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Myeloma Minute
November 29, 2010
11.29.10
Welcome to the IMF's Myeloma Minute
News about myeloma treatment, research, support and the myeloma community
from the International Myeloma Foundation.

WHAT'S NEWS

Forget Cyber Monday! Shop the IMF Holiday Gift Boutique Every Day!
Making your holiday gift list? Double your dollars with every purchase at the 2010 IMF Holiday Boutique. Jewelry, adorable stuffed Myeloma Buddies, Holiday Cards designed by IMFers, and much more. With every gift you buy, you make a donation to the IMF to support myeloma education, research, support and advocacy. Two gifts in one!


New! International Myeloma Working Group Guidelines (IMWG) for the use of biochemical markers of bone remodeling in multiple myeloma
The guidelines from the International Myeloma Working Group summarize the existing data for the role of bone markers in assessing multiple myeloma.


Multiple myeloma -- a lesser known cancer poses challenges in diagnosis and treatment
While most Americans are familiar with leukemia, its sister blood cancers, such as multiple myeloma, remain relatively uncommon and unknown. An interview with IMF Scientific Advisor Dr. Sundar Jagannath (from The New York Daily News)

New for Nurses! Webinar with CE Credit - Consensus on Care: Updates in the Management of Side Effects in Multiple Myeloma: A Case-Based Approach to Care
Thursday, December 16, 2010 at 4:00 PM ET (1:00 PM PT)

Desperately Seeking Cures
Newsweek's article points out how the road from promising scientific breakthrough to real-world remedy has become all but a dead end. This is why the International Myeloma Working Group, made up of 140 top myeloma experts who have worked together to publish an unprecedented number of research papers to help bring myeloma drugs from bench to bedside, is so very important.

The Key Ingredient to Effective Cancer Treatments
A startup in San Francisco is developing proteins that could carry oxygen to tumors more effectively, increasing the odds that radiation therapy will help these patients. (from Technology Review)


BMT breakthrough suggested in lab finding
In a breakthrough that could revolutionize the way leukemia is treated, Canadian researchers have found a way to create blood from a patch of a person's own skin. That means cancer patients may not have to wait for a life-saving donor match to receive a bone-marrow transplant and then face the risk of the body rejecting the blood stem cells as foreign. (from Globe and Mail)

This Holiday Season, Don't Forget to Shop for the IMF
Shop with the leading merchants on the Internet, receive the same price as anyone else visiting their sites, and support the IMF at the same time!

ADVOCACY UPDATES
  • Take the Access to Cancer Medications Survey
    The Patients Equal Access Coalition (PEAC), of which the IMF is a member, is conducting a survey of cancer patients and their experience in obtaining access to the cancer medications recommended by their physicians.

  • Analysis of 2010 Mid-Term Elections
    The mid-term elections will create change in the Nation's capital in the 112th Congress. Below is a brief analysis of what the election results will mean for the myeloma community.  Of course, how this will all settle out will evolve over the coming weeks as some congressional races are not even decided yet. Click for a quick first look at what the changes mean.

  • December's Advocate of the Month is All the IMF Advocates!
    As the IMF Advocacy team rounds out a very empowering and successful year, we would like to take this opportunity to congratulate and thank ALL of YOU!

  • Are You a Member of the Myeloma Action Network?
    Want to stay informed about IMF’s advocacy activities? All you need to do is to join the Myeloma Action Network at www.advocacy.myeloma.org and you will automatically receive e-mail advocacy alerts from the IMF. To learn more about health care reform and other important advocacy issues that impact the myeloma community, please visit the IMF advocacy page at www.myeloma.org. 

    For more information about the legislation listed above or any other IMF advocacy initiative, contact IMF’s Director of Government Relations, Christine Murphy at cmurphy@myeloma.org or 703-738-1498.

WHAT'S NEW IN RESEARCH
Members of Scientific Advisory Board*, Members of International Myeloma Working Group†

CLINICAL TRIALS

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute (NCI). To see the summaries of newsworthy clinical trial results, visit the National Cancer Institute Multiple Myeloma Trial Results.


UPCOMING SEMINARS AND CLINICAL CONFERENCES
Note: Some of the international seminar cities have been set, but the venues and agendas are still in the works. Check back often if you are interested in attending, as we post the sites and speakers as they are confirmed.


UPCOMING MEMBER EVENTS
  • Matt Jacobs Friends and Family
    Last year thanks to you, we were able to raise over $5,400. This year, more than ever, I need your support.

  • The 2B Awards
    The 2B Awards, an online talent competition, was launched November 11, 2010 and is creating a buzz all over the Internet. A percentage of the revenue generated by the awards will be donated to the International Myeloma Foundation.
ONGOING MEMBER EVENTS
  • Kindness for a Cure: The Denise Gaeta Bencel Fund
    Let's make the world a bit nicer and help find a cure - a win-win! Spend one month - 30 days - spreading kindness to others. Pay yourself one dollar per day - less than the cost of a cup of coffee. At the end of the thirty days donate the money to the International Myeloma Foundation. Tell us about your personal experiences during this month. Click here to visit the event website for more information and to make your donation.
  • Veterans Against Myeloma
    IMFer Jerry Walton encourages all vets to join Veterans Against Myeloma. "Many MM patients are veterans. Our combined efforts to continue our service through the Veterans Against Myeloma cause can help research and help us win the battle by finding a cure. Hopefully one day together we can say 'Mission Accomplished!'"

HELP THE IMF
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE.
Host an Afternoon Tea

How to Host an Afternoon Tea
An elegant and easy way to build awareness about myeloma and raise money in your community, and the IMF will help.

Kids Fight Back!
Kids, need to earn a Citizenship merit badge or fulfill community service requirements? Here's a great idea about how to do both while you fight back against myeloma. We'll help you put on the best fundraiser ever!
See more exciting ways to help the IMF continue its important work in education, support and research.

ITEMS OF INTEREST

Myeloma Manager
Have you downloaded your Myeloma Manager Personal Care Assistant

Another exciting first from the IMF!
Free software to help manage and understand your lab results, and more!


Help for Underinsured Myeloma Patients
Thanks to the advocacy of the IMF, the Chronic Disease Fund has received an infusion of money to help them meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.

NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.

Tell A Friend...
The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.
Sign up for a FREE Subscription to Myeloma Today, the
Official Newsletter of the IMF!
Many thanks to the supporters of The Myeloma Minute:
Celgene Corporation, Millennium: The Takeda Oncology Company, and The Binding Site
Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2010. International Myeloma Foundation. All Rights Reserved.

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