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WHAT'S NEWS

  • Millennium has expanded the VELCADE Patient Assistance Program for all patients from areas affected by Hurricane Katrina, to ensure that every patient who needs VELCADE is able to receive it. This will ensure that ongoing therapy is not interrupted, and that any newly diagnosed patients can be treated without hesitation. If you are a patient from the affected area, call 1-866-VELCADE and speak to a reimbursement specialist. You will need to provide your home address in the hurricane stricken area, the name of the physician or clinic where you were receiving care, your current contact information, and the name and contact information for the physician who is currently treating you.

  • The International Myeloma Foundation Noted in Wall Street Journal
    The IMF was listed in the September 7th edition of the Wall Street Journal as one of six top advocacy organizations offering help and preparedness advice for patients affected by Hurricane Katrina and those concerned about a future natural disaster or other emergency. The article entitled, "A Medical Checklist" can be found on pages D1 and D5 of the 9/7/05 WSJ.

  • IMF Patient Handbook translated into Hebrew
    This translation was one of the first projects undertaken by AMEN - The Israeli Association of Myeloma Patients. Another was the first meeting of the Israeli Myeloma Working Group. Our thanks to them for this much-needed resource.


  • Eliminating Suffering and Death Due to Cancer by 2015: The Future of Cancer Research
    The National Cancer Institute's Office of Liaison Activities is pleased to offer a teleconference series on crosscutting issues in cancer research. Members of cancer advocacy organizations, survivors, family, and friends are encouraged to participate in each call to learn more about NCI's important cancer research programs and how advocates are involved. Callers will have the opportunity to ask questions of panel members. The first call will be held Monday, September 19th, at 1pm (EDT), call in number is 1-888-889-1957, passcode 2015
    #.

  • Exiled from Their Lousiana Labs, Scientists Assess Their Losses
    Hurricane Katrina has devastated scientific research in New Orleans, claiming thousands of laboratory animals, ruining valuable caches of tissue, and interrupting clinical experiments as patients scattered across the nation. Restoring what has been lost could easily take years, researchers said. (from Boston.com)

  • Trial with AMD-3100 shows new drug may help cancer patients who need stem cell transplants
    Researchers were attempting to determine if patients with multiple myeloma or non-Hodgkin's lymphoma who received the drug AMD-3100 along with the standard drug G-CSF (granulocyte-colony stimulating factor) would have more stem cells available for transplantation. of the 25 patients (10 patients with multiple myeloma and 15 patients with non-Hodgkin's lymphoma) given the drug combination could move enough cells from the marrow to the bloodstream compared to only 64 percent of those who had G-CSF alone. (from EurekAlert)

  • ImmunoGen, Inc. Initiates Clinical Testing of HuN901-DM1 for Treatment of Multiple Myeloma; Study Expands HuN901-DM1 Clinical Development Program
    The huN901-DM1 multiple myeloma study is being conducted at the Jerome Lipper Center for Multiple Myeloma of the Dana-Farber Cancer Institute in Boston, MA. Robert Schlossman, MD, is the Principal Investigator. Co-investigators in the study include Kenneth Anderson, MD, Paul Richardson, MD, and Nikhil Munshi, MD, of the Jerome Lipper Center. Additional clinical centers are expected to be added.(from Business Wire)

  • Mayo Clinic Research Shows Promise For Myeloma Patients Using A New Combination Of Drugs
    "Previous studies have shown Rev/Dex to be effective for recurrent or highly resistant forms of myeloma," says S. Vincent Rajkumar, M.D., Mayo Clinic hematological oncologist and lead investigator of the study, "In this study, the first one to use the combination as initial therapy in newly diagnosed patients, we find that the Rev/Dex combination reduced the myeloma cancer protein levels by more than half in 91 percent of patients -- much higher than response rates obtained with current approved therapies." (from Science Daily)

  • Targeted "smart drugs" may change pharmaceutical industry
    Use of genetic tests to yield better diagnoses and target prescription drugs for specific populations may mean massive changes for a pharmaceutical industry that seeks to develop treatments for millions of people. (Note: Although this article is not about myeloma, the concept of using genetics to target treatment is the basis of Bank On A Cure®.) (from Business Week)


WHAT'S NEW IN RESEARCH



UPCOMING EVENTS AND EXCITING OPPORTUNITIES

Walk for the Cure
September 24, 2005
Rochester, Minnesota
Shop for the Cure Charity Trunk Show
October 8, 2005
Beverly Hills, CA

Walk for Myeloma
October 15, 2005
Miami, Florida
1st Annual Golf Tournament & Benefit for IMF
November 14, 2005
Phoenix, Arizona

Third Annual Robert A. Kyle Lifetime Achievement Award
September 27, 2005
Dr. Kenneth C. Anderson of the Dana Farber Cancer Institute is being honored for pioneering critical advances against multiple myeloma at the Harvard Club in Boston, MA.

This event is being sponsored by

Just a few more squares are left for the final Multiple Myeloma Quilt of Courage. If you can sew, embroider, paint or even iron on a phototransfer, you should be part of this quilt. Everywhere we take them, people are moved by the individual messages on the quilt squares. Let your voice be heard. Contact IMFer Harriet Bertsche via email at bertsche@optonline.net or (914) 478-4689 _ remember, they are almost gone! Don't be left out.

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community, but don't know where to start. The guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.

See complete list of 2005 UPCOMING EVENTS.


SHOP FOR THE IMF

Shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. To do this, you access their site via special URLs we have set up. For Amazon, it's http://amazon.myeloma.org instead of amazon.com. It will take you to the same place, but any purchase you make during that visit will be credited to the IMF.
Here is a hot title you may be interested in:

Our own Rosanne Kalick, who co-leads the Westchester, NY support group, has written a book titled "Cancer Etiquette: What to do, what to say, when someone you love has cancer." You can order now at a discount.

"The more I investigated, the more convinced I became that most people do not know what to say or what to do when someone they know or love has cancer. This book will help them find words that will not offend or hurt, but will help to comfort. This book will enable them to perform simple acts of loving-kindness that are blessings to the patient."

Visit our Shop for the IMF page at http://shop.myeloma.org for express links to other popular etailers who will donate a portion of your purchase to the IMF.

New! Multiple Colors for Multiple Myeloma Keychains and Earrings
The gift-giving holidays will be upon us sooner than we think. And there are always birthdays, anniversaries, and "just because you're you" occasions. Here are two new items to help support the International Myeloma Foundation: colorful keychains and chandelier earrings of Swarovski crystals.


Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org.

    Multiple Myeloma Awareness Jewelry
    The response has been great for the new garnet bracelet IMFer Kristi Difford has added to her line of beautiful custom bracelets to honor those who have joined the struggle against multiple myeloma. Check it out.
     

    See more exciting ways to help the IMF continue its important work in education, support and research.


    WEBCASTS
    • More Options, More Hope
      IMF Scientific Advisor Dr. Paul Richardson of the Dana-Farber Cancer Institute on early use of Velcade. (Newstream.com)

    ITEMS OF INTEREST

    The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available.  You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

    • Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients_ erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.

    Help Us Help Others...
    As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.