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Myeloma Minute
January 26, 2009
01.26.09
Welcome to the IMF's Myeloma Minute
News about myeloma treatment, research, support and the myeloma community
from the International Myeloma Foundation.

WHAT'S NEWS

Tandem Versus Single Autologous Hematopoietic Cell Transplantation (AHCT) for the Treatment of Multiple Myeloma: A Systematic Review and Meta-analysis
The authors performed a systematic review and meta-analysis to synthesize the existing evidence related to the effectiveness of tandem vs single AHCT in patients with MM. Their conclusion: Tandem AHCT multiple myeloma does not improve survival over that provided by single AHCT. (from Journal of the National Cancer Institute)

Videos from ASH 2008 on the Web
The IMF is pleased to provide you with a broad sampling of myeloma presentations and posters from the 2008 annual meeting of the American Society of Hematology in San Francisco, California. They report significant progress in myeloma research. IMF Scientific Advisor, Dr. Morie Gertz said, "This is the most exciting ASH meeting that I've been to, and I've been a member for over 25 years."

Myeloma Manager Webinar
This web-based seminar ("Webinar") will introduce the Myeloma Manager™ Personal Care Assistant™, an exciting new software tool distributed without charge by the IMF. This tool can help manage laboratory results, tracking and graphing trends over time.  It also helps organize other information relevant to myeloma patient care, including appointments, to-do's and contacts.  All you need to attend the Webinar is a web browser and an internet connection.  Please note that at this time, this software will run on PCs (XP and Vista) but not on Macs. We are working on a Mac solution. You can download the Myeloma Manager at http://manager.myeloma.org.

Research shows cell's inactive state is critical for effectiveness of cancer treatment
A new study sheds light on a little understood biological process called quiescence, which enables blood-forming stem cells to exist in a dormant or inactive state in which they are not growing or dividing. According to the study's findings, researchers identified the genetic pathway used to maintain a cell's quiescence, a state that allows bone marrow cells to escape the lethal effects of standard cancer treatments. (from Memorial Sloan Kettering)


VISIONS Notecards by Jeff; A Cure for Karl
Jeff Hanson is a 15 year-old, visually impaired artist from Overland Park, Kansas. IMFer Karl Vollstedt and Jeff are great friends who use their time and talents to benefit others. Jeff created these note cards as a gift to Karl and to myeloma research.

The Seventh Annual Cancer Survivorship Series: Living With, Through & Beyond Cancer
This is a free, three-part CancerCare telephone education workshop program, made possible by support from National Cancer Institute and Lance Armstrong Foundation, offers cancer survivors, their families, friends and health care professionals practical information to help them cope with concerns and issues that arise after treatment ends. Part I, which takes place on April 14th is entitled, Managing the Stress of Survivorship. Part II, The Importance of Nutrition and Physical Activity, will take place on May 19th.  And Part III, Survivors Too: Family, Friends and Loved Ones: Managing the Fatigue of Caregiving, will take place on June 23rd.  All of the of the workshops take place from 1:30 to 2:30 pm Eastern Time.

Living With Cancer as "A New Normal"; A Journey with Cancer through the Eyes of a Caregiver
This guide to creating a "new normal" was developed by Dianna Mitchell Marston and her family to meet their own needs when her husband, Nathan, was diagnosed with myeloma. A portion of the sale of each book goes to the IMF to support its programs.

WHAT'S NEW IN RESEARCH
ARTICLES
(IMF Scientific Advisors are marked with an *)

CLINICAL TRIALS

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute (NCI). To see the summaries of newsworthy clinical trial results, visit the National Cancer Institute Multiple Myeloma Trial Results.


UPCOMING SEMINARS AND CLINICAL CONFERENCES
Note: Some of the international seminar cities have been set, but the venues and agendas are still in the works. Check back often if you are interested in attending, as we post the sites and speakers as they are confirmed.


UPCOMING EVENTS
  • Marathon for Mom
    April 20, 2009
    Steve Hoppe is running in the 2009 Boston Marathon to raise money for myeloma research.

