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WHAT'S NEWS

Analysis: Part D cancer coverage concerns
Most cancer drugs are covered by most Part D plans, according to a new study. But the survey of cancer drug coverage under Part D also reveals that while the Medicare Part D prescription drug benefit is helping seniors afford drugs, it is also still hampered by its limitations. (from United Press International)

NIH announces cancer gene sequencing project
The National Institutes of Health says brain tumors, ovarian cancer and lung cancer will be the first targets of an effort to sequence genetic changes that lead to cancer. The agency says it hopes the Cancer Genome Atlas project will lead to early cancer detection and new targets for the development of specific therapies. (from the National Cancer Institute)

An American in Paris....
Actually, not only an American. Surrounding the fourth annual IMF Patient and Family Seminar in Paris France, a microcosm of the European Union joined in order to help promote advocacy for Revlimid ® approval in Europe.

Don't Sugarcoat It, Doc
A new study finds that when physicians try to soften news of a potential health problem, patients tend to assume the worst_perhaps to their disadvantage. (from Newsweek)

UAMS Study Finds Genetic Subtypes of Myeloma, Hope for Targeted Treatments
A genetic analysis of more than 400 patients with myeloma identified seven subtypes of the disease that had a bearing on a patient_s prognosis and offered the potential for targeted treatments. (from PR Web)

Novel Anti-Coagulant More Stable Than Heparin in Treating Deep Vein Thrombosis
A new oral anticoagulant used to treat deep vein thrombosis (DVT) could offer patients a safer and more convenient alternative to low molecular-weight heparin and/or warfarin. (from Doctor's Guide)

Splish Splash for the IMF
If you live in the Phoenix, AZ area, and are planning on attending the Maricopa Home & Garden Expo this weekend, September 22-24, IMFers Linda and Eugene Carrillo are exhibiting in Booth #572 in the Garden Pavilion and will be raising money and public awareness for the IMF by holding opportunity drawings with items from their store "Southwest Garden Arts" www.arizonafountains.com. Stop by and say hello, and who knows, you might get lucky and end up with a beautiful fountain sculpture.

Osteonecrosis of the Jaw Has Link to Bisphosphonate Treatment: Presented at AAO-HNSF
"Certainly, osteonecrosis of the jaw can occur with the use of bone-hardening agents like bisphosphonates," researchers said during a presentation at the annual meeting of the American Academy of Otolaryngology-Head and Neck Surgery Foundation (AAO-HNSF). "We are raising the question that it may not simply be bone-hardening agents that put you at risk of developing it. It may be that being immunocompromised or having an oral infection may put you at risk." (from Doctor's Guide)

IMF Hotline to be represented on Team Continuum at NYC Marathon on November 5th
Time is running out (no pun intended) for you, or someone you know who may be more likely to run a marathon, to register for the granddaddy of all marathons. If you have ever called the IMF Hotline, you may have talked to Paul Hewitt, who is taking on the challenge. If you would like to support Paul as he runs for the IMF, click here.

Let's see...Will it be a Private Island Paradise or Puppy Kisses?
Bid on a trip to Cayo Espanto, an exclusive resort near Belize, or this little cutie, a Coton De Tulear puppy, at the IMF's 16th Anniversary Gala on October 21 in beautiful Beverly Hills. To learn more about the live auctions, and to purchase your tickets for the Gala, please click here.


SUPPORT NEWS
  • NEW SUPPORT GROUP - ANN ARBOR, MICHIGAN
    October 3, 2006
    The meeting will be held at:

    St. Joseph Hospital, 5301 Huron River Drive,Ypsilanti, MI
    Classroom 1 (In the education center, enter through the 5305 building)
    Time: 7:30 PM to 9:00 PM

    NOTE: This group is hoping to receive authorization to meet at the U of M Comprehensive Cancer Center in Ann Arbor. Please contact them at annarbormyelomagroup@yahoo.com regarding the Ypsilanti meeting on Oct. 3 or possible meetings in Ann Arbor.


WHAT'S NEW IN RESEARCH

  • CLINICAL TRIALS

  • NEW TO THE MATRIX

    • Phase: pre-clinical
      Drug name: trichostatin A (TSA)
      Sponsor: University of Maryland
      Indication: histone deacetylase inhibitor that sensitizes TRAIL-resistant myeloma cells to remove the obstacles to programmed cell death.

    • Phase: Pre-clinical
      Name: ACE-011
      Sponsor: Acceleron Pharma
      Indication: protein based on activin receptor IIA that works by both inhibiting bone loss and stimulating bone formation; currently in Phase I trials for healthy post-menopausal women.

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


UPCOMING SEMINARS AND CLINICAL CONFERENCES

Seminario para Pacientes & Familiares
September 23, 2006
Pamplona, Spain
Seminario per i pazienti e le famiglie
September 29, 2006
Bologna, Italy
Seminário para Pacientes & Familiares IMF LA
September 30, 2006
Caracas, Venezuela

Myeloma Canada Patient, Family & Healthcare Professionals Seminar
October 28, 2006
Montreal, Canada

2nd Southwest Symposium on Multiple Myeloma
November 4, 2006
Tempe, Arizona


UPCOMING EVENTS

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community but don't know where to start. The guide contains the A - Z of fundraising ideas--like running in a local marathon and asking for donations per mile for myeloma; having a holiday party, where you charge a cover and hold a raffle; asking your local supermarket to donate wine and cheese, then selling tickets and having a cocktail party--as well as tips and guidelines for success. Check out the FUNdraisers below and show your support by donating to their effort online:

Cents for Cells
Beth Morgan is about to undergo a stem cell transplant and she is asking family and friends to help her help the IMF by raising a penny for each stem cell that will be collected. She has dedicated Cents for Cells to the memory of Chris Hollyer.
The Stratford Runner
Sheldon is running 1000 kilometers across Canada to raise money to support myeloma research.

