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Myeloma Minute - February 1, 2006
02.01.06
WHAT'S NEWS

  • Webcast of Presentations from "New Agents and New Opportunities for Multiple Myeloma"
    This Corporate Friday Symposium preceded the 47th Annual American Society of Hematology Meeting. The panelists addressed current issues in clinical practice in the context of new agents and new discoveries in the treatment of multiple myeloma.

  • NIH Announces Program to Foster the Independence of New Investigators
    Friday, January 27, NIH Director Elias Zerhouni announced the NIH Pathway to Independence Award Program, an effort to help new investigators become independent through a new grant award. The five-year awards will include two years of support for mentored work, followed by three years of support for independent research. The second phase is intended to help awardees secure an assistant professorship, or equivalent position, to establish their own research program and apply for an R01 grant.


  • Multiple Strategies for Treating Myeloma: Case Discussions
    Physicians, mark your calendars! A case-based CME dinner activity is coming to your area.



  • AARP to Seek a Better Drug Benefit
    AARP, representing older Americans, plans to ask Congress to change the new Medicare prescription drug program, in an effort to give more elderly people with low incomes extra help in paying for medicine and to create a bigger government role in drug prices. John Rother, AARP's policy director, said yesterday that the group wants lawmakers to change a rule in the drug program that counts assets, such as a house, in determining which Medicare patients are poor enough to qualify for special low-income subsidies. AARP and many congressional Democrats tried to exclude assets when the law was being written in 2003. (from the Washington Post)

  • Elise Segar and Red Dot Match Funds for the IMF
    International Myeloma Foundation (IMF) President, Susie Novis, was thrilled to receive an early morning call from her niece, Elise Segar, who had some exciting news to share...

  • ASH 2005: The IMF Takes You There
    If you were not able to attend the 47th Annual Meeting of the American Society of Hematology (ASH), you have had to make do with brief updates of the activities. Until now. The IMF brings a wide array of ASH presenters direct to you. See and hear them explain their research via our ASH 2005 webcast


WHAT'S NEW IN RESEARCH

If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


UPCOMING SEMINARS AND CLINICAL CONFERENCES

San Francisco Patient & Family Seminar
February 10-11, 2006

San Francisco, Californ
ia

Fort Lauderdale Patient & Family Seminar
March 31 - April 1, 2006

Fort Lauderdale, Florida
Portland Patient & Family Seminar
July 7-8, 2006

Portland, Oregon
Philadelphia Patient & Family Seminar
August 4-5, 2006

Philadelphia, Pennsylvania

UPCOMING EVENTS

The Stratford Runner
In Canada, Sheldon is going to run 1000 kilometers to raise money to support myeloma research.
Ralph Ferrizzi Golf Tournament
May 20 2006

Easton, Pennsylvania


7th Annual JC Golf Tournament
May 20, 2006

Minneapolis, Minnesota

Leona Cravotta Golf Tournament
May 20, 2006

Portland, Oregon

5th Annual Multiple Musicians Against Multiple Myeloma
July 9, 2006

Great Neck, New York
  • Mail for the Cure Extended
    Many of you requested envelopes to participate in our Mail For The Cure campaign, but were unable to send them out by the end of the year. So we have decided to extend the program for another six months. So far, the campaign has raised over $8,000 to support the IMF's programs, and we know there will be a lot more coming in judging by your requests for information. If you have any questions or would like more envelopes and/or a letter template, please contact Suzanne Battaglia at SBattaglia@myeloma.org or at (800) 452-CURE (2873).

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community, but don't know where to start. The guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.

See complete list of 2006 UPCOMING EVENTS.


SHOP FOR THE IMF

Roses are red.
Violets are blue.
Shop for your sweetheart.
Help the IMF too!

Valentine's Day is coming. Shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. You pay no more than you would normally for everything from clothing to computers to cruises. Whatever you buy, the programs, publications and research supported by the IMF will benefit.

Need some ideas?

For the music lovers among us, how about an iPod or MP3 player? Or even a CD of the music that makes you feel the mood? Click on J & R at jandr.myeloma.org, and turn up the volume!

Beauty is as beauty does. Go natural with cosmetics like Burt's Bees Lipstick with Vitamin E and Comfrey at drugstore.myeloma.org.




Who doesn't like flowers for Valentine's Day? And at Shop for the IMF you will find three established florists from which to choose: FTD.com, 1-800-FLOWERS.com, and PROFLOWERS.com.

Visit our Shop for the IMF page at http://shop.myeloma.org to see the complete list of popular etailers who will donate a portion of your purchase to the IMF. Giving has never been more painless!

Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

See more exciting ways to help the IMF continue its important work in education, support and research.


ITEMS OF INTEREST

BANK ON A CURE®
International Staging System
NexProfiler
A tool to help understand the current status of the disease and the questions you should be asking.
HealthTalk's Multiple Myeloma Education Network

The HealthWell Foundation is a non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses. The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs, including:

    • Prescription drug coinsurance, copayments, and deductibles
    • Health insurance premiums
    • Other selected out-of-pocket health care costs

The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available. You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients' erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.


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