- The IMF sends its most heartfelt thoughts to those who have been affected by Hurricane Katrina. We know that the storm's devastation has disrupted access to health services across a large region, and are here to offer our support. If you are a myeloma patient or family member in an afflicted area, please call us at our toll-free number (800-452-CURE) for assistance in finding alternate medical services where and when possible.
- 15th Anniversary Ribbon of Hope Gala Honorees Announced
The IMF leads the way in collaborative research for myeloma. This year our Gala honorees mirror our commitment to collaboration and reflect this dynamic research landscape.
This year's individual honoree is Dr. David Agus of Cedars Sinai Medical Center. Dr. Agus' research in proteomics reveals valuable information regarding "on" and "off" switches of cancer.
This year's corporate honoree is Affymetrix, a pioneer in creating breakthrough tools for genomic research. The machines produced by Affymetrix are the cornerstone of the IMF's Bank On A Cure program, providing the tools to process myeloma patients' DNA.
- Robert Klein to Headline IMF Gala
We are thrilled to announce that Robert Klein--actor, comedian, director, composer and author--will provide the Gala's featured entertainment.
- Cancer, Chemotherapy & Natural Health Products: Do They Mix?
There are more than 200 types of cancer. Conventional treatment for the disease includes surgery, radiation, chemotherapy, or a combination of the three. When chemotherapy is required, patients frequently suffer severe side effects. Is there a role for natural health products in helping manage the side effects and capabilities of chemotherapy?
- USC Researchers Find Drug Is Tough Tumor Fighter
An interdisciplinary team of researchers from the University of Southern California has found that Celebrex is a potent tumor fighter, able to wipe out tumor cells that are resistant to conventional chemotherapies. (from Newswise)
- Fisherman Awarded $14 million in First DuPont Lawsuit
Glen Strong, an oyster fisherman, was awarded $14 million in damages after claiming chemicals from a DuPont factory caused him to develop a rare form of blood cancer. The verdict is a first in some 2,000 lawsuits against the plant. (from Newsday)
- Watch Videos from First Montreal Patient & Family Seminar!
Put on by Myeloma Canada, the seminar was a big success. The video clips are in French and English and include updates from IMF Chairman Dr. Brian Durie. Congratulations to our neighbors to the north.
WHAT'S NEW IN RESEARCH
- Multi-target inhibition of drug-resistant multiple myeloma cell lines by dimethyl-celecoxib (DMC), a non-COX-2-inhibitory analog of celecoxib
Kardosh A, et al
Blood published 25 August 2005, 10.1182/blood-2005-07-2819
- Combination therapy with lenalidomide plus dexamethasone (REV/DEX) for newly diagnosed myeloma
S V Rajkumar, Suzanne R Hayman, Martha Q Lacy, Angela Dispenzieri, Susan M Geyer, Brian Kabat, Steven R Zeldenrust, Shaji Kumar, Philip R Greipp, Rafael Fonseca, John A Lust, Stephen J Russell, Robert A Kyle,Thomas E Witzig, and Morie A Gertz
Blood published 23 August 2005, 10.1182/blood-2005-07-2817
- The combination of the Farnesyl transferase inhibitor (Lonafarnib) and the proteasome inhibitor (Bortezomib) induces synergistic apoptosis in human myeloma cells that is associated with down-regulation of p-AKT
David E, et al
Blood published 23 August 2005, 10.1182/blood-2005-06-2584
For more information, the Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.
UPCOMING SEMINARS AND CLINICAL CONFERENCES
| ||Czech Republic Patient & Family Seminar - September 2-3, 2005|
Lednice, Czech Republic
| ||Istanbul Patient & Family Seminar - September 24, 2005|
| ||Rome Patient & Family Seminar - October 7, 2005|
| ||Madrid Patient & Family Seminar - October 10, 2005|
| ||Heidelberg Patient and Family Seminar - October 22, 2005|
| ||Paris Patient and Family Seminar - October 28, 2005|
| ||Southwest Symposium - November 5, 2005|
in association with the Arizona Myeloma Network
UPCOMING EVENTS AND EXCITING OPPORTUNITIES
| ||Fourth Annual Gary Heuer Jr. Memorial Golf Tournament|
September 10, 2005
| ||Donate for Drew Day - September 10, 2005 - Encinitas, CA|
Thousands of people are expected to attend the Donate for Drew Day event. An eclectic group of organizations including the San Diego Blood Bank and individual volunteers from the United States Navy, and others will be there to support Drew Spaeth and encourage the public to participate. Donate for Drew Day will feature live music by Uncle Boogie, a raffle ticket drawing for a wide range of gifts, and a silent auction. There will be plenty of family activities, and children are welcome.
Click here to visit the home page of donatefordrew.com
Click here to read the latest press release.
| ||Walk for the Cure|
September 24, 2005
| ||Shop for the Cure Charity Trunk Show|
October 8, 2005
Beverly Hills, CA
| ||Walk for Myeloma|
October 15, 2005
| ||1st Annual Golf Tournament & Benefit for IMF|
November 14, 2005
The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community, but don't know where to start. The guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.
See complete list of 2005 UPCOMING EVENTS.
SHOP FOR THE IMF
Shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. To do this, you access their site via special URLs we have set up. For Amazon, it's http://amazon.myeloma.org instead of amazon.com. It will take you to the same place, but any purchase you make during that visit will be credited to the IMF.
Here are a few hot titles you may be interested in:
|Our own Rosanne Kalick, who co-leads the Westchester, NY support group, has written a book titled "Cancer Etiquette: What to do, what to say, when someone you love has cancer." You can order now at a discount. |
"The more I investigated, the more convinced I became that most people do not know what to say or what to do when someone they know or love has cancer. This book will help them find words that will not offend or hurt, but will help to comfort. This book will enable them to perform simple acts of loving-kindness that are blessings to the patient."
|"When you meet someone for the first time, or walk into a house you are thinking of buying, or read the first few sentences of a book, your mind takes about two seconds to jump to a series of conclusions...I think those instant conclusions that we reach are really powerful and really important..." from Malcom Gladwell's "Blink". || |
Visit our Shop for the IMF page at http://shop.myeloma.org for express links to other popular etailers who will donate a portion of your purchase to the IMF.
Imagine Moving Forward is the theme of the IMF's popular myeloma bracelet. At medical conferences and patient & family seminars we see people wearing them in honor, celebration, or in memory of a loved one. They're only $1 each in sets of 10, so order them for everyone you know who has been touched by myeloma. Order them on the web. If you have questions about the bracelets or would like more information, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org. (For a more personalized tribute in jewelry, check out IMFer Kristi Difford's beautiful handmade jewelry below.)
Multiple Myeloma Awareness Jewelry
The response has been great for the new garnet bracelet IMFer Kristi Difford has added to her line of beautiful custom bracelets to honor those who have joined the struggle against multiple myeloma. Check it out.
See more exciting ways to help the IMF continue its important work in education, support and research.
- More Options, More Hope
IMF Scientific Advisor Dr. Paul Richardson of the Dana-Farber Cancer Institute on early use of Velcade. (Newstream.com)
ITEMS OF INTEREST
The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available. You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.
- Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients_ erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.
|Help Us Help Others...|
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.
| |Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2002-2005. International Myeloma Foundation. All Rights Reserved.