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Myeloma Minute
September 2, 2010
09.02.10
Welcome to the IMF's Myeloma Minute
News about myeloma treatment, research, support and the myeloma community
from the International Myeloma Foundation.

WHAT'S NEWS

Less intensive drug schedule as effective as standard treatment for blood cancer
A less intensive bortezomib-based regimen (given once instead of twice per week) followed by maintenance therapy, is as effective as the standard treatment for elderly patients with multiple myeloma, but with fewer serious side effects, and will be a valuable treatment option in these patients, according to an article published in The Lancet Oncology. (from Physorg.com)

Map of Shame
The September issue of Readers Digest Canada features a timely piece on the critical issue of the "patchwork" approach to cancer drug funding across Canada. The article highlights the challenges faced by cancer patients depending on which province they live in. Carol Coleman, leader of the New Brunswick Multiple Myeloma Support Group, was interviewed for the article. For information on how to get reimbursed for prescriptions with various private, provincial/territorial and federal plans across Canada, go to drugcoverage.ca A sister site, drugcoverage.org, provides information for health professionals on how to help their patients obtain reimbursement.

For Nurses Only - Consensus on Care: Case Studies in the Management of Venous Thromboembolic Events and
Peripheral Neuropathy in Multiple Myeloma

Teleconference/Webinar on September 30, 2010. CE activity 1.0 contact hours

BEAT CANCER TO THE FINISH LINE!
Thank you to all IMFers who voted for our entry, designed by patient Keith May, in the Sponsafier 2 NASCAR design contest!  We are in the top eight cars in the contest! We’ll find out if we’ve made the semi-final round on September 13. Watch this space to find if we make the semi-finals, when your votes again can help us reach the finish line and spread myeloma awareness!

Bone morphogenetic protein-2 higher in patients with multiple myeloma
Results from a recent study showed that bone morphogenetic protein-2 was a mediator for hepcidin-stimulatory capacity in multiple myeloma sera, a pathway that may contribute to multiple myeloma-related anemia. (from HemOnc Today)

NHS: Two new multiple myeloma treatments
In draft guidance published August 26, the UK's National Institute for Health and Clinical Excellence (NICE) is recommending thalidomide and bortezomib as treatments for myeloma. (from WebMD Health News)

New Kits for Patients with Multiple Myeloma
Binding Site has launched 4 more Hevylite kits. Hevylite is CE marked for use in monitoring patients with Multiple Myeloma and other B cell dyscrasias. (from SelectScience.net)

Use of Bisphosphonates Not Associated With Increased Risk of Oesophageal, Gastric Cancer
Although some reports have suggested a link between the use of oral bisphosphonates and oesophageal cancer, analysis of medical data from more than 80,000 patients in the United Kingdom found that use of these drugs was not significantly associated with new cases of oesophageal or gastric cancer. (from DG News) See JAMA article below.

Audio of the Living Well with Multiple Myeloma - Nutrition teleconference is on the web.
The third teleconference in the Living Well with Myeloma series focuses on Nutrition with Loch Chandler, N.D., MSOM, L.Ac. from Providence Integrative Medicine Clinic, Portland, Oregon.


Be Bold Be Bald!
On October 22, 2010, anyone across the United States who wants to show support and raise money for the International Myeloma Foundation can participate in a campaign called "Be Bold, Be Bald." Participants get sponsored to wear a bald cap for the entire day in solidarity with those who lose their hair and face other side effects from cancer treatment.

ADVOCACY UPDATES


WHAT'S NEW IN RESEARCH
Members of Scientific Advisory Board*, Members of International Myeloma Working Group†

CLINICAL TRIALS

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute (NCI). To see the summaries of newsworthy clinical trial results, visit the National Cancer Institute Multiple Myeloma Trial Results.


UPCOMING SEMINARS AND CLINICAL CONFERENCES
Note: Some of the international seminar cities have been set, but the venues and agendas are still in the works. Check back often if you are interested in attending, as we post the sites and speakers as they are confirmed.


UPCOMING MEMBER EVENTS

ONGOING MEMBER EVENTS
  • Kindness for a Cure: The Denise Gaeta Bencel Fund
    Let's make the world a bit nicer and help find a cure - a win-win! Spend one month - 30 days - spreading kindness to others. Pay yourself one dollar per day - less than the cost of a cup of coffee. At the end of the thirty days donate the money to the International Myeloma Foundation. Tell us about your personal experiences during this month. Click here to visit the event website for more information and to make your donation.
  • Veterans Against Myeloma
    IMFer Jerry Walton encourages all vets to join Veterans Against Myeloma. "Many MM patients are veterans. Our combined efforts to continue our service through the Veterans Against Myeloma cause can help research and help us win the battle by finding a cure. Hopefully one day together we can say 'Mission Accomplished!'"
  • VISIONS Notecards by Jeff; A Cure for Karl
    Jeff Hanson is a 15 year-old, visually impaired artist from Overland Park, Kansas. IMFer Karl Vollstedt and Jeff are great friends who use their time and talents to benefit others. Jeff created these note cards as a gift to Karl and to myeloma research.

HELP THE IMF
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE.

How to Host an Afternoon Tea
An elegant and easy way to build awareness about myeloma and raise money in your community, and the IMF will help.

Kids Fight Back!
Kids, need to earn a Citizenship merit badge or fulfill community service requirements? Here's a great idea about how to do both while you fight back against myeloma. We'll help you put on the best fundraiser ever!
Shop for the IMF
Shop with the leading merchants on the Internet, receive the same price as anyone else visiting their sites, and support the IMF at the same time!
See more exciting ways to help the IMF continue its important work in education, support and research.

ITEMS OF INTEREST


Have you downloaded your Myeloma Manager Personal Care Assistant

Another exciting first from the IMF!
Free software to help manage and understand your lab results, and more!


Help for Underinsured Myeloma Patients
Thanks to the advocacy of the IMF, the Chronic Disease Fund has received an infusion of money to help them meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.

NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.

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Official Newsletter of the IMF!
Many thanks to the supporters of The Myeloma Minute:
Celgene Corporation, Millennium: The Takeda Oncology Company, and The Binding Site
Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2010. International Myeloma Foundation. All Rights Reserved.

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