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WHAT'S NEWS
  • Genome changes tracked during multiple myeloma initiation, progression and treatment
    A new computational tool based on an algorithm designed to recognize human faces plucked the four distinguishing gene patterns out of a landscape of many DNA alterations in the myeloma genome, the researchers report in the April issue of Cancer Cell. See below:

    • Scientists Discover New Genetic Subtypes of Common Blood Cancer
      Scientists at Dana-Farber Cancer Institute and collaborators have identified four distinct genetic subtypes of multiple myeloma, a deadly blood cancer, that have different prognoses and might be treated most effectively with drugs specifically targeted to those subtypes. (from Doctor's Guide)
    • UAMS Myeloma Researchers on Team Analyzing Disease's Genetic Fingerprints
      Researchers at the University of Arkansas for Medical Sciences (UAMS) are part of a team that has identified that multiple myeloma, a cancer of the blood, could actually be several different diseases at the cellular level with a potential for genetically targeted treatments that could extend to other forms of cancer.

  • Ontario to shake up drug system
    Ontario, Canada is making its drug system easier to understand so people will know why they can or can't get that new expensive drug they've heard about. The move is part of a package of reforms being introduced in the Legislature. (from the Toronto Star)

  • Doctors learn about the 'talk'
    Bad medical news is repeated thousands of times a day at bedsides, across desktops and over the phone, turning lives upside down. But as recently as a decade ago, those giving the news received no training in how to handle the "talk," often leaving both doctor and patient feeling even worse.(from the Arizona Republic)

  • When Dr. Brian Durie accepts the Fourth Annual Robert A. Kyle Lifetime Achievement Award on May 16, 2006, he will join a group of distinguished physicians who exemplify a singular dedication to and compassion for myeloma patients and the treatment of their disease.  To learn more about the Kyle Lifetime Achievement Award’s past recipients, and to purchase your tickets to the awards dinner, please click here.

  • Medicare Deadline Reminder:
    Remember, if you are eligible and intend to apply for the new Medicare Part D prescription drug benefit, May 15, 2006 is the deadline. After the deadline, enrollment will remain closed until November 15-December 31, 2006, with new programs taking effect on January 1, 2007. More...

WHAT'S NEW IN RESEARCH

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


UPCOMING SEMINARS AND CLINICAL CONFERENCES

Advancing Access to Myeloma Treatment; Administration, Side Effects, and Implications for Survival
Nurses, help your patients gain access and information regarding the new regimens available for myeloma, earn CE credits, and enjoy a delicious breakfast at the same time. Come to a FREE symposium before the ONS 31st Annual Congress.
May 4, 2006
Vienna Patient & Family Seminar
May 5-6, 2006

Vienna, Austria
Seminário para Pacientes & Familiares IMF LA
May 6, 2006
Santos/SP, Brasil
First Anniversary of AMEN
May 25, 2006

Tel Aviv, Israel
Seminário para Pacientes & Familiares IMF LA
June 24, 2006
Rio de Janeiro, Brasil
Multiple Strategies for Treating Myeloma: Case Discussions
Register now for this FREE case-based CME dinner activity for physicians coming to an area near you: Thursday, July 6, 2006, in Portland, Oregon and Thursday, August 3, 2006 in Philadelphia, Pennsylvania.
Portland Patient & Family Seminar
July 7-8, 2006

Portland, Oregon
Seminário para Pacientes & Familiares IMF LA
July 31, 2006
São Paulo/SP, Brasil
Philadelphia Patient & Family Seminar
August 4-5, 2006

Philadelphia, Pennsylvania
Seminário para Pacientes & Familiares IMF LA
September 30, 2006
Caracas, Venezuela

UPCOMING EVENTS

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community but don't know where to start. The guide contains the A - Z of fundraising ideas--like running in a local marathon and asking for donations per mile for myeloma; having a summer BBQ, where you charge a cover and hold a raffle; asking your local supermarket to donate wine and cheese, then selling tickets and having a cocktail party--as well as tips and guidelines for success. Check out the FUNdraisers below:

4th Annual Robert A. Kyle Lifetime Achievement Award to go to Brian Durie, MD
May 16, 2006
Dr. Durie is being honored for his extensive body of work, much of it focused on the proper assessment of patients to ensure they receive the most effective care. Dr. Durie co-created the Durie/Salmon Myeloma Staging System, the first system ever developed to classify myeloma in a standard, universal fashion, and the vital building block for the International Staging System, also co-developed by Dr. Durie with the International Working Group. In total, Dr. Durie has written over 400 research papers, sixteen book chapters, and five books--work which has had an impact on myeloma treatment around the world.

The Stratford Runner
In Canada, Sheldon is going to run 1000 kilometers to raise money to support myeloma research.

1st Memorial Schirinzi Golf Tournament
Saturday, April 22, 2006
Florence, Italy

Ralph Ferrizzi Golf Tournament
May 20 2006

Easton, Pennsylvania


7th Annual JC Golf Tournament
May 20, 2006

Minneapolis, Minnesota

Leona Cravotta Golf Tournament
May 20, 2006

Portland, Oregon

Terry DuBois’ Birthday Bash for Myeloma
June 10, 2006
Ellsworth, Wisconsin

5th Annual Multiple Musicians Against Multiple Myeloma
July 9, 2006

Sea Cliff, New York

  • Mail for the Cure Extended
    Many of you requested envelopes to participate in our Mail For The Cure campaign, but were unable to send them out by the end of the year. So we have decided to extend the program for another six months. So far, the campaign has raised over $8,000 to support the IMF's programs, and we know there will be a lot more coming in judging by your requests for information. If you have any questions or would like more envelopes and/or a letter template, please contact Suzanne Battaglia at SBattaglia@myeloma.org or at (800) 452-CURE (2873).

SHOP FOR THE IMF

Shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. You pay no more than you would normally for everything from clothing to computers to cruises. Whatever you buy, the programs, publications and research supported by the IMF will benefit.

Visit our Shop for the IMF page at http://shop.myeloma.org to see the complete list of popular etailers who will donate a portion of your purchase to the IMF. Giving has never been more painless!

  • NEW!! Recipes for Research
    Marilyn Alexander, the Philadelphia support group, and the IMF community have come together to create one terrific cookbook and handy kitchen reference. From Autumn Apple Cake to Veal Stimbarada, there is something here for every taste. And if you aren't in the mood to cook tonight, there is an entire section with tips on everything from setting the table to stain remover. At only $15, it will make a great Mother's Day gift.

    NEW!! Ribbon of Hope Ornament
    Whether you hang one on your holiday tree, your wall, or any other creative place you can think of, the IMF's 4-inch holiday ornament will bring a message of hope to anyone you give it to. We have a limited number available at only $10 each, so why not order one today?


    Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

    See more exciting ways to help the IMF continue its important work in education, support and research.


  • ITEMS OF INTEREST

    BANK ON A CURE®
    International Staging System
    NexProfiler
    A tool to help understand the current status of the disease and the questions you should be asking.
    HealthTalk's Multiple Myeloma Education Network

    The HealthWell Foundation is a non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses. The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs, including:

      • Prescription drug coinsurance, copayments, and deductibles
      • Health insurance premiums
      • Other selected out-of-pocket health care costs

    The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available.  You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

    Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients' erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.
    Walgreens offers help in making Medicare prescription insurance plan choice.
    You fill out a form, take it to your nearest Walgreens, and they give you a free report that tells you all the major plans available in your area, including their web addresses and phone numbers; how many of your current prescriptions each plan covers; each plan's monthly premium and deductible; the co-pays for each class of prescription and more.