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Myeloma Minute
August 4, 2010
08.04.10
Welcome to the IMF's Myeloma Minute
News about myeloma treatment, research, support and the myeloma community
from the International Myeloma Foundation.

WHAT'S NEWS

Dial In Tomorrow for the Living Well with Multiple Myeloma Teleconference Series on Nutrition
Thu, Aug 05, 2010
with Loch Chandler, N.D., MSOM, L.Ac. from Providence Integrative Medicine Clinic, Portland, Oregon.

Study Suggests Carfilzomib Could Be Important New Treatment Option for Relapsed Myeloma Patients
Next-Generation Proteasome Inhibitor Demonstrates Positive Data with Favorable Tolerability in Difficult-to-Treat Patient Group

Michael McKean overwhelmed by flood of emails Thanking Him for His Donation to IMF After Jeopardy Win.
Following his historic win, the IMF was flooded with emails and letters from grateful patients all over the country. We forwarded these messages to Michael, who has sent a letter in response and asked us to share it with all of you.


Going to Philadelphia for the Patient & Family Seminar? The Philadelphia Westin Hotel now has a lower summer rate, and they've lowered our room rate to $145, and will honor the lower rate for everyone who has already registered.

Mayo leads new clinical trial search
Mayo Clinic researchers are heading up a new cooperative research model for clinical trials that could take years out of the life cycle of a trial and accelerate the amount of time it takes to translate the results to new drugs and treatments. (from Jacksonville Business Journal)


Length of Biological Marker Associated With Risk of Cancer
A new study suggests that shorter length of leukocyte telomeres are associated with an increased risk of cancer and death from cancer. Results are published in the July 7 issue of JAMA (from DG News)

The Brian D. Novis Grant Applications for 2011 are on the web
The IMF offers grants to doctors and researchers working in the field of myeloma. All grant applications for funding in 2011 must be received by the IMF by August 31, 2010.


Advances in the Treatment of Multiple Myeloma
On Wednesday, August 11th, CancerCare, in partnership with the International Myeloma Foundation, will offer a free Connect Education Workshop entitled: Advances in the Treatment of Multiple Myeloma. The teleconference will take place from 1:30 to 2:30 pm Eastern Time.


ON THE FRITZ An Evening with Fritz Coleman

If you live in Los Angeles, Fritz Coleman is known as the wittiest weatherman in town. Join him on Sunday, August 22, for an afternoon of his affable yet acerbic take on life in the biz, followed by a special reception benefiting the IMF.

ADVOCACY UPDATES
  • Cancer Research Receives Boost in House and Senate LHHS Appropriations Bills
    The House Labor, Health and Human Services, and Education (LHHS) Appropriations Subcommittee marked up the FY 2011 LHHS Appropriations bill on July 15th. The LHHS Appropriations bill includes funding for important myeloma programs at the National Institutes of Health (NIH), the National Cancer Institute (NCI), and the Centers for Disease Control and Prevention (CDC). In the House LHHS bill, the NIH received $32 billion (a $1 billion increase over FY 2010). This is the same amount included in the President’s FY 2011 budget. The NCI was allocated $5.265 billion, $162 million more than FY 2010 and the same level in the President’s budget. At the time of the printing of the Myeloma Advocacy Update, the funding allocation for the Geraldine Ferraro Blood Cancer Program at the CDC had not been published.

    On July 27th, the Senate LHHS Appropriations Subcommittee included the same allocation for the NIH as the House bill and the President’s Budget. The Senate allocation for the NCI is $5.257 million. This amount is $153 million above the FY 2010 funding level. For the Geraldine Ferraro Blood Cancer Program at the CDC, the Senate included $5 million for the program in FY 2011 (an increase of $300,000).

  • Does Your Representative Support Blood Cancer Awareness Month?
    H. Res. 1433 recognizes September 2010 as Blood Cancer Awareness Month. This resolution highlights the impact blood cancers have in the United States each year and encourages greater support for blood cancer research and education.

    We need to secure 100 cosponsors before this bill will be considered by the House Energy and Commerce Committee. Currently H. Res. 1433 has 59 cosponsors and we need your help to secure 41 more supporters. The list of cosponsors has more than doubled since the last Myeloma Advocacy Update. Your letters and e-mails are working, please keep them coming into your House members!Please visit the Advocacy Action Center at www.advocacy.myeloma.org to write your U.S. Representative and urge him or her to support Blood Cancer Awareness Month by co-sponsoring H. Res. 1433.

  • Are You a Member of the Myeloma Action Network?
    Want to stay informed about IMF’s advocacy activities? All you need to do is to join the Myeloma Action Network at www.advocacy.myeloma.org and you will automatically receive e-mail advocacy alerts from the IMF.  To learn more about health care reform and other important advocacy issues that impact the myeloma community, please visit the IMF advocacy page at www.myeloma.org.

WHAT'S NEW IN RESEARCH
Members of Scientific Advisory Board*, Members of International Myeloma Working Group†

CLINICAL TRIALS

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute (NCI). To see the summaries of newsworthy clinical trial results, visit the National Cancer Institute Multiple Myeloma Trial Results.


UPCOMING SEMINARS AND CLINICAL CONFERENCES
Note: Some of the international seminar cities have been set, but the venues and agendas are still in the works. Check back often if you are interested in attending, as we post the sites and speakers as they are confirmed.


UPCOMING MEMBER EVENTS

ONGOING MEMBER EVENTS
  • Kindness for a Cure: The Denise Gaeta Bencel Fund
    Let's make the world a bit nicer and help find a cure - a win-win! Spend one month - 30 days - spreading kindness to others. Pay yourself one dollar per day - less than the cost of a cup of coffee. At the end of the thirty days donate the money to the International Myeloma Foundation. Tell us about your personal experiences during this month. Click here to visit the event website for more information and to make your donation.
  • Veterans Against Myeloma
    IMFer Jerry Walton encourages all vets to join Veterans Against Myeloma. "Many MM patients are veterans. Our combined efforts to continue our service through the Veterans Against Myeloma cause can help research and help us win the battle by finding a cure. Hopefully one day together we can say 'Mission Accomplished!'"
  • VISIONS Notecards by Jeff; A Cure for Karl
    Jeff Hanson is a 15 year-old, visually impaired artist from Overland Park, Kansas. IMFer Karl Vollstedt and Jeff are great friends who use their time and talents to benefit others. Jeff created these note cards as a gift to Karl and to myeloma research.

HELP THE IMF
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE.

How to Host an Afternoon Tea
An elegant and easy way to build awareness about myeloma and raise money in your community, and the IMF will help.

Kids Fight Back!
Kids, need to earn a Citizenship merit badge or fulfill community service requirements? Here's a great idea about how to do both while you fight back against myeloma. We'll help you put on the best fundraiser ever!
Shop for the IMF
Shop with the leading merchants on the Internet, receive the same price as anyone else visiting their sites, and support the IMF at the same time!
See more exciting ways to help the IMF continue its important work in education, support and research.

ITEMS OF INTEREST


Have you downloaded your Myeloma Manager Personal Care Assistant

Another exciting first from the IMF!
Free software to help manage and understand your lab results, and more!


Help for Underinsured Myeloma Patients
Thanks to the advocacy of the IMF, the Chronic Disease Fund has received an infusion of money to help them meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.

NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.

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Official Newsletter of the IMF!
Many thanks to the supporters of The Myeloma Minute:
Celgene Corporation, Millennium: The Takeda Oncology Company, and The Binding Site
Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2010. International Myeloma Foundation. All Rights Reserved.

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