We are international

Myeloma Minute
October 26, 2010
Welcome to the IMF's Myeloma Minute
News about myeloma treatment, research, support and the myeloma community
from the International Myeloma Foundation.


Get ready to laugh your socks off! It's time for the 4th Annual Comedy Celebration Benefiting the Peter Boyle Memorial Fund.
Hosted by RAY ROMANO and featuring Dana Carvey, Jeff Garlin, Doris Roberts, Susie Essman, Dr. Ken Jeong, Fred Willard, and Carlos Mencia. Coming to the Wilshire Ebell Theatre and Club in Los Angeles on Saturday, November 13, 2010. Tickets are on sale now!

We did it! Our car, the Myeloma Survivor, is a Finalist! Only 20 Days Until the Winner is Announced
Congratulations! Your support for "The Survivor" pushed the car ahead into the final round of the Sponsafier NASCAR design contest! Our spot in the final round is an exciting chance for all myeloma supporters to be in the driver’s seat as we raise awareness of myeloma and the International Myeloma Foundation.

Minnesota cancer researchers net $26M for stem cell therapies
Two researchers at the University of Minnesota‘s Masonic Cancer Center will receive $26 million in renewed grants from the National Cancer Institute to boost stem cell therapies that treat blood and bone cancers, as well as other disorders. (from Med City News)

You can make a difference in the lives of myeloma patients. Make your voice heard!
Learn the basics of advocacy and public policy. Sign up for the "Advocacy 101" webinar on Wednesday, October 27th, from 6:30-7:30 pm ET. Email mbuzby@myeloma.org to sign up.

The final Living Well with Myeloma quarterly teleconference for 2010 is "Hope, Stress, Myeloma & The Holidays"
Friday, November 19th at 4:00 p.m. (Pacific) 7:00 p.m. (Eastern)  with Greg Pacini, MS, LPC, CGP. Just in time for the holidays!

Long Term Use of Oral Bisphosphonates May Double Risk of Esophageal Cancer
People who take oral bisphosphonates for bone disease over 5 years may be doubling their risk of developing esophageal cancer, according to a study published on bmj.com. (from Science Daily)

Support Group News:

A lesson from Mom: Don't be a 'good' patient
If you have been to an IMF Patient & Family Seminar, you know that Mike Katz has been showing you how to be a good patient by not being a "good" patient for years. (from CNNHealth)

Key Questions for 2010: Latest Developments in Diagnosis, Prognosis, and Treatment of Myeloma
If you are a physician attending ASH, join Dr. Brian Durie in this interactive, case-based symposium, jointly sponsored by Annenberg Center for Health Sciences at Eisenhower, the International Myeloma Foundation, and Clinical Care Options, in which expert faculty members discuss evolving data in the optimal management of patients with multiple myeloma.

New edition of CITINGS, the compendium of novel therapy treatments, now available on IMF website.
Featuring the most up-to-date information on myeloma treatment, focused on the novel therapies currently under
study and in use. This edition corresponds with articles published between May and September 2010.

Experts develop prototype of synthetic kidney
Scientists at the University of California, San Francisco, have developed a prototype of an artificial kidney designed to filter toxins from the blood. The device uses silicon membranes layered with human kidney cells to control blood pressure, produce vitamin D and perform important kidney functions. (from MIT Technology Review)

  • President Signs Improving Access to Clinical Trials Act
    On October 5th, the President signed the Improving Access to Clinical Trials Act into law.    This important legislation changes the eligibility requirements for Supplemental Security Income (SSI) and Medicaid so that compensation of up to $2,000 for participating in clinical trials won’t be considered income in SSI and Medicaid determinations.  Passage of the Improving Access to Clinical Trials Act shows the importance of participating in the legislative process and IMF thanks all of our advocates for all of their assistance in seeing this legislation become law.

  • Blood Cancer Awareness Month Resolution Has 100 Cosponsors
    Thank to everyone who spent 5 minutes to write their U.S. Representative and urge him or her to co-sponsor H Res 1433. Your efforts helped us to meet our goal of at least 100 cosponsors and clear the way for the House Energy and Commerce Committee to hold a hearing on this resolution. This resolution recognizes September 2010 as Blood Cancer Awareness Month and highlights the impact blood cancers have in the United States each year and encourages greater support for blood cancer research and education. For more information about H Res 1433 and to see if your Member is a cosponsor, visit the Advocacy Action Center at www.advocacy.myeloma.org. 