ONGOING EVENTS
  • Veterans Against Myeloma
    IMFer Jerry Walton encourages all vets to join Veterans Against Myeloma. "Many MM patients are veterans. Our combined efforts to continue our service through the Veterans Against Myeloma cause can help research and help us win the battle by finding a cure. Hopefully one day together we can say 'Mission Accomplished!'"
  • 2009 Generous HeART Calendar
    Fifteen-year-old Jeffrey Owen Hanson is legally blind. Despite this, he creates explosively brilliant art owned by famous art collectors like Elton John. Jeff is determined to help find a cure for myeloma because his friend, IMFer Karl Vollstedt, lives with it. So, when Jeff selected 12 charities to honor as months in his 2009 "Generous HeART" calendar, he immediately named IMF the month of June.
  • Mail for the Cure
    A very simple but very powerful concept by which YOU can make a big difference.
  • Cents for Cells
    Beth Morgan is helping the IMF by raising a penny for each stem cell that will be collected for her BMT. She has dedicated Cents for Cells to the memory of Chris Hollyer.
  • Clyde's Ride for the Cure
    Clyde is riding his bicycle to support the work of the IMF. "I say, 'until there is a cure I ride for the IMF.'"
  • Debbie Exner's Walk for Myeloma
    Debbie walked the PF Chang Half Marathon in Phoenix on January 13, 2008 to raise money for the IMF in honor of her mother. You can still donate to her cause.
HELP THE IMF
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. And you can order beautiful tribute cards to send out to your friends and family every time you make a donation in their honor to the IMF.We sincerely thank you for your support.
Host an Afternoon Tea


How to Host an Afternoon Tea

Here’s an elegant and easy way to build awareness about myeloma and raise money in your community, and the IMF will help.

AmEx Use Your American Express Membership Rewards to support IMF
Are you an American Express ® Cardmember? Do you collect Membership Rewards points? If so, you will be interested to learn that you can redeem your Membership Rewards points to help the IMF.
Shop for the IMF Shop for the IMF
Shop with the leading merchants on the Internet, receive the same price as anyone else visiting their sites, and support the IMF at the same time!
IMF Travel Advantage 12-Day Cruise in the Mediterranean for $499? AND you help the IMF?
No matter where you want to go, IMF Travel Advantage has a package for you.

Read the latest issue of the IMF Travel Advantage newsletter for this and other fabulous trips. Great prices and you are helping the IMF with every vacation.
Caregiver Daily Journal

Caregiver Daily Journal
If you know a caregiver, the IMF's own Sylvia Baca has written a journal to help document the daily care they give their loved one. It's $25, with all profits going to support the programs of the IMF..

Sarah Klein's Bracelets

Sterling Bracelets by Sarah Klein
Sarah Klein's father, Benson, was diagnosed with myeloma in 1998, and has been in remission for 8 years.
Sarah wants to give back to the IMF in her own creative way and has designed two special bracelets made up of semi-precious healing stones. A portion of the proceeds from the sale of these bracelets is being donated to the IMF.

Multiple Colors Keychains
Multiple Colors for Multiple Myeloma Keychains and Earrings
Bring rainbows of happiness, color and light into your loved ones' lives with an IMF keychain or Swarovski crystal earrings.

Arbonne Cosmetics for the IMF
Arbonne Cosmetics
Jo Marie Gray is donating her new-client commissions from the sale of Arbonne Cosmetics to the Chris Hollyer Research Fund at the IMF.
IMF Logo Items
IMF Logo Items
Let the world know that you support the groundbreaking research and innovative patient support programs of the IMF with a hat or shirt or bracelets!
See more exciting ways to help the IMF continue its important work in education, support and research.
ITEMS OF INTEREST

Myeloma Manager
Have you downloaded your Myeloma Manager™ Personal Care Assistant™

Another exciting first from the IMF!
Free software to help manage and understand your lab results, and more!


Help for Underinsured Myeloma Patients
Thanks to the advocacy of the IMF, the Chronic Disease Fund has received an infusion of money to help them meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.


Caregiver Information from askMedicare
This is the US Government's site for caretakers of all kinds, and includes info on navigating Medicare, billing, finding local resourses, and evaluating care options.

Mensajero del Mieloma
La IMF quiere enviar información sobre el mieloma en español a todos los pacientes, familiares e interesados. Para suscribirse al correo electró nico (enviaremos cuatro ejemplares al año), por favor, env íe su dirección a mensajero@myeloma.org. ¡ Gracias!

BANK ON A CURE ®

NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.
Tell A Friend...
The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.
Sign up for a FREE Subscription to Myeloma Today, the
Official Newsletter of the IMF!

Many thanks to the supporters of The Myeloma Minute:
Celgene Corporation, Millennium Pharmaceuticals and The Binding Site.
Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2009. International Myeloma Foundation. All Rights Reserved.

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