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Myeloma Minute
September 11, 2014
09.11.14
September 11, 2014
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This week's question: Has there been any change in recommendations used to treat bone disease in myeloma?

 

 


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Should Myeloma Treatment Be Fully Personalized?

 
Personalized treatment may be a hot topic, but in his blog this week, IMF Chairman Dr. Brian Durie explains why a broader approach to myeloma treatment should lead to the best outcomes for myeloma patients and ultimately a cure for myeloma. This concept is an important aspect of the IMF’s Black Swan Research Initiative®. Dr. Durie explains, “the goal is to have broadly applicable therapy and learn more from treating larger numbers of patients together, not separately.” READ MORE
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IMF Hosts Congressional Briefing on the Link Between Myeloma and Toxins at Ground Zero


 

Yesterday the IMF hosted a successful briefing in Washington, DC called Understanding Environmental Exposures and Cancer: The Case of Multiple Myeloma. The briefing was attended by congressional staff, patient advocacy partners, and myeloma patients. Speakers including Dr. Ola Landgren, Dr. Laura Crowley, and myeloma patient and 9/11 volunteer Patricia Workman highlighted the ongoing health concerns facing first responders and volunteers who risked their lives in the aftermath of the attacks on 9/11, as well as other environmental factors that show a marked increase in myeloma rates over time.  READ MORE

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A Report from Europe: IMF Strengthens International Bonds

 

Nadia Elkebir, the IMF’s Director of Europe and the Middle East, shares a report this week on meetings she attended this month in Europe. Nadia traveled to the Czech Republic, where she participated in a Patient & Family Seminar that celebrated the 10th anniversary of KPMM (Klub Pacientu Mnohocetny Myelom), the myeloma patient association of the Czech Republic. She also traveled to Boudry, Switzerland, where she met with scientists at Celgene Europe to discuss the company’s myeloma research efforts and the IMF’s important work with myeloma patients around the world. READ MORE

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Becoming a Patient Advocate

 

A special blog post from myeloma patient Cynthia Chmielewski details her involvement in various aspects of patient advocacy, including her work as a support advocate, political advocate, and research advocate. Cynthia shares how her thirst for knowledge about myeloma following her diagnosis led her to advocacy. She writes, “I have evolved as a patient and an advocate over the last six years and I have to credit the IMF with being instrumental in my metamorphosis.” READ MORE

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Myeloma Support Group in India Wins UNESCO Award

 

Yoddhas, the first myeloma support group in India, founded by 29-year-old myeloma patient Rahul Yadav, won the People’s Choice Award for best project in the global Youth Citizenship Entrepreneurship Competition. The competition was sponsored by UNESCO, the United Nations Organization for Education, Science and Culture. Congratulations Rahul and Yoddhas! CLICK HERE to learn more about Yoddhas, which means “warrior” in Hindi, and CLICK HERE to learn more about the award.

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