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Myeloma Minute
August 18, 2010
08.18.10
Welcome to the IMF's Myeloma Minute
News about myeloma treatment, research, support and the myeloma community
from the International Myeloma Foundation.

WHAT'S NEWS

BEAT CANCER TO THE FINISH LINE!
Calling all IMFers. One of our talented members, Keith May, has entered a design in Toyota's Sponsifier 2 racecar design contest, The Survivor! You can help spread myeloma awareness just by casting a vote a day for Keith's design at nascar.myeloma.org. Whichever car receives the most votes will have the opportunity to be the lead car in a NASCAR race. So vote every day for "The Survivor" in the Toyota Racing Sponsafier2 challenge and help the IMF get our own NASCAR racecar!

Audio of the Living Well with Multiple Myeloma - Nutrition teleconference is on the web.
The third teleconference in the Living Well with Myeloma series focuses on Nutrition with Loch Chandler, N.D., MSOM, L.Ac. from Providence Integrative Medicine Clinic, Portland, Oregon.

Nurse Leaders within the International Myeloma Foundation Publish Book for Nurses to Help Myeloma Patients Optimize Their Care
“Oncology nurses are closely involved in their patients’ care, offer support and solutions when problems arise”

Women with same name discover they have same cancer—and other life parallels
Mindy Fast of Richmond, Va. and Mindy Fast of Rockaway, N.J., found they shared a name, were fighting the same cancer, and were distant cousins by marriage. (from NorthJersey.com)


Cancer patients quit life-extending drugs in recession
In 2009 and 2010, as the economic collapse shuddered across the globe, oncologists in California noticed a troubling trend: Three patients who had had serious tumors under control for as long as eight years reappeared in the clinic with massive cancer regrowth which, in one case, required emergency surgery. (from USA Today)

Immunomedics Awarded Additional U.S. Patent for Internalizing anti-CD74 Antibodies and Methods of Use
Immunomedics, Inc., a biopharmaceutical company focused on developing monoclonal antibodies to treat cancer and other serious diseases, today announced that additional claims for the patent family "Internalizing anti-CD74 antibodies and methods of use," were issued as U.S. Patent No. 7,772,373. (from the Wall Street Journal)



ON THE FRITZ An Evening with Fritz Coleman

If you live in Los Angeles, Fritz Coleman is known as the wittiest weatherman in town. Join him on Sunday, August 22, for an afternoon of his affable yet acerbic take on life in the biz, followed by a special reception benefiting the IMF.

ADVOCACY UPDATES
  • Can You Spare 5 Minutes for Blood Cancer Awareness Month?
    IMF is asking every advocate to spend 5 minutes to write their U.S. Representative and urge him or her to co-sponsor H. Res. 1433.  This resolution recognizes September 2010 as Blood Cancer Awareness Month and highlights the impact blood cancers have in the United States each year and encourages greater support for blood cancer research and education.

  • The National Coalition for Cancer Research (NCCR) supports provisions of the Interim Final Rules that permit health plans to add benefits to existing gradfathered plans...
    The Patient Protection and Affordable Care Act (PPACA) contained a provision that provided for “grandfathered” status of health plans in existence as of March 23, 2010, when PPACA was signed into law.  Plans which were “grandfathered” were exempted from many of the patient protections, including the requirement that health plans cover routine patient costs associated with clinical trial participation.  IMF recently signed onto comments from the National Coalition for Cancer Research (NCCR) on the interim final rule for group health plans and health insurance coverage relating to status as a grandfathered health plan under the PPACA.
WHAT'S NEW IN RESEARCH
Members of Scientific Advisory Board*, Members of International Myeloma Working Group†

CLINICAL TRIALS

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute (NCI). To see the summaries of newsworthy clinical trial results, visit the National Cancer Institute Multiple Myeloma Trial Results.


UPCOMING SEMINARS AND CLINICAL CONFERENCES
Note: Some of the international seminar cities have been set, but the venues and agendas are still in the works. Check back often if you are interested in attending, as we post the sites and speakers as they are confirmed.


UPCOMING MEMBER EVENTS

ONGOING MEMBER EVENTS
  • Kindness for a Cure: The Denise Gaeta Bencel Fund
    Let's make the world a bit nicer and help find a cure - a win-win! Spend one month - 30 days - spreading kindness to others. Pay yourself one dollar per day - less than the cost of a cup of coffee. At the end of the thirty days donate the money to the International Myeloma Foundation. Tell us about your personal experiences during this month. Click here to visit the event website for more information and to make your donation.
  • Veterans Against Myeloma
    IMFer Jerry Walton encourages all vets to join Veterans Against Myeloma. "Many MM patients are veterans. Our combined efforts to continue our service through the Veterans Against Myeloma cause can help research and help us win the battle by finding a cure. Hopefully one day together we can say 'Mission Accomplished!'"
  • VISIONS Notecards by Jeff; A Cure for Karl
    Jeff Hanson is a 15 year-old, visually impaired artist from Overland Park, Kansas. IMFer Karl Vollstedt and Jeff are great friends who use their time and talents to benefit others. Jeff created these note cards as a gift to Karl and to myeloma research.

HELP THE IMF
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE.

How to Host an Afternoon Tea
An elegant and easy way to build awareness about myeloma and raise money in your community, and the IMF will help.

Kids Fight Back!
Kids, need to earn a Citizenship merit badge or fulfill community service requirements? Here's a great idea about how to do both while you fight back against myeloma. We'll help you put on the best fundraiser ever!
Shop for the IMF
Shop with the leading merchants on the Internet, receive the same price as anyone else visiting their sites, and support the IMF at the same time!
See more exciting ways to help the IMF continue its important work in education, support and research.

ITEMS OF INTEREST


Have you downloaded your Myeloma Manager Personal Care Assistant

Another exciting first from the IMF!
Free software to help manage and understand your lab results, and more!


Help for Underinsured Myeloma Patients
Thanks to the advocacy of the IMF, the Chronic Disease Fund has received an infusion of money to help them meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.

NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.

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Official Newsletter of the IMF!
Many thanks to the supporters of The Myeloma Minute:
Celgene Corporation, Millennium: The Takeda Oncology Company, and The Binding Site
Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2010. International Myeloma Foundation. All Rights Reserved.

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