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Myeloma Minute - August 9, 2005
08.09.05
WHAT'S NEWS

WHAT'S NEW IN RESEARCH

      For more information, the Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.



UPCOMING EVENTS AND EXCITING OPPORTUNITIES

Shop for a Cure Charity Trunk Show
August 13, 2005
Beverly Hills, CA

Catholic Priest Raises Funds and Myeloma Awareness
Father Phil, a myeloma survivor, is climbing Mt. Kilimanjaro in September. On August 19th and August 26th, his parish is coming together to honor his retirement, and to raise money and myeloma awareness for the IMF!
Fourth Annual Gary Heuer Jr. memorial Golf Tournament
September 10, 2005
Mumford, NY
Donate for Drew Day - September 10, 2005 - Encinitas, CA
Thousands of people are expected to attend the Donate for Drew Day event. An eclectic group of organizations including the San Diego Blood Bank and individual volunteers from the United States Navy, and others will be there to support Drew Spaeth and encourage the public to participate. Donate for Drew Day will feature live music by Uncle Boogie, a raffle ticket drawing for a wide range of gifts, and a silent auction. There will be plenty of family activities, and children are welcome.
Click here to visit the home page of donatefordrew.com
Click here to read the latest press release.

Third Annual Robert A. Kyle Lifetime Achievement Award
September 27, 2005
Dr. Kenneth C. Anderson of the Dana Farber Cancer Institute is being honored for pioneering critical advances against multiple myeloma.
Boston, MA

The IMF has secured a room block at Hotel Commonwealth for the evenings of September 26 and 27, 2005. Hotel Commonwealth is within walking distance of The Harvard Club. If you would like to take advantage of the special rate, when booking please say you are part of the IMF room block. For reservations, call 866-784-4000 and rooms are on a first come first serve basis.

The IMF is celebrating its 15th Anniversary Gala Hollywood style with Lights, Camera, Action, Cure! on November 12th at the Beverly Hilton Hotel, home of the Golden Globes. If you are interested in being involved with this year's planning committee, we would love to hear from you. Contact Candace McDonald, Associate Director of Development at cmcdonald@myeloma.org or call at 800-452-2873 x 222.
Just a few more squares are left for the final Multiple Myeloma Quilt of Courage. If you can sew, embroider, paint or even iron on a phototransfer, you should be part of this quilt. Everywhere we take them, people are moved by the individual messages on the quilt squares. Let your voice be heard. Contact IMFer Harriet Bertsche via email at bertsche@optonline.net or (914) 478-4689 – remember, they are almost gone! Don't be left out.

The IMF's comprehensive "How-to-FUNdraise" guide is what you need if you're thinking about fundraising in your community, but don't know where to start. The guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.

See complete list of 2005 UPCOMING EVENTS.


SHOP FOR THE IMF

The Unknown Patient wants to make sure that the following is not Unknown to our Myeloma Minute subscribers. You can shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. To do this, you access their site via special URLs we have set up. For Amazon, it's http://amazon.myeloma.org instead of amazon.com. It will take you to the same place, but any purchase you make during that visit will be credited to the IMF.
Here are a few hot titles you may be interested in:

Our own Rosanne Kalick, who co-leads the Westchester, NY support group, has written a book titled "Cancer Etiquette: What to do, what to say, when someone you love has cancer." You can order now at a discount.

Excerpt: "The more I investigated, the more convinced I became that most people do not know what to say or what to do when someone they know or love has cancer. This book will help them find words that will not offend or hurt, but will help to comfort. This book will enable them to perform simple acts of loving-kindness that are blessings to the patient."


Oprah Winfrey's Book Club has just kicked off "A Summer of Faulkner." and you can order the boxed set of all three novels in a discounted boxed-set.

You can also order the new Harry Potter book, "Harry Potter and the Half-Blood Prince."

Visit our Shop for the IMF page at http://shop.myeloma.org for express links to other popular etailers who will donate a portion of your purchase to the IMF.

Imagine Moving Forward is the theme of the IMF's myeloma bracelet. Wear one in honor, celebration, or in memory of a loved one, and when people ask you what it's for, it's a perfect opportunity to spread the word about multiple myeloma. They're only $1 each in sets of 10, so you can order one for everyone in your family. You can order them on the web. For more info or questions, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org. (For a more personalized tribute in jewelry, check out IMFer Kristi Difford's beautiful handmade jewelry below.)

    Multiple Myeloma Awareness Jewelry
    IMFer Kristi Difford has added two necklaces and two sets of matching earrings to her line of beautiful custom bracelets to honor those who have joined the struggle against multiple myeloma.

    See more exciting ways to help the IMF continue its important work in education, support and research.


    ITEMS OF INTEREST

    • SPOTLIGHT ON SUPPORT - NEW SUPPORT GROUP

      • Stillwater, Minnesota
        This group is just forming. For more information, please contact Karl S. Vollstedt at ksv@sprynet.com.

      • Weston, Florida
        Meets the 2nd Wednesday of each month from 5:30 to 6:30 pm at the Jagelman Conference Center #3, Cleveland Clinic, 2950 Cleveland Clinic Blvd., Weston, Florida. Contact: Beth Brown 954-659-5840.

    The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available. You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

    • Patient Access Network Foundation (PANF) provides copay assistance for myeloma. Thalomid is the MRDD product covered for this condition. The PANF formerly just covered qualified myeloma patients’ erythropoietin alpha expenses. Patients or healthcare providers may initiate the application process. Applications must be completed by both physician and patient, and income verification is required. Their phone number is 1-866-316-7263.

    Help Us Help Others...
    As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

    Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
    Copyright 2002-2005. International Myeloma Foundation. All Rights Reserved.


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