We are international
Donate
TEXT SIZE   


Myeloma Minute - September 13, 2006
09.13.06

WHAT'S NEWS

New Multicenter Balloon Kyphoplasty Study Shows Long-Term Benefits for Patients with Spinal Fractures
The study was conducted at 19 U.S. centers and evaluated 155 elderly patients with 214 spinal fractures caused by primary osteoporosis, secondary osteoporosis, or multiple myeloma. Multiple outcomes relating to back pain, quality of life, patient satisfaction and degree of difficulty performing certain daily activities were evaluated out to two years following balloon kyphoplasty. (from Kyphon)

VA Launches Multiple Myeloma Project
In May 2005, Dr. Nikhil Munshi and an Agent Orange related myeloma patient met with VA Secretary R. James Nicholson to propose that the VA use the issue of multiple myeloma among veterans as a pilot program to educate VA patients and health care providers on the disease, emerging treatments, and clinical trial opportunities and establish a collaborative research program within the VA. Secretary Nicholson endorsed the idea and has asked VA officials to implement this program. (from the Agent Orange Review)

Studies confirm gene that suppresses tumor cell growth also plays key role in aging.
Researchers from the medical schools at the University of North Carolina at Chapel Hill, University of Michigan and Harvard University found increasing expression of the gene p16INK4a in older cells; these aging cells worked poorly compared to young cells and remembered their "age" even when transferred from old mice to young mice. They observed similar results in pancreatic islet cells and brain and blood stem cells. (from Newswise)

Multiple Strategies for Treating Myeloma: Case Discussions
Register now for this FREE case-based CME dinner activity for physicians coming to Providence, Rhode Island on Wednesday, October 18, 2006

An advanced genetic diagnostic method for multiple myeloma
A researcher at the University of Navarra has proposed a new genetic diagnostic method for myeloma that has discovered associations between specific chromosomal changes, and thus the description of a new classification of the disease. (from Basque Research)

Cancer Death Rates Edge Down But New Cases Stay the Same
Americans' risk of dying from malignancies continues to edge down, largely because of smoking cessation a generation ago, but the rate of new cases remains unchanged, according to a report from the nation's leading cancer organizations. Myeloma is included in the declining death rates for both both sexes. Latinos had lower incidence rates for most cancers, but higher rates for myeloma than did non-Latino whites. (from Medpage Today)

ZIOPHARM Presents at European Society of Hematology Meeting; Updates ZIO-101 Clinical Development Strategy
ZIO-101 phase I studies continue in both solid tumor and blood cancers. Phase I/II and phase II studies, including the exploration of alternative dosage regimens, have been or will be initiated in patients with advanced myeloma. (from Genetic Engineering News)

Passionate Research and Visionary Leadership will lead us to the cure for myeloma.
Celebrate both at the IMF's 16th Annual Gala on Saturday October 21st, as we honor the Bank On A Cure® research team and our IMF Visionary Award recipient, Jerome Zeldis. To learn more about the honorees, and to purchase your tickets for the Gala, please click here.

Mail for the Cure
People often call the IMF and ask "What can I do to help?" The IMF is delighted to answer "MAIL FOR THE CURE," a simple but very powerful concept by which YOU can make a big difference. All over the country, people just like you mail letters to their friends and relatives asking for their support of myeloma research and other important IMF programs which benefit the myeloma community. It's easy and it works. If you have any questions or would like envelopes and/or a letter template, please contact Suzanne Battaglia at SBattaglia@myeloma.org or at (800) 452-CURE (2873).


WHAT'S NEW IN RESEARCH

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


UPCOMING SEMINARS AND CLINICAL CONFERENCES

Seminario para Pacientes & Familiares
September 23, 2006
Pamplona, Spain
Seminario per i pazienti e le famiglie
September 29, 2006
Bologna, Italy
Seminário para Pacientes & Familiares IMF LA
September 30, 2006
Caracas, Venezuela

Myeloma Canada Patient, Family & Healthcare Professionals Seminar
October 28, 2006
Montreal, Canada

2nd Southwest Symposium on Multiple Myeloma
November 4, 2006
Tempe, Arizona


UPCOMING EVENTS

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community but don't know where to start. The guide contains the A - Z of fundraising ideas--like running in a local marathon and asking for donations per mile for myeloma; having a holiday party, where you charge a cover and hold a raffle; asking your local supermarket to donate wine and cheese, then selling tickets and having a cocktail party--as well as tips and guidelines for success. Check out the FUNdraisers below and show your support by donating to their effort online:

Cents for Cells
Beth Morgan is about to undergo a stem cell transplant and she is asking family and friends to help her help the IMF by raising a penny for each stem cell that will be collected. You do the math....
The Stratford Runner
Sheldon is running 1000 kilometers across Canada to raise money to support myeloma research.

