Fredericksburg, VA (15 years); Mekaco79@cs.com
1954 / Class of '92 / Kappa Light-Chain / Last Update: 12/99
I was diagnosed with Multiple Myeloma (Kappa Light Chain Deposition ) in
March 1992, when I was 38 years old. I grew up outside of Detroit, Michigan and
later lived in Huntsville, Alabama for about 13 years. Neither place was close to chemicals, just
suburbs. My symptom was being overly tired. I went to my gynecologist for a
check up and he proceeded to run some tests.
The test showed that I was going into Renal failure. I was sent to a Nephrologist
and tested for various thing over a 2 week period. During that 2
weeks I went into complete renal failure and was hospitalized to be put on
dialysis. When I was in the hospital I was tested for Myeloma and it came back
positive. I did not have any bone involvement but I was left with no renal
function. I was started on standard Myeloma chemo and had a severe allergic
reaction which hospitalized me for 5 days. Because of the medications having an
adverse affect on the already-failing kidneys, it took them a while to come up
with an alternative. When they did, my cancer was gone within 6 months. I was
still in renal failure and told the only chance of cure was a stem cell
transplant. The dilemma was finding a place that would do me in renal failure.
We called all over the country and finally found Moffitt Cancer Center in Tampa
I received my transplant in Sep. 1993. The chemo was Busulfin, VP 16 .
Because of the Busi, I permanently lost my hair but that is a small price to
pay. The month before the transplant I regained , miraculously, partial kidney
function and was pulled off dialysis. My kidneys have improved to almost 50 % at
this time (12/99) I am in my 8th year of remission and 7th post transplant. No
sign of the myeloma has occurred and I continue to be tested yearly. I am told
by all my doctors that I am a miracle. I attribute my life to God, Great
doctors, great medicine, prayers and faith. I do council Myeloma patients for
August, 2001: I will be beginning my 10th Year of remission in October, 2001. I have been getting a lot of patients writing me lately and I so enjoy helping if I can. I have been responding to a lady in France for about 2 months. I have to admit, I get fulfillment by communicating with other patients that I could never get from anything else. I no longer counsel for Moffitt, I guess I have been "out" too long. Take care and thanks again for what you do. You are reaching many!!