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The IMF is dedicated to improving the quality of life of myeloma patients
while working toward prevention and a cure.


WHAT'S NEWS

  • Confusing news stories about the efficacy of thalidomide. What does this all mean?
    Thalidomide has been used since 1997 in the treatment of myeloma. Remarkable efficacy has been observed both alone and in combination with dexamethasone and other drugs. Strangely, only recently have comparative trials been completed to show the clear added benefit of thalidomide and the drug still awaits formal FDA approval for myeloma treatment. However, two recent studies have lead to some confusion about thalidomide efficacy.
  • Calling All Nurses!
    Help your patients gain access and information regarding the new regimens available for myeloma, earn CE credits, and eat breakfast all at the same time. Come to a special education symposium, Advancing Access to Myeloma Treatment; Administration, Side Effects, and Implications for Survival, before the ONS 31st Annual Congress.
  • OVAC Urges the Senate to Support Funding Increases to Cancer Research and Program Funding!
    On the heels of approving the first cuts to NIH and NCI since 1970 in fiscal year 2006, the President has proposed even deeper cuts to NCI in fiscal year 2007. Funding for the National Cancer Institute would be cut by $40 million. In addition to these cuts in medical research, the President's budget also proposes deep reductions at CDC. Under the President's proposal, the CDC Cancer programs, which are already severely under-funded, would be cut by more the $3 million. This week, the Senate is scheduled to vote on the Senate Budget Resolution, which sets the overall funding allocations for all federal spending. While this is very serious situation, there is a glimmer of hope; but we need your help.
  • Is Nothing Ever Easy?
    Thanks in part to the work of our own Dr. Brian Durie, the National Oncology PET Registry (NOPR) has been set up to ensure access to Medicare reimbursement for certain types of positron emission tomography (PET) scans, an important diagnostic tool for myeloma. However, its opening has hit yet another government snag. Originally the registry was given an exemption to human protection regulations because the scan itself is considered medically necessary; it is the accumulation of patient data and its possible release which is the "risk" to which patients participating in NOPR are exposed. The Office for Human Research Protections (OHRP) has now taken the position that the NOPR does not qualify for exemption under the human protection regulations. Again, your voice is needed.
  • FYI: The National Cancer Institute's Strategic Plan
    A little bedside reading for those dex nights.
  • Study Finds Patients Agree on Ideal Physician Behaviors
    A study of Mayo Clinic patients has found seven behaviors define the "ideal" physician and supports an Institute of Medicine recommendation that quality medical care should include a patient-centered approach. (from Newswise)
  • Common Prescription Drug Interactions
    The National Council on the Aging (NCOA) and The Quigley Corporation are working together to increase awareness of drug interactions and their possible side effects through an educational program called, "Seniors and Medicine: Proper Use for Good Health."

  • A little night music for the cure
    Hot bands, artisanal cheeses, cupcakes (love em!) and helping the IMF. You'll find it all at Music Against Myeloma on April 5th, 2006 in New York, New York. Check it out.

WHAT'S NEW IN RESEARCH

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


UPCOMING SEMINARS AND CLINICAL CONFERENCES

Focus on Myeloma and Plasma Cell Disorders
March 24-25, 2006
Miami, Florida

Fort Lauderdale Patient & Family Seminar
March 31 - April 1, 2006

Fort Lauderdale, Florida

Seoul Patient & Family Seminar
April 8, 2006
Seoul, South Korea

Seoul Multiple Myeloma Symposium
April 8, 2006
Seoul, South Korea

Vienna Patient & Family Seminar
May 5-6, 2006

Vienna, Austria

Portland Patient & Family Seminar
July 7-8, 2006

Portland, Oregon

Philadelphia Patient & Family Seminar
August 4-5, 2006

Philadelphia, Pennsylvania

See complete list of 2006 UPCOMING SEMINARS AND MEETINGS.


UPCOMING EVENTS

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community but don't know where to start. The guide contains the A - Z of fundraising ideas--like running in a local marathon and asking for donations per mile for myeloma; having a summer BBQ, where you charge a cover and hold a raffle; asking your local supermarket to donate wine and cheese, then selling tickets and having a cocktail party--as well as tips and guidelines for success. Check out the FUNdraisers below:

4th Annual Robert A. Kyle Lifetime Achievement Award to go to Brian Durie, MD
May 16, 2006
Dr. Durie is being honored for his extensive body of work, much of it focused on the proper assessment of patients to ensure they receive the most effective care. Dr. Durie co-created the Durie/Salmon Myeloma Staging System, the first system ever developed to classify myeloma in a standard, universal fashion, and the vital building block for the International Staging System, also co-developed by Dr. Durie with the International Working Group. In total, Dr. Durie has written over 400 research papers, sixteen book chapters, and five books--work which has had an impact on myeloma treatment around the world.

The Stratford Runner
In Canada, Sheldon is going to run 1000 kilometers to raise money to support myeloma research.

Music Against Myeloma
April 5th, 2006
New York, New York

I° Memorial Schirinzi Augusto Mario IMF
Saturday, April 22, 2006
Florence, Italy

Ralph Ferrizzi Golf Tournament
May 20 2006

Easton, Pennsylvania

7th Annual JC Golf Tournament
May 20, 2006

Minneapolis, Minnesota


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