John's Run for Myeloma
October 15, 2006
Columbus, Ohio
2nd Annual Walk for Myeloma
October 15, 2006

Miami, Florida
Money for Miracles
The first annual fundraiser from the Rhode Island MM Support Group
October 27, 2006
Cranston, Rhode Island

HELPING THE IMF

If you use the special IMF links to shop at your favorite internet retailers (e-tailers) like Amazon.com, they will donate a portion of your purchase to the IMF. You pay no more than you would normally for everything from clothing to computers to cruises. Whatever you buy, the programs, publications and research supported by the IMF will benefit. Visit our Shop for the IMF page at http://shop.myeloma.org to see the complete list of popular etailers who will donate a portion of your purchase to the IMF. Giving has never been more painless!

Calling All Kids!
If you are ready to fight back against myeloma, then you need Kids Fight Back, a fundraising program especially for kids.
Tribute Cards
New at the IMF! Order these beautiful tribute cards to send out to your friends and family, every time you make a donation in their honor to the IMF.

Win a Trip for Two to Barcelona, Spain!
You could support the IMF's Myeloma Research and win a trip to Spain.
Fly American Airlines and stay at the Hotel Arts Ritz-Carlton in Barcelona for 7 days and 6 nights, including daily breakfast for two. Read on....

Turn Your Vacations Into Donations
Book your personal and business travel on our new travel website, myelomatravel.com! Every time you do, the IMF will receive a portion of the travel commissions. You get the same low rates offered by other travel websites while helping to raise funds for the IMF's education and research programs. It's that simple!
Read for Research!
Book clubs all over the US are asking their members to use the special IMF links to Amazon (amazon.myeloma.org) and Barnes and Noble (barnesandnoble.myeloma.org) to purchase their book selections each month. That way, members can get the benefit of the same everyday low prices on these web sites AND every purchase results in a donation that supports the programs of the IMF. If your book club hasn't been buying books using the IMF affiliate program links, what are you waiting for? Make your purchases count. Use the links!
Recipes for Research
Marilyn Alexander, the Philadelphia support group, and the IMF community have come together to create one terrific cookbook and handy kitchen reference. From Autumn Apple Cake to Veal Stimbarada, there is something here for every taste. And if you aren't in the mood to cook tonight, there is an entire section with tips on everything from setting the table to stain remover. At only $15, it will make a great holiday gift.
Ribbon of Hope Ornament
Whether you hang one on your holiday tree, your wall, or any other creative place you can think of, the IMF's 4-inch holiday ornament will bring a message of hope to anyone you give it to. We have a limited number available at only $10 each, so why not order one today?
Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

ITEMS OF INTEREST

Help for Underinsured Myeloma Patients
Help is now available through the Chronic Disease Fund to meet the needs of underinsured patients with multiple myeloma. The fund is designed to help patients with their insurance co-payments and/or their Medicare Part D 'doughnut holes.' Patients must qualify based on financial need. To speak with a representative of the Chronic Disease Fund, please call 877-968-7233, or contact them through their web site at cdfund.org.

'International uniform response criteria for multiple myeloma' published in the journal Leukemia
The article is the result of the work of the International Myeloma Working Group.

Mayo Clinic Consensus Statement for the Use of Bisphosphonates in Multiple Myeloma
A multidisciplinary panel consisting of hematologists, dental specialists, and nurses specializing in the treatment of myeloma reviewed available data concerning the use of bisphosphonates. Guidelines for the use of bisphosphonates in MM were developed. This link is to the full article.

The IMF Joins the Combined Federal Campaign
The IMF is thrilled to announce that it has been selected to join the Combined Federal Campaign (CFC). Each year, the CFC's workplace campaigns help raise millions of dollars. Pledges made by Federal civilian, postal and military donors during the campaign season (September 1st to December 15th) support eligible non-profit organizations that provide health and human service benefits throughout the world--now including the IMF! So, if you are a Federal employee, please participate in the CFC campaign, September 1st through December 15th, and designate the IMF as your beneficiary by using our organization code 1178.


National Oncologic PET Registry Opens
The National Oncologic PET Registry (NOPR) opened May 8th to ensure access to Medicare reimbursement for certain types of positron emission tomography (PET) scans. You may recall Dr. Durie's statement in February of last year: "[The IMF has] worked hard for reimbursement because we believe PET scanning is an important tool for diagnostic evaluation, staging, and monitoring for myeloma. This is a very encouraging decision by Medicare, and an important step forward for myeloma patients."

Mensajero del Mieloma
La IMF quiere enviar información sobre el mieloma en español a todos los pacientes, familiares e interesados. Para suscribirse al correo electrónico (enviaremos diez números al año), por favor, envíe su dirección a mensajero@myeloma.org. ¡Gracias!



BANK ON A CURE®

International Staging System

NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.

HealthTalk's Multiple Myeloma Education Network

Walgreens offers help in making Medicare prescription insurance plan choice.
You fill out a form, take it to your nearest Walgreens, and they give you a free report that tells you all the major plans available in your area, including their web addresses and phone numbers; how many of your current prescriptions each plan covers; each plan's monthly premium and deductible; the co-pays for each class of prescription and more.


 related articles