We are international
Donate
WHAT'S NEWS
  • Advocacy Update: House Budget Committee is Next Funding Hurdle
    The House Budget Committee is expected to take up an amendment offered by Rep. Rosa DeLauro (D-CT) to add $7 billion to the House Budget Resolution to increase health and education spending. The amendment is similar to one passed by the Senate in mid-March 2006. It will likely face greater opposition in the House than in the Senate.

  • Ever been to an IMF Patient & Family Seminar?
    If you haven't, or even if you have, you won't want to miss our first blog--starting Saturday, April 1-- from the Fort Lauderdale Patient & Family Seminar. Read what it feels like to be there through daily dispatches from people just like you. Click on http://www.myeloma.org/blogger/2006/FL.

  • Ottawa's stand on drugs 'completely unacceptable'
    Health Canada's refusal to release thalidomide to many myeloma patients and Ontario's denial to fund Velcade will doom hundreds to a certain earlier death, says a specialist who treats the disease. (from the Globe and Mail)

  • Carol and Benson Klein to serve as dinner chairs for this year's Robert A. Kyle Lifetime Achievement Award Dinner
    Benson Klein's myeloma has been in remission for over 7 years, but for Benson and his wife, Carol, it is important to give back to the IMF, to help patients in need, and to raise money to fund the research essential to finding a cure for myeloma. That is why Carol and Benson Klein are chairing this year's Robert A. Kyle Lifetime Achievement Award Dinner on May 16th at the National Press Club in Washington, D.C.

  • NEW!! Ribbon of Hope Ornament
    Whether you hang one on your holiday tree, your wall, or any other creative place you can think of, the IMF's holiday ornament will bring a message of hope to anyone you give it to. We have a limited number available at only $10 each, so why not order one today?

WHAT'S NEW IN RESEARCH


UPCOMING SEMINARS AND CLINICAL CONFERENCES

Fort Lauderdale Patient & Family Seminar
March 31 - April 1, 2006

Fort Lauderdale, Florida
Seoul Patient & Family Seminar
April 8, 2006
Seoul, South Korea
Seoul Multiple Myeloma Symposium
April 8, 2006
Seoul, South Korea
Advancing Access to Myeloma Treatment; Administration, Side Effects, and Implications for Survival
Nurses, help your patients gain access and information regarding the new regimens available for myeloma, earn CE credits, and enjoy a delicious breakfast at the same time. Come to a FREE symposium before the ONS 31st Annual Congress.
May 4, 2006
Vienna Patient & Family Seminar
May 5-6, 2006

Vienna, Austria
Multiple Strategies for Treating Myeloma: Case Discussions
Register now for this FREE case-based CME dinner activity for physicians coming to an area near you: Thursday, July 6, 2006, in Portland, Oregon and Thursday, August 3, 2006 in Philadelphia, Pennsylvania.
Portland Patient & Family Seminar
July 7-8, 2006

Portland, Oregon
Philadelphia Patient & Family Seminar
August 4-5, 2006

Philadelphia, Pennsylvania

UPCOMING EVENTS

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community but don't know where to start. The guide contains the A - Z of fundraising ideas--like running in a local marathon and asking for donations per mile for myeloma; having a summer BBQ, where you charge a cover and hold a raffle; asking your local supermarket to donate wine and cheese, then selling tickets and having a cocktail party--as well as tips and guidelines for success. Check out the FUNdraisers below:

4th Annual Robert A. Kyle Lifetime Achievement Award to go to Brian Durie, MD
May 16, 2006
Dr. Durie is being honored for his extensive body of work, much of it focused on the proper assessment of patients to ensure they receive the most effective care. Dr. Durie co-created the Durie/Salmon Myeloma Staging System, the first system ever developed to classify myeloma in a standard, universal fashion, and the vital building block for the International Staging System, also co-developed by Dr. Durie with the International Working Group. In total, Dr. Durie has written over 400 research papers, sixteen book chapters, and five books--work which has had an impact on myeloma treatment around the world.
The Stratford Runner
In Canada, Sheldon is going to run 1000 kilometers to raise money to support myeloma research.
Music Against Myeloma
April 5th, 2006
New York, New York

Victoria's Run for Myeloma
April 9, 2006
Reading, Great Britain

1st Memorial Schirinzi Golf Tournament
Saturday, April 22, 2006
Florence, Italy
Ralph Ferrizzi Golf Tournament
May 20 2006

Easton, Pennsylvania


7th Annual JC Golf Tournament
May 20, 2006

Minneapolis, Minnesota

Leona Cravotta Golf Tournament
May 20, 2006

Portland, Oregon

Terry DuBois’ Birthday Bash for Myeloma
June 10, 2006
Ellsworth, Wisconsin
5th Annual Multiple Musicians Against Multiple Myeloma
July 9, 2006

Great Neck, New York
  • Mail for the Cure Extended
    Many of you requested envelopes to participate in our Mail For The Cure campaign, but were unable to send them out by the end of the year. So we have decided to extend the program for another six months. So far, the campaign has raised over $8,000 to support the IMF's programs, and we know there will be a lot more coming in judging by your requests for information. If you have any questions or would like more envelopes and/or a letter template, please contact Suzanne Battaglia at SBattaglia@myeloma.org or at (800) 452-CURE (2873).

SHOP FOR THE IMF

Shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. You pay no more than you would normally for everything from clothing to computers to cruises. Whatever you buy, the programs, publications and research supported by the IMF will benefit.

Visit our Shop for the IMF page at http://shop.myeloma.org to see the complete list of popular etailers who will donate a portion of your purchase to the IMF. Giving has never been more painless!

Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

See more exciting ways to help the IMF continue its important work in education, support and research.


ITEMS OF INTEREST

BANK ON A CURE®
International Staging System
NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.
HealthTalk's Multiple Myeloma Education Network

The HealthWell Foundation is a non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses. The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs, including:

    • Prescription drug coinsurance, copayments, and deductibles
    • Health insurance premiums
    • Other selected out-of-pocket health care costs

The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available.  You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients' erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.
Walgreens offers help in making Medicare prescription insurance plan choice.
You fill out a form, take it to your nearest Walgreens, and they give you a free report that tells you all the major plans available in your area, including their web addresses and phone numbers; how many of your current prescriptions each plan covers; each plan's monthly premium and deductible; the co-pays for each class of prescription and more.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.