We are international

Myeloma Minute
February 5, 2009
Welcome to the IMF's Myeloma Minute
News about myeloma treatment, research, support and the myeloma community
from the International Myeloma Foundation.


Green Tea Blocks Benefits Of Cancer Drug
Researchers at the University of Southern California thought that adding a component of green tea extract (GTE) called EGCG would enhance the anti-tumor effects of VELCADE®, but they found that the opposite was true. EGCG destroyed any anticancer activity of VELCADE in tumor-bearing mice.

The International Myeloma Foundation Praises UK REVLIMID® Proposal as Positive, Innovative Model for Reimbursement
Manufacturer Will Cover Long-Term Costs of the Drug. Plan Works for All Parties: Patients, the Company and Government Reimbursement Agencies.

Videos from ASH 2008 on the Web
The IMF is pleased to provide you with a broad sampling of myeloma presentations and posters from the 2008 annual meeting of the American Society of Hematology in San Francisco, California. They report significant progress in myeloma research. IMF Scientific Advisor, Dr. Morie Gertz said, "This is the most exciting ASH meeting that I've been to, and I've been a member for over 25 years."

White House may permit cheaper medicines from Canada
The Obama administration is looking to overturn a policy on prescription-drug imports to allow more affordable Canadian medicines into the U.S. The change would provide patients, particularly older people, with cheaper options, but concerns remain about counterfeit medications tied to stores with access to foreign pharmaceuticals. (Text and video from XETV-TV San Diego)

Study of Hair Dye Finds No Association of Myeloma Risk in Women
Research showed that there was no association among women who used hair dyes and multiple myeloma.  Additional analyses examining dye color, duration and frequency of use and whether or not hair dyes were used prior to 1980, when known carcinogens were removed from hair dyes, also showed no association with multiple myeloma. (from University at Albany)

2-mercaptobenzothiazole, or MBT, a chemical, commonly used in the manufacture of rubber products, may cause cancer in workers regularly exposed to it.
Workers exposed to MBT were significantly more likely to be diagnosed with multiple myeloma than workers who had never been exposed to the chemical. (from The Engineer Online)

Myeloma Manager Webinar
This web-based seminar ("Webinar") intoduced the Myeloma Manager™ Personal Care Assistant™, an exciting new software tool distributed without charge by the IMF to help manage laboratory results, tracking and graphing trends over time.  It also helps organize other information relevant to myeloma patient care, including appointments, to-do's and contacts. If you missed the Webinar, click on the link to hear the audio and view the slides.

International Myeloma Working Group Endorses Freelite Test
Binding Site, a U.K.-based diagnostics firm, has won the support of the International Myeloma Working Group for the use of its Freelite blood test in people with multiple myeloma. The organization next month will publish new clinical guidelines, recommending Freelite as a "first line" product that detects and monitors the bone marrow cancer. (from the UK Birmingham Post)

VII Annual Robert A. Kyle Lifetime Achievement Award Presentation - May 15, 2009
The International Myeloma Foundation (IMF) is proud to award its prestigious Robert A. Kyle Lifetime Achievement Award for 2009 to Prof. Jean-Luc Harousseau, Professor of Hematology and Director of the Cancer Center Rene Gauducheau at Nantes France.

  • Videos from ASH 2008 on the Web
    They report significant progress in all aspects of myeloma research—genetic studies, high-risk myeloma, new agents and more.


If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute (NCI). To see the summaries of newsworthy clinical trial results, visit the National Cancer Institute Multiple Myeloma Trial Results.

Note: Some of the international seminar cities have been set, but the venues and agendas are still in the works. Check back often if you are interested in attending, as we post the sites and speakers as they are confirmed.

  • Marathon for Mom
    April 20, 2009
    Steve Hoppe is running in the 2009 Boston Marathon to raise money for myeloma research.

  • Veterans Against Myeloma
    IMFer Jerry Walton encourages all vets to join Veterans Against Myeloma. "Many MM patients are veterans. Our combined efforts to continue our service through the Veterans Against Myeloma cause can help research and help us win the battle by finding a cure. Hopefully one day together we can say 'Mission Accomplished!'"
  • VISIONS Notecards by Jeff; A Cure for Karl
    Jeff Hanson is a 15 year-old, visually impaired artist from Overland Park, Kansas. IMFer Karl Vollstedt and Jeff are great friends who use their time and talents to benefit others. Jeff created these note cards as a gift to Karl and to myeloma research.
  • 2009 Generous HeART Calendar
    Fifteen-year-old Jeffrey Owen Hanson is legally blind. Despite this, he creates explosively brilliant art owned by famous art collectors like Elton John. Jeff is determined to help find a cure for myeloma because his friend, IMFer Karl Vollstedt, lives with it. So, when Jeff selected 12 charities to honor as months in his 2009 "Generous HeART" calendar, he immediately named IMF the month of June.
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE.
Host an Afternoon Tea

How to Host an Afternoon Tea

Here’s an elegant and easy way to build awareness about myeloma and raise money in your community, and the IMF will help.

AmEx Use Your American Express Membership Rewards to support IMF
Are you an American Express ® Cardmember? Do you collect Membership Rewards points? If so, you will be interested to learn that you can redeem your Membership Rewards points to help the IMF.
Shop for the IMF Shop for the IMF
Shop with the leading merchants on the Internet, receive the same price as anyone else visiting their sites, and support the IMF at the same time!
IMF Travel Advantage 12-Day Cruise in the Mediterranean for $499? AND you help the IMF?
No matter where you want to go, IMF Travel Advantage has a package for you.

Read the latest issue of the IMF Travel Advantage newsletter for this and other fabulous trips. Great prices and you are helping the IMF with every vacation.
See more exciting ways to help the IMF continue its important work in education, support and research.

Myeloma Manager
Have you downloaded your Myeloma Manager™ Personal Care Assistant™

Another exciting first from the IMF!
Free software to help manage and understand your lab results, and more!

Help for Underinsured Myeloma Patients
Thanks to the advocacy of the IMF, the Chronic Disease Fund has received an infusion of money to help them meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.

A tool to help understand the current status of the disease and the questions you should be asking.
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Official Newsletter of the IMF!
Many thanks to the supporters of The Myeloma Minute:
Celgene Corporation, Millennium: The Takeda Oncology Company and The Binding Site.
Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2009. International Myeloma Foundation. All Rights Reserved.

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