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Advocacy Update - September 2013
09.25.13
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As The Bill Turns...Episode 5
As the Bill TurnsAs the summer ends, year round legislatures are returning from recess and taking action on some of our key legislation in California, Michigan, Ohio, and Wisconsin. Drastic changes to California's AB 219 caused outcry from our community and in Wisconsin, oral parity legislation was re-introduced with 56 bipartisan co-sponsors. Check out what happened while you were at the beach.

Take Action Today

California
Michigan
Ohio
Wisconsin

Multiple Myeloma Insurance Questionnaire
Ask before you buy - Get the best coverage for you

Insurance MarketplaceAre you shopping for health insurance this fall? If you are currently without health insurance, you may be eligible to enroll in your state's new health insurance marketplace starting October 1. To help you shop and compare plans, we have created a Multiple Myeloma Insurance Questionnaire. This is a list of questions for you to consider when choosing a plan to get the most coverage for the critical needs of a myeloma patient. Read more

Take Action Today

The Federal Oral Parity Bill: HR1801
Action Alert

Mini Cooper Enthusiast Tom Chelius is Advocate of the Month
Tom and His Mini Cooper!Wisconsin native Tom Chelius has been a key member of the ACTION team since day one. One of the first Advocacy Liaisons to a support group, Tom models a perfect way to include advocacy in the West Bend, Wisconsin's monthly support group meeting. Additionally, as a team leader for Wisconsin and for the In District Meeting Team, Tom has supported his group members in meeting with four elected officials in the last three months. A big Thank You and Congratulations to Tom! Click here to Read Tom's Story

Upcoming Events

Health Reform and You: Navigating the Health Insurance Marketplaces Webinar

Thursday, November 21 Click here for details

IMF Engages in Congressional Briefing on Collaborative Research
Rep. BachusLast week in Washington, DC, the IMF participated in a congressional briefing, "Multiple Myeloma & Rare Blood Cancers: Living With Multiple Myeloma, Innovations in Treatment and Patient Access to Care," organized by the California Healthcare Institute and Onyx Pharmaceuticals. In a packed room on the Hill, Meghan Buzby, Director of US Advocacy joined legislators and representatives from other cancer patient advocacy organizations to raise awareness for funding the impressive collaborative research that is lengthening the lives of myeloma patients each day. Read More

Resources

Advocacy Tip of the Month
 
**You can never contact your legislator too much on any issue! They work for you!**
Congress is back from summer recess and even if you have signed a postcard, emailed, or called asking for their support of The Cancer Drug Coverage Parity Act, HR 1801, it is time to remind them! Tell them they can make a difference for cancer patients in their district and across the country by supporting legislation equalizing the out-of-pocket cost for oral anticancer treatments.
Click here to take Action Today!
 
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Bart Barlogie, MD
Myeloma Institute for Research and Therapy
University of Arkansas for Medical Sciences
Little Rock, Arkanas, USA

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As you know, the Federal government is operating under a Continuing Resolution (CR), as Congress has not passed any of the appropriations bills for Fiscal Year (FY) 2011. The current CR expires on March 4. If Congress does not reach an agreement prior to that time, many functions of the Federal government would be curtailed.

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The IMF Invites advocates in Wisconsin to Attend the 2011 Wisconsin ‘Day at the Capitol’
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For more information and to sign up, please visit: ‘A Day at the Capitol’ Information and Registration Website

Voice your support for legislation that will help increase patient access to all chemotherapy treatments!

The IMF has joined the Wisconsin Coalition for Cancer Treatment Access (WCCTA) and is working with them to ensure equal access to chemotherapy treatments for patients in Wisconsin. Please visit www.thewccta.org for more information.

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The mid-term elections will create change in the Nation's capital in the 112th Congress. What do the election results mean for the myeloma community?

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On October 5th, the President signed the Improving Access to Clinical Trials Act into law.


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The U.S. House of Representatives passed the Improving Access to Clinical Trials Act (HR 2866) on September 23rd. The legislation, which passed the Senate on August 5th, now goes to the White House where President Obama is expected to sign it.

