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Myeloma Minute - February 7, 2006
02.07.06
WHAT'S NEWS

  • New Federal Budget Trims Medicare by $35.9 billion over five years.
    The proposed savings over five years mostly come from trimming payment increases to hospitals while freezing payments to nursing homes and some home health services. The independent Medpac advisory panel has made similar proposals.

  • Medicare Chief Acknowledges Benefit Snags
    Medicare Administrator Mark B. McClellan acknowledged that the Medicare prescription program was too complicated for many of its intended beneficiaries to understand and said simplifying it was a top priority. At the same time, McClellan opened the door to a possible extension of the May 15 deadline for signing up — a step the administration has opposed but critics have said is needed to give seniors time to figure out the program's options.

  • Gifts from the Heart
    Valentine's Day is coming up, and you can send flowers and candy and help the IMF at the same time. At Shop for the IMF you will find three established florists who will donate a portion of each sale to the IMF if you enter their sites through these special links: ftd.myeloma.org, 1800flowers.myeloma.org, and proflowers.myeloma.org.


WHAT'S NEW IN RESEARCH

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


UPCOMING SEMINARS AND CLINICAL CONFERENCES

San Francisco Patient & Family Seminar
February 10-11, 2006

San Francisco, Californ
ia

Fort Lauderdale Patient & Family Seminar
March 31 - April 1, 2006

Fort Lauderdale, Florida
Portland Patient & Family Seminar
July 7-8, 2006

Portland, Oregon
Philadelphia Patient & Family Seminar
August 4-5, 2006

Philadelphia, Pennsylvania

UPCOMING EVENTS

The Stratford Runner
In Canada, Sheldon is going to run 1000 kilometers to raise money to support myeloma research.
Ralph Ferrizzi Golf Tournament
May 20 2006

Easton, Pennsylvania


7th Annual JC Golf Tournament
May 20, 2006

Minneapolis, Minnesota

Leona Cravotta Golf Tournament
May 20, 2006

Portland, Oregon

5th Annual Multiple Musicians Against Multiple Myeloma
July 9, 2006

Great Neck, New York
  • Mail for the Cure Extended
    Many of you requested envelopes to participate in our Mail For The Cure campaign, but were unable to send them out by the end of the year. So we have decided to extend the program for another six months. So far, the campaign has raised over $8,000 to support the IMF's programs, and we know there will be a lot more coming in judging by your requests for information. If you have any questions or would like more envelopes and/or a letter template, please contact Suzanne Battaglia at SBattaglia@myeloma.org or at (800) 452-CURE (2873).

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community, but don't know where to start. The guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.

See complete list of 2006 UPCOMING EVENTS.


SHOP FOR THE IMF

Roses are red.
Violets are blue.
Shop for your sweetheart.
Help the IMF too!

Valentine's Day is coming. Shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. You pay no more than you would normally for everything from clothing to computers to cruises. Whatever you buy, the programs, publications and research supported by the IMF will benefit.

Visit our Shop for the IMF page at http://shop.myeloma.org to see the complete list of popular etailers who will donate a portion of your purchase to the IMF. Giving has never been more painless!

Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

See more exciting ways to help the IMF continue its important work in education, support and research.


ITEMS OF INTEREST

BANK ON A CURE®
International Staging System
NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.
HealthTalk's Multiple Myeloma Education Network

The HealthWell Foundation is a non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses. The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs, including:

    • Prescription drug coinsurance, copayments, and deductibles
    • Health insurance premiums
    • Other selected out-of-pocket health care costs

The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available. You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients' erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.


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