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Myeloma Minute
August 2, 2012
August 2, 2012
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August 10-11, 2012

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August 24-25, 2012

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Save the Date!
October 27, 2012
Can Cookies Cause Myeloma? New Research Looks at the Role of Acrylamide
Further investigation is required before cookies are added to the “do not eat” list. But, writes IMF Chairman and Co-founder, Dr. Brian Durie, a large study from the Netherlands examines a correlation between the chemical Acrylamide —present in baked goods and other foods—and myeloma. READ MORE

National Cancer Institute Offers No-Cost Myeloma Clinical Trials for Eligible Patients
The IMF Hotline Team reports that one of the premier researchers in the field of myeloma, Dr. Ola Landgren, is now at the National Institutes of Health, National Cancer Institute Clinical Research Center in Bethesda, MD, working with an outstanding team. Eligible myeloma patients can participate in the center’s clinical trials at no cost. The NIH covers everything (including transportation to and from the trial and housing during the trial) and does not bill insurance. An eligible patient can benefit from cutting-edge clinical research in such areas as:
  • MGUS (monitoring/follow-up with molecular profiling)
  • Molecular imaging studies for MGUS, SMM, and MM (various types of imaging)
  • SMM (monitoring/follow-up with molecular profiling)
  • SMM (treatment studies for high-risk SMM)
  • Newly diagnosed MM treatment
  • Relapsed MM (various small molecules, immune therapy, transplant)
Click here for more information on NCI Clinical Center studies
Interested patients should contact Dr. Mark Roschweski at roschewskimj@mail.nih.gov and cc nurses Marcia Mulquin mmulquin@mail.nih.gov and Diamond Zuchlinski zuchlinskid@mail.nih.gov

Support Group Leaders Gather in Dallas to Share Wisdom, Camaraderie, Hope and Humor
Myeloma patients and caregivers look to support groups for guidance and strength. But who do support group leaders turn to when they need the same? Once a year, IMF Support Group Leaders turn to each other to answer questions such as: “How do you keep people attending support group meetings when they start feeling better?” Or “When a leader leaves or dies, how do we rebuild the group from the ground up?” The IMF’s Abbie Rich blogged about the Dallas Support Group Summit and her reports are here. Blogger Pat Killingsworth, patient/support group leader, gives a patient’s view here

Advocates Get the Red Carpet Treatment for Their Work on Behalf of Patients
Lights…Camera…Action! The IMF hosted its 2nd annual All-Star Advocates Oscars Ceremony at the Support Group Leader Summit in Dallas last week. Each winner received an Oscar statue to drum rolls and Olympic music at the end of a red carpet. With the lights down and the spotlight shining, the winners were honored for their hard work and dedication to our advocacy program--and for going above and beyond to have their voices heard on behalf of all cancer patients. And the winners are...READ MORE

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