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One hundred cosponsors of H Res 1433 cleared the way for The House Energy and Commerce Committee to hold a hearing on this resolution, which encourages greater support for blood cancer research and education.

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Increase of $214 million for FDA in House Appropriations Subcommittee Mark Up

Advocacy Update - June 30, 2010
Does Your Representative Support Blood Cancer Awareness Month? Resolution 1433 recognizes September 2010 as Blood Cancer Awareness Month. We need your help to secure 90 cosponsors before this bill will be considered by the House Energy and Commerce Committee.

Advocacy Update - June 21, 2010
Representatives Walther Jones (R-NC) and Betsy Markey (D-CO) recently introduced a resolution (H. Res.1433) designating September 2010 as Blood Cancer Awareness Month.

Advocacy Update - May 31, 2010
Have Questions About the Temporary High Risk Health Insurance Pool? The health reform law creates a temporary national high-risk pool that will be created to provide health coverage to people with pre-existing medical conditions who have been uninsured for six months.

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NIH Testifies About FY 2011 Research Budget and the ever-present scramble for money was a continuing theme.

Myeloma Advocacy Update - March 30, 2010
On Tuesday, March 23rd, the President signed into law the Patient Protection and Affordable Care Act which transforms significant portions of the health care environment and contains a number of reforms that will be extremely beneficial for myeloma patients.

Advocacy Update - March 2, 2010
President Unveils Health Reform Proposal and White House Hosts Health Reform Summit

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President’s Budget Includes Funding Increases and Cuts to Blood Cancer Programs

Myeloma Advocacy Update - January 31, 2010
Progress in passing health care reform legislation has significantly slowed. Congressional leaders are currently determining how to pass this important legislation as well as what a final package might look like and what the timing might be.

Advocacy Update - January 15, 2010
Since the Senate passed the Patient Protection and Affordable Care Act (H.R. 3590), on December 24th, the House and Senate have been trying to work out the differences between the two bills. On January 13th, President Obama and top Congressional Democrats held a marathon negotiating session in an effort to thrash out agreements on health care reform.

Advocacy Update - December 17, 2009
A summary of some of the legislative issues that IMF has followed in the first session of the 111th Congress. As you can see, we were successful on many important issues such as increasing funding for cancer research in both the economic stimulus package as well as in fiscal year (FY) 2010 at the National Institutes of Health (NIH) and the National Cancer Institute (NCI). However, Congress still has unfinished business on health care reform legislation.

Advocacy Update: November 5, 2009
The House of Representatives released its updated version of the health care reform bill. H.R. 3962, the Affordable Health Care for America Act, is the merged versions of the health care bills passed out of the House Energy & Commerce, Ways & Means, and the Education & Labor Committees. HR 3962 would cover 96 percent of Americans, reduces the deficit and provides coverage for an additional 37 million Americans. It closes the drug benefit doughnut hole for seniors and sets a floor for Medicaid at 150 percent of federal poverty - about $33,075 for a family of four.

Advocacy Update - September 15, 2009
President Barack Obama’s address to Congress last week helped to move the Congress closer to passing comprehensive health insurance reform. In his speech, the President stated his case to Congress: health insurance reform must pass this year. He stressed that repeating history by doing nothing is not an option and laid out specific benchmarks for reform. He reminded Congress that effective health reform is essential to restoring the country’s long-term fiscal health and securing a stronger future for our children.

Advocacy Update - September 1, 2009
Congress returns to work on September 8th and the top priority will be passing heath care reform. Without Senator Ted Kennedy (D-MA), Congressional Democrats will need to figure out how to keep the debate on health care reform bipartisan which they view as key to passing reform. Over the August Congressional Recess period, many Congressional members hosted contentious town hall meetings with constituents on this very issue.

Advocacy Update - August 3, 2009
Both the House of Representatives and the Senate forged ahead on health care reform; however, neither the House nor the Senate were able to pass their respective versions of health care reform before adjourning for the August Congressional recess period which begins on August 3rd. Unfortunately, this delay means that Congress will miss the deadline set by the President earlier this year to enact health care reform.