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Myeloma Minute - November 21, 2005

  • Lights, Camera, Cure! The IMF's 15th Anniversary Gala a Winner!

    The IMF Galas are fun affairs and this year was no exception. It was a thrill to mingle with friends, see old acquaintances renew their friendships, and to observe new friendships being formed. However, the socializing did not impede the competitive bidding for the many attractive auction items!

  • Memorial employees keep stem cells on ice
    Two weeks after Hurricane Katrina blasted through and blew out the electricity, the New Orleans Cancer Institute was dark and virtually empty. Inside were two 800-pound tanks containing stem cells stored in case patients needed them again. Only the heroic efforts of hospital staff kept the cells viable. (from the Times Picayune)

  • IMF Bracelet on Top of the World!
    Father Phil is back from climbing Mt. Kilamanjaro and wrote to tell us that the “IMF bracelet sits atop Mt.Kilimanjaro as a beacon of hope for a cure." Go Father Phil!

  • Last Call for the Last Myeloma Quilt of Courage
    Harriet Bertsche will be putting together all of the squares after January 1st. Adding a personalized square to this quilt is a lovely way to honor a current fighter or memorialize a loved one. If you would still like to participate, please email Harriet, and she will tell you what is involved.


If you would like more information about any clinical trial, you can call the IMF Hotline at 800-452-CURE. The Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


See complete list of 2006 UPCOMING SEMINARS AND MEETINGS.


Shopping for the Holidays and the Cure
Yes, it's that time of year, when we're all looking at the calendar and counting up how many more shopping
days we have left until Christmas or Hanukkah. Here's a way to make your already busy life less hectic. All you have to do is click on shop.myeloma.org and order just the gift you want. There you will find the retailers you would probably buy from anyway, such as Barnes & Noble, Amazon.com, buy.com, FTD.com and
1-800-Flowers.com (for decorating those festive holiday tables), Lands' End, Macy's, Sharper Image and Walmart, to name a few. The IMF receives a portion of everything you buy when you access their site via special links we have set up, so not only are you saving money on gas by not driving from store to store, you're helping to raise money for myeloma too. Or click on either the "Events" or "Helping the IMF" tabs and scroll down through the items that are designed by our IMFers, such as the new hand printed holiday cards by Kathleen Tezla, Pam Larsen's Multiple Colors For Multiple Myeloma, beautiful personalized keychains and earrings, or Kristi Difford's gorgeous personalized jewelry. There are also scenic cards designed by Irma Catlett for the IMF and Cathy Goetz's wine bottle vests for dressing up that holiday dinner gift of wine. And of course, there are the multiple myeloma wrist bands, which you can tie into your package ribbons, and the Ribbon of Hope pin for giving the gift of hope. And all from the comfort of your laptop! So start early—avoid the crowds—and be the first in your neighborhood to cross all those items off your list.

New! Hand Printed Holiday Cards!
This holiday season, send a hand made holiday card, printed one at a time by IMFer Kathleen Tezla and her father, myeloma patient Joseph, on fine art watercolor paper using an antique printing press. The result is a deeply embossed design, archival in quality so that these stories can be remembered and passed on for many more holiday seasons to come.

Multiple Colors for Multiple Myeloma Keychains and Earrings
The gift-giving holidays will be upon us sooner than we think. And there are always birthdays, anniversaries, and "just because you're you" occasions. Here are two new items to help support the International Myeloma Foundation: colorful keychains and chandelier earrings of Swarovski crystals.

    Multiple Myeloma Awareness Jewelry
    The response has been great for the new garnet bracelet IMFer Kristi Difford has added to her line of beautiful custom bracelets to honor those who have joined the struggle against multiple myeloma. Check it out.

    Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

    The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community, but don't know where to start. The guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.

    See more exciting ways to help the IMF continue its important work in education, support and research.


    The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available. You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

    • Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients_ erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.

    Help Us Help Others...
    As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

    Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
    Copyright 2002-2005. International Myeloma Foundation. All Rights Reserved.

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