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A Brief History of the IMF
07.18.01

In 1989 three people sat ina coffee shop in London talking about what they could do to hel pmake a difference for myeloma patients. Those three people were Brian Novis, Dr. Brian Durie and myself, Susie Novis. Little did we realize at the time how that conversation would not only change our own lives but the lives of thousands and thousands of people around the world. The dream of starting the IMF soon became a reality and in October 1990 Brian Novis, working out of a tiny basement office in our home, officially opened the IMF for business. And as they say, the rest is history. I'd like to invite you to take a walk with me down memory lane to see whatwe've accomplished over the past eleven years. The progress we've made is because people just like you, have reached out to lend a helping hand. We couldn't have accomplished what we have without the support of people from all walks of life and from all over the world - patients, family members, friends, doctors,researchers, corporations and foundations, people who in some way have been touched by myeloma. But before we start our walk, on behalf of the IMF and the members we serve, I would like to express our sincere thanks and gratitude those who have helped make miracles happen.

  • 1990 - IMF Founded
  • 1991 - Toll-free Hotline - 800/ 452-CURE - begins service
  • 1992 - 1st Clinical Conference for Myeloma - Phoenix, AZ
    • 1st Issue of Myeloma Today is published
    • 1st Gala Benefit is held to raise awareness and funding for research - Los Angeles, CA
  • 1993 - 1st patient information package is sent out
    • Patient-to-Patient Directory is established putting patients in contact with others
    • 1st Patient & Family Seminar is held - Los Angeles, CA
    • 2nd IMFClinical Conference is held - Singapore
    • Myeloma Scientific Think Tank held - Singapore
    • 1st Annual Corporate Cup Challenge Golf Tournament is held
    • IMF Debuts with booth at ASH
  • 1994 - 2nd Gala Benefit - Philadelphia, PA
    • 1st Research Grant is awarded
    • Patient's Handbook is published in Myeloma Today
  • 1995 - IMF organized the Vth International Myeloma Workshop - La Baule, France
    • Multi-drug resistance Scientific roundtable held - La Baule, France
    • IMF web site is launced
    • 1st International Patient & Family Seminar held in London, England
  • 1996 - IMF UK begins operation
    • Sharon Rudolph & Mike Katz presented with the 1st Francesca Thompson Outstanding Service Awards
  • 1997 - IMF Japan begins operation
    • 1st IMF Patient & Family Seminar held in Sydney, Australia
    • 3rd IMF Clinical Conference held - Sydney, Australia
    • 1st IMF Patient & Family Seminar held in Germany
  • 1998 - 3rd Gala Benefit held - Universal City, CA
    • IMF participates in "The March" - Washington, DC
    • Board Member Mike Katz appointed as Chair of the DCLG (Director's Consumer Liaison Group)
    • IMF joins National Coalition for Cancer Reserach (NCCR)
  • 1999 - Virus Scientific Workshop held - Stockholm, Sweden
    • 1st IMF Patient & Family Seminar held in Zurich, Switzerland
    • 2nd IMF Patient & Family Seminar held in Sydney, Australia
    • 4rd Clinical Conference held - Manchester, UK
    • IMF UK Awards Its 1st two grants
    • Marcy & Eliot Bernstein are joined by their CBS "family" and the IMF at a fundraiser in Connecticut to support myeloma research
    • Ted Vasil Scholarship Award is established
    • Board Member Mike Katz appointed to the Advisory Committee to the Director of the NCI
    • IMF & MMRF Co-Sponsor ASH Symposium
  • 2000 - 1st IMF Patient & Family Seminar held in Tokyo, Japan
    • 5th Clinical Conference held- Tokyo, Japan
    • 1st IMF Scientific Advisors Retreat - St. John USVI
    • 1st IMF Patient & Family Seminar held in Vienna, Austria
    • 6th IMF Clinical Conference - WAM (Waldenstroms, Amyloid & Myeloma) - Phoenix, AZ
    • IMF joins OVAC (One Voice Against Cancer)
    • 1st Annual Support Group Leader Retreat held
    • IMF joins the CLC ( Cancer Leadership Council)
    • IIMF Board Member Charles Briscoe initiates reserach partnership between the IMFand Emory University
    • 10th Anniversary Gala - Ribbon of Hope Making a World of Difference - New York, NY
    • IMF participates at the PRG Roundtable (Progress Review Group)
  • 2001 - 7th IMF Clinical Conference held in St. Petersburg, Russia
    • IMF sponsors Prognostic Factor Meeting - Banff, Canada
    • IMF sponsors "What Causes Myeloma Workshop - Banff, Canada
    • 1st IMF Patient & Family Seminar held in Istanbul, Turkey
    • New website launched


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