others a reason not to give up,” Andy said. CLICK HERE to read Andy’s blog and follow him on Twitter HERE.

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