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WHAT'S NEWS
  • FUN!draiser Spotlight: Music Against Myeloma

    Music, cheese, cupcakes, and an intimate venue in the heart of Manhattan help to raise almost $10,000 for the IMF!



  • Mensajero del Mieloma
    La IMF quiere enviar información sobre el mieloma en español a todos los pacientes, familiares e interesados. Para suscribirse al correo electrónico (enviaremos diez números al año), por favor, envíe su dirección a mensajero@myeloma.org. Queremos lanzar el número inicial la primera semana de junio. ¡Gracias! (For those of us who do not speak Spanish but know someone who does, the IMF is going to publish an e-newsletter in Spanish 10 times a year. Tell your friends.)


  • Medicare in the News

    • Medicare officials add protections to drug plan
      The agency overseeing the Medicare drug benefit has issued new guidelines to insurers to protect enrollees from abrupt changes to their prescription plans. (from the San Diego Union Tribune)

    • Government sued over Medicare drug benefit
      The Bush administration was accused in a lawsuit Wednesday of failing to ensure that poor people were enrolled properly in Medicare's new prescription drug benefit. (from USA Today)

    • Savings under Part D 'substantial'
      Senior citizens are saving money through the new Medicare prescription plan, according to a study by a health care research firm. AARP, the nation's largest senior lobby, released the results of a separate survey, showing that 78 percent of those enrolled in the benefit plan say they are satisfied. About 20 percent said they were not saving money under the program. (from the Washington Times)

    • Many seniors unaware of Medicare deadline
      About four in 10 elderly Americans still don't know the enrollment deadline for the new Medicare drug benefit is May 15, and nearly half are unaware that they face a financial penalty if they delay, according to a new poll. (from The Seattle Post Intelligencer)

  • Robert A. Kyle Lifetime Achievement Award Update

    • May 16th's Robert A. Kyle Lifetime Achievement Award dinner provides a unique opportunity to visit with and learn from the myeloma community's top physicians and researchers. It's also a chance to connect with myeloma patients and their families. To learn the who-what-where of the evening, and to purchase your tickets, please click here.

    • The IMF's Kyle Award Dinner promises to be an incredible evening, but none of it would be possible without our generous sponsors, including Darlene & Walter Reinhold, Celgene Corporation, Millennium Pharmaceuticals.

  • Read for Research!
    Book clubs all over the US are asking their members to use the special IMF links to Amazon (amazon.myeloma.org) and Barnes and Noble (barnesandnoble.myeloma.org) to purchase their book selections each month. That way, members can get the benefit of the same everyday low prices on these web sites AND every purchase results in a donation that supports the programs of the IMF. If your book club hasn't been buying books using the IMF affiliate program links, what are you waiting for?  Make your purchases count. Use the links!

WHAT'S NEW IN RESEARCH

  • If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


    • UPCOMING SEMINARS AND CLINICAL CONFERENCES

      Vienna Patient & Family Seminar
      May 5-6, 2006

      Vienna, Austria
      Seminário para Pacientes & Familiares IMF LA
      May 6, 2006
      Santos/SP, Brasil
      First Anniversary of AMEN
      May 25, 2006

      Tel Aviv, Israel
      Seminário para Pacientes & Familiares IMF LA
      June 24, 2006
      Rio de Janeiro, Brasil
      Multiple Strategies for Treating Myeloma: Case Discussions
      Register now for this FREE case-based CME dinner activity for physicians coming to an area near you: Thursday, July 6, 2006, in Portland, Oregon and Thursday, August 3, 2006 in Philadelphia, Pennsylvania.
      Portland Patient & Family Seminar
      July 7-8, 2006

      Portland, Oregon
      Seminário para Pacientes & Familiares IMF LA
      July 31, 2006
      São Paulo/SP, Brasil
      Philadelphia Patient & Family Seminar
      August 4-5, 2006

      Philadelphia, Pennsylvania
      Seminário para Pacientes & Familiares IMF LA
      September 30, 2006
      Caracas, Venezuela

      UPCOMING EVENTS

      The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community but don't know where to start. The guide contains the A - Z of fundraising ideas--like running in a local marathon and asking for donations per mile for myeloma; having a summer BBQ, where you charge a cover and hold a raffle; asking your local supermarket to donate wine and cheese, then selling tickets and having a cocktail party--as well as tips and guidelines for success. Check out the FUNdraisers below:

