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Myeloma Minute - February 14, 2006
02.14.06
WHAT'S NEWS
  • IMF's CDC Grant Renewed for Second Year
    The IMF is pleased to announce that its first Centers for Disease Control and Prevention (CDC) government grant was renewed for second year funding. The work plan submitted by the IMF involves educating those in major metropolitan areas about the increased risk of myeloma in African American communities, as well as developing outreach that also includes the elderly, the underinsured, and the uninsured. People in these communities affected by myeloma often struggle in their search for information.

  • Firms give U.S. millions for genetic research
    The National Institutes of Health announced the partnership, called the Genetic Association Information Network, with Pfizer Inc. and Affymetrix Inc., saying the project's discoveries won't become the property of the two companies but will be available to all scientists. Affymetrix provides the equipment for Bank On A Cure® DNA analysis. (from CNN)

  • European Regulatory Committee Recommends Orphan Drug Status for GPC Biotech's Anticancer Monoclonal Antibody 1D09C3 for Multiple Myeloma
    Committee for Orphan Medicinal Products (COMP) of the European Medicines Agency (EMEA) has recommended the granting of orphan medicinal product designation for the treatment of multiple myeloma. The orphan drug status becomes effective when the European Commission has approved this recommendation. (from Market Wire)

  • New Agents and New Opportunities for Multiple Myeloma
    If you haven't already checked it out, don't miss our webcast of the special, CME-accredited program, New Agents and New Opportunities for Multiple Myeloma - Today and Tomorrow.

ADVOCACY UPDATE
  • Support for Cancer Priorities Short-Changed in President's Budget
    Despite a theme of "When America leads, Americans Win," President Bush's recent state-of-the-union speech set the stage for an annual federal spending proposal that threatens to further erode our nation's long-standing commitment to advance the pace of medical research and drug access.


WHAT'S NEW IN RESEARCH

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


UPCOMING SEMINARS AND CLINICAL CONFERENCES

Fort Lauderdale Patient & Family Seminar
March 31 - April 1, 2006

Fort Lauderdale, Florida
Portland Patient & Family Seminar
July 7-8, 2006

Portland, Oregon
Philadelphia Patient & Family Seminar
August 4-5, 2006

Philadelphia, Pennsylvania

UPCOMING EVENTS

The Stratford Runner
In Canada, Sheldon is going to run 1000 kilometers to raise money to support myeloma research.
Ralph Ferrizzi Golf Tournament
May 20 2006

Easton, Pennsylvania


7th Annual JC Golf Tournament
May 20, 2006

Minneapolis, Minnesota

Leona Cravotta Golf Tournament
May 20, 2006

Portland, Oregon

5th Annual Multiple Musicians Against Multiple Myeloma
July 9, 2006

Great Neck, New York
  • Mail for the Cure Extended
    Many of you requested envelopes to participate in our Mail For The Cure campaign, but were unable to send them out by the end of the year. So we have decided to extend the program for another six months. So far, the campaign has raised over $8,000 to support the IMF's programs, and we know there will be a lot more coming in judging by your requests for information. If you have any questions or would like more envelopes and/or a letter template, please contact Suzanne Battaglia at SBattaglia@myeloma.org or at (800) 452-CURE (2873).

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community, but don't know where to start. The guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.

See complete list of 2006 UPCOMING EVENTS.


SHOP FOR THE IMF

Shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. You pay no more than you would normally for everything from clothing to computers to cruises. Whatever you buy, the programs, publications and research supported by the IMF will benefit.

Visit our Shop for the IMF page at http://shop.myeloma.org to see the complete list of popular etailers who will donate a portion of your purchase to the IMF. Giving has never been more painless!

Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

See more exciting ways to help the IMF continue its important work in education, support and research.


ITEMS OF INTEREST

BANK ON A CURE®
International Staging System
NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.
HealthTalk's Multiple Myeloma Education Network

The HealthWell Foundation is a non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses. The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs, including:

    • Prescription drug coinsurance, copayments, and deductibles
    • Health insurance premiums
    • Other selected out-of-pocket health care costs

The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available. You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients' erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.


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