  • LHHS Appropriations Bill to be Finalized after Mid-Term Elections
    The Labor, Health and Human Services, and Education (LHHS) Appropriations bill is expected to become part of an Omnibus Appropriations bill sometime after fiscal 2011 starts on October 1, most likely after the mid-term elections. As you know, the House and Senate LHHS Appropriations bills include funding for the National Institutes of Health, the National Cancer Institute, and the Geraldine Ferraro Blood Cancer Program at the Centers for Disease Control and Prevention. Congress has been slow to consider appropriations measures in the tense election year climate with rising deficit concerns among lawmakers of both parties.

  • Are You a Member of the Myeloma Action Network?
    Want to stay informed about IMF’s advocacy activities? All you need to do is to join the Myeloma Action Network at www.advocacy.myeloma.org and you will automatically receive e-mail advocacy alerts from the IMF. To learn more about health care reform and other important advocacy issues that impact the myeloma community, please visit the IMF advocacy page at www.myeloma.org. 

    For more information about the legislation listed above or any other IMF advocacy initiative, contact IMF’s Director of Government Relations, Christine Murphy at cmurphy@myeloma.org or 703-738-1498.

Members of Scientific Advisory Board*, Members of International Myeloma Working Group†


If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute (NCI). To see the summaries of newsworthy clinical trial results, visit the National Cancer Institute Multiple Myeloma Trial Results.

Note: Some of the international seminar cities have been set, but the venues and agendas are still in the works. Check back often if you are interested in attending, as we post the sites and speakers as they are confirmed.


  • Gems for Myeloma 
    Originally created for IMF staffers by Marya Kazakova, IMF's Publications Editor, this beautiful custom jewelry is now available for sale to raise funds for IMF programs and services.
  • Kindness for a Cure: The Denise Gaeta Bencel Fund
    Let's make the world a bit nicer and help find a cure - a win-win! Spend one month - 30 days - spreading kindness to others. Pay yourself one dollar per day - less than the cost of a cup of coffee. At the end of the thirty days donate the money to the International Myeloma Foundation. Tell us about your personal experiences during this month. Click here to visit the event website for more information and to make your donation.
  • Veterans Against Myeloma
    IMFer Jerry Walton encourages all vets to join Veterans Against Myeloma. "Many MM patients are veterans. Our combined efforts to continue our service through the Veterans Against Myeloma cause can help research and help us win the battle by finding a cure. Hopefully one day together we can say 'Mission Accomplished!'"
  • VISIONS Notecards by Jeff; A Cure for Karl
    Jeff Hanson is a 15 year-old, visually impaired artist from Overland Park, Kansas. IMFer Karl Vollstedt and Jeff are great friends who use their time and talents to benefit others. Jeff created these note cards as a gift to Karl and to myeloma research.

As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE.
Host an Afternoon Tea

How to Host an Afternoon Tea
An elegant and easy way to build awareness about myeloma and raise money in your community, and the IMF will help.

Kids Fight Back!
Kids, need to earn a Citizenship merit badge or fulfill community service requirements? Here's a great idea about how to do both while you fight back against myeloma. We'll help you put on the best fundraiser ever!
Shop for the IMF Shop for the IMF
Shop with the leading merchants on the Internet, receive the same price as anyone else visiting their sites, and support the IMF at the same time!
See more exciting ways to help the IMF continue its important work in education, support and research.


Myeloma Manager
Have you downloaded your Myeloma Manager Personal Care Assistant

Another exciting first from the IMF!
Free software to help manage and understand your lab results, and more!

Help for Underinsured Myeloma Patients
Thanks to the advocacy of the IMF, the Chronic Disease Fund has received an infusion of money to help them meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.

A tool to help understand the current status of the disease and the questions you should be asking.

Tell A Friend...
The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.
Sign up for a FREE Subscription to Myeloma Today, the
Official Newsletter of the IMF!
Many thanks to the supporters of The Myeloma Minute:
Celgene Corporation, Millennium: The Takeda Oncology Company, and The Binding Site
Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2010. International Myeloma Foundation. All Rights Reserved.

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