      Oldies Night - Beef & Beer
      May 6, 2006
      Cherry Hill, New Jersey
      4th Annual Robert A. Kyle Lifetime Achievement Award to go to Brian Durie, MD
      May 16, 2006
      Dr. Durie is being honored for his extensive body of work, much of it focused on the proper assessment of patients to ensure they receive the most effective care. Dr. Durie co-created the Durie/Salmon Myeloma Staging System, the first system ever developed to classify myeloma in a standard, universal fashion, and the vital building block for the International Staging System, also co-developed by Dr. Durie with the International Working Group. In total, Dr. Durie has written over 400 research papers, sixteen book chapters, and five books--work which has had an impact on myeloma treatment around the world.

      The Stratford Runner
      In Canada, Sheldon is going to run 1000 kilometers to raise money to support myeloma research.

      Ralph Ferrizzi Golf Tournament
      May 20 2006

      Easton, Pennsylvania


      7th Annual JC Golf Tournament
      May 20, 2006

      Minneapolis, Minnesota

      Leona Cravotta Golf Tournament
      May 20, 2006

      Portland, Oregon

      Terry DuBois_ Birthday Bash for Myeloma
      June 10, 2006
      Ellsworth, Wisconsin

      5th Annual Multiple Musicians Against Multiple Myeloma
      July 9, 2006

      Sea Cliff, New York

      6th Annual Wamp Swim-a-thon
      July 22, 2006
      West Hartford, CT
      • Mail for the Cure Extended
        Many of you requested envelopes to participate in our Mail For The Cure campaign, but were unable to send them out by the end of the year. So we have decided to extend the program for another six months. So far, the campaign has raised over $8,000 to support the IMF's programs, and we know there will be a lot more coming in judging by your requests for information. If you have any questions or would like more envelopes and/or a letter template, please contact Suzanne Battaglia at SBattaglia@myeloma.org or at (800) 452-CURE (2873).

      SHOP FOR THE IMF

      MOTHER'S DAY IS COMING. If you use the special IMF links to shop at your favorite internet retailers (e-tailers) like Amazon.com, they will donate a portion of your purchase to the IMF. You pay no more than you would normally for everything from clothing to computers to cruises. Whatever you buy, the programs, publications and research supported by the IMF will benefit. Here are a few suggestions to make your mom smile. Just click on the picture for more information.

      Visit our Shop for the IMF page at http://shop.myeloma.org to see the complete list of popular etailers who will donate a portion of your purchase to the IMF. Giving has never been more painless!

    • NEW!! Recipes for Research
      Marilyn Alexander, the Philadelphia support group, and the IMF community have come together to create one terrific cookbook and handy kitchen reference. From Autumn Apple Cake to Veal Stimbarada, there is something here for every taste. And if you aren't in the mood to cook tonight, there is an entire section with tips on everything from setting the table to stain remover. At only $15, it will make a great Mother's Day gift.

      NEW!! Ribbon of Hope Ornament
      Whether you hang one on your holiday tree, your wall, or any other creative place you can think of, the IMF's 4-inch holiday ornament will bring a message of hope to anyone you give it to. We have a limited number available at only $10 each, so why not order one today?


      Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

      See more exciting ways to help the IMF continue its important work in education, support and research.


    • ITEMS OF INTEREST

      BANK ON A CURE®
      International Staging System
      NexProfiler
      A tool to help understand the current status of the disease and the questions you should be asking.
      HealthTalk's Multiple Myeloma Education Network

      The HealthWell Foundation is a non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses. The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs, including:

        • Prescription drug coinsurance, copayments, and deductibles
        • Health insurance premiums
        • Other selected out-of-pocket health care costs

      The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available.  You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

      Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients' erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.
      Walgreens offers help in making Medicare prescription insurance plan choice.
      You fill out a form, take it to your nearest Walgreens, and they give you a free report that tells you all the major plans available in your area, including their web addresses and phone numbers; how many of your current prescriptions each plan covers; each plan's monthly premium and deductible; the co-pays for each class of prescription and more.