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Myeloma Minute
October 16, 2014
10.16.14
October 16, 2014
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This week's question: How does the IMF contribute to the myeloma community?

 
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Saturday, October 25, 2014
Regional Community Workshop
Nashville, Tennessee



Saturday, October 25, 2014
Wayne Hamby Memorial Golf Tournament
Bluffton, South Carolina


Saturday, November 8, 2014
 
8th Annual Comedy Celebration
Los Angeles, California

 
Saturday, November 22, 2014
Regional Community Workshop
Chapel Hill, North Carolina

Friday, December 5, 2014
IMF Satellite Symposium at ASH
San Francisco, California



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Are We Starting to Cure Myeloma?

 

A paper recently published in the medical journal Blood claims its authors are “Curing myeloma at last: defining criteria and providing the evidence,” as the paper’s title states. In his blog this week, IMF Chairman Dr. Brian Durie cautions that this is a bold statement. The paper provides a statistical model to predict myeloma patients’ outcomes. Dr. Durie writes, “Achieving and documenting true cure still demands follow-up of individual patients and cannot be predicted by a computer model.” READ MORE

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New IMF Videos: The Role of Freelite and Hevylite Assays


 

In two new videos, International Myeloma Working Group (IMWG) member Saad Z. Usmani, MD, of Levine Cancer Institute/Carolinas Healthcare System, describes the role of Freelite and Hevylite assays in monitoring multiple myeloma. These tests that quantify free light chains and heavy chain and light chain pairs provide important measurements that track myeloma response and progression. CLICK HERE to watch the videos.

 

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Report: IMF Patient & Family Seminar in Slovakia

 

The IMF’s Director of Europe and the Middle East, Nadia Elkebir, reports on a successful Patient & Family Seminar held this month in Slovakia in conjunction with Slovak Myeloma Society (SMS) & Patient Club. The seminar welcomed 130 patients and family members, and featured presentations from physicians and representatives of myeloma associations throughout Central Europe. In her blog post, Nadia thanks SMS representative Mr. Hrianka Miroslav (at right with his wife, Milada) for his key role in organizing the meeting. READ MORE 

 

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Living Well with Myeloma Teleconference: Management of Bone Disease


 

The IMF’s popular Living Well with Myeloma Teleconference series returns on Thursday, November 13th with “Management of Bone Disease.” The discussion and Q&A will be led by IMWG member Matthew Drake, MD, PhD, of the Mayo Clinic in Rochester, Minnesota. CLICK HERE to register for the free teleconference, which will be held on Thursday, November 13th at 7 pm ET/ 4 pm PT.

 

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Patient Blog: Serving on an Institutional Review Board

 

Patient blogger Cindy Chmielewski shares a blog post detailing her involvement as a patient representative on an institutional review board (IRB). In this role, Cindy is responsible for reviewing clinical research proposals and, with the rest of the board, making sure the rights of the people participating in the clinical research are protected. Although Cindy was nervous before her first IRB meeting, she writes, “Sitting at the table I felt prepared. I knew the language they were speaking thanks to all the education the IMF has given me.” READ MORE 

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