John's Run for Myeloma
October 15, 2006
Columbus, Ohio
2nd Annual Walk for Myeloma
October 15, 2006

Miami, Florida
Money for Miracles
The first annual fundraiser from the Rhode Island MM Support Group
October 27, 2006
Cranston, Rhode Island
Mail for the Cure
People often call the IMF and ask "What can I do to help?" The IMF is delighted to answer "MAIL FOR THE CURE," a simple but very powerful concept by which YOU can make a big difference. All over the country, people just like you mail letters to their friends and relatives asking for their support of myeloma research and other important IMF programs which benefit the myeloma community. It's easy and it works. If you have any questions or would like envelopes and/or a letter template, please contact Suzanne Battaglia at SBattaglia@myeloma.org or at (800) 452-CURE (2873).

HELPING THE IMF

If you use the special IMF links to shop at your favorite internet retailers (e-tailers) like Amazon.com, they will donate a portion of your purchase to the IMF. You pay no more than you would normally for everything from clothing to computers to cruises. Whatever you buy, the programs, publications and research supported by the IMF will benefit. Visit our Shop for the IMF page at http://shop.myeloma.org to see the complete list of popular etailers who will donate a portion of your purchase to the IMF. Giving has never been more painless!

Calling All Kids!
If you are ready to fight back against myeloma, then you need Kids Fight Back, a fundraising program especially for kids.
Tribute Cards
New at the IMF! Order these beautiful tribute cards to send out to your friends and family, every time you make a donation in their honor to the IMF.

Win a Trip for Two to Barcelona, Spain!
You could support the IMF's Myeloma Research and win a trip to Spain.
Fly American Airlines and stay at the Hotel Arts Ritz-Carlton in Barcelona for 7 days and 6 nights, including daily breakfast for two. Read on....

Turn Your Vacations Into Donations
Book your personal and business travel on our new travel website, myelomatravel.com! Every time you do, the IMF will receive a portion of the travel commissions. You get the same low rates offered by other travel websites while helping to raise funds for the IMF's education and research programs. It's that simple!
Read for Research!
Book clubs all over the US are asking their members to use the special IMF links to Amazon (amazon.myeloma.org) and Barnes and Noble (barnesandnoble.myeloma.org) to purchase their book selections each month. That way, members can get the benefit of the same everyday low prices on these web sites AND every purchase results in a donation that supports the programs of the IMF. If your book club hasn't been buying books using the IMF affiliate program links, what are you waiting for? Make your purchases count. Use the links!
Recipes for Research
Marilyn Alexander, the Philadelphia support group, and the IMF community have come together to create one terrific cookbook and handy kitchen reference. From Autumn Apple Cake to Veal Stimbarada, there is something here for every taste. And if you aren't in the mood to cook tonight, there is an entire section with tips on everything from setting the table to stain remover. At only $15, it will make a great holiday gift.
Ribbon of Hope Ornament
Whether you hang one on your holiday tree, your wall, or any other creative place you can think of, the IMF's 4-inch holiday ornament will bring a message of hope to anyone you give it to. We have a limited number available at only $10 each, so why not order one today?
Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

ITEMS OF INTEREST

Help for Underinsured Myeloma Patients
Help is now available through the Chronic Disease Fund to meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.

'International uniform response criteria for multiple myeloma' published in the journal Leukemia
The article is the result of the work of the International Myeloma Working Group.

Mayo Clinic Consensus Statement for the Use of Bisphosphonates in Multiple Myeloma
A multidisciplinary panel consisting of hematologists, dental specialists, and nurses specializing in the treatment of myeloma reviewed available data concerning the use of bisphosphonates. Guidelines for the use of bisphosphonates in MM were developed. This link is to the full article.

The IMF Joins the Combined Federal Campaign
The IMF is thrilled to announce that it has been selected to join the Combined Federal Campaign (CFC). Each year, the CFC's workplace campaigns help raise millions of dollars. Pledges made by Federal civilian, postal and military donors during the campaign season (September 1st to December 15th) support eligible non-profit organizations that provide health and human service benefits throughout the world--now including the IMF! So, if you are a Federal employee, please participate in the CFC campaign, September 1st through December 15th, and designate the IMF as your beneficiary by using our organization code 1178.


National Oncologic PET Registry Opens
The National Oncologic PET Registry (NOPR) opened May 8th to ensure access to Medicare reimbursement for certain types of positron emission tomography (PET) scans. You may recall Dr. Durie's statement in February of last year: "[The IMF has] worked hard for reimbursement because we believe PET scanning is an important tool for diagnostic evaluation, staging, and monitoring for myeloma. This is a very encouraging decision by Medicare, and an important step forward for myeloma patients."

Mensajero del Mieloma
La IMF quiere enviar información sobre el mieloma en español a todos los pacientes, familiares e interesados. Para suscribirse al correo electrónico (enviaremos diez números al año), por favor, envíe su dirección a mensajero@myeloma.org. ¡Gracias!



BANK ON A CURE®

International Staging System

NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.

HealthTalk's Multiple Myeloma Education Network

Walgreens offers help in making Medicare prescription insurance plan choice.
You fill out a form, take it to your nearest Walgreens, and they give you a free report that tells you all the major plans available in your area, including their web addresses and phone numbers; how many of your current prescriptions each plan covers; each plan's monthly premium and deductible; the co-pays for each class of prescription and more.