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WHAT'S NEWS
  • New England Journal of Medicine Publishes ONJ Web Survey Results
    Many thanks to everyone who participated in the IMF web survey on bisphosphonate use and osteonecrosis of the jaw. We were able to get very valuable data from over 1200 respondents that was presented at the annual meeting of the American Society of Hematology the past December. An update to these results was published in the July 7th issue of the New England Journal of Medicine. They have graciously provided a private link for non-subscribers who want to view the material.

  • US Senate Approves 'Patient Navigator' Bill To Help Uninsured Find Health Coverage
    Under the system, the programs would help uninsured patients evaluate their treatment options, enroll in clinical trials, obtain referrals and apply for financial assistance. (from the Kaiser Daily Health Policy Report by way of Medical News Today)

  • City of Hope performs world's first total marrow irradiation procedure
    The treatment is a new application of TomoTherapy, a technology that previously had been used on individual tumors. TomoTherapy combines two different technologies, a CT scan and precisely directed radiation. (from the Pasadena Star News)
  • American Society of Hematology and partners launch patientINFORM.org
    patientINFORM is a free online service that provides patients and their caregivers access to some of the most up-to-date, reliable and important research available about the diagnosis and treatment of specific diseases.

  • Donate for Drew Day - September 10, 2005 - Encinitas, CA
    It started as a small event to be held in a living room. A way to be tested for the National Bone Marrow Registry to help myeloma patient Drew Spaeth, father of two, husband, baseball coach and mentor, surfer dude, and all-around incredible guy. But no more. Donate for Drew Day has its own website and has moved to a church parking lot with a live band, silent auction, raffle and sponsorship. Check out how some dedicated and very energetic friends have created an EVENT to help Drew and the IMF.


WHAT'S NEW IN RESEARCH

For more information, the Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


UPCOMING SEMINARS AND CLINICAL CONFERENCES

See complete list of 2005 UPCOMING SEMINARS AND MEETINGS.


UPCOMING EVENTS AND EXCITING OPPORTUNITIES

2005 WAMP Swim-A-Thon
July 23, 2005
West Hartford, CT

Third Annual Robert A. Kyle Lifetime Achievement Award
September 27, 2005
Dr. Kenneth C. Anderson of the Dana Farber Cancer Institute is being honored for pioneering critical advances against multiple myeloma.
Boston, MA

The IMF has secured a room block at Hotel Commonwealth for the evenings of September 26 and 27, 2005. Hotel Commonwealth is within walking distance of The Harvard Club. If you would like to take advantage of the special rate, when booking please say you are part of the IMF room block. For reservations, call 866-784-4000 and rooms are on a first come first serve basis.

The IMF is celebrating its 15th Anniversary Gala Hollywood style with Lights, Camera, Action, Cure! on November 12th at the Beverly Hilton Hotel, home of the Golden Globes. If you are interested in being involved with this year's planning committee, we would love to hear from you. Contact Candace McDonald, Associate Director of Development at cmcdonald@myeloma.org or call at 800-452-2873 x 222.

See complete list of 2005 UPCOMING EVENTS.


SHOP FOR THE IMF

The Unknown Patient wants to make sure that the following is not Unknown to our Myeloma Minute subscribers. You can shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. To do this, you access their site via special URLs we have set up. For Amazon, it's http://amazon.myeloma.org instead of amazon.com. It will take you to the same place, but any purchase you make during that visit will be credited to the IMF.
Here are a few hot titles you may be interested in:

Just published: Our own Rosanne Kalick, who co-leads the Westchester, NY support group, has written a book titled "Cancer Etiquette: What to do, what to say, when someone you love has cancer." You can order now at a discount.

Oprah Winfrey's Book Club has just kicked off "A Summer of Faulkner." and you can order the boxed set of all three novels in a discounted boxed-set.

You can also pre-order the new Harry Potter book, "Harry Potter and the Half-Blood Prince."
Why not order the new ColdPlay album, "X&Y," while you are at it?

Visit our Shop for the IMF page at http://shop.myeloma.org for express links to other popular etailers who will donate a portion of your purchase to the IMF.

Imagine Moving Forward is the theme of the IMF's new myeloma bracelet. Wear one in honor, celebration, or in memory of a loved one, and when people ask you what it's for, it's a perfect opportunity to spread the word about multiple myeloma. They're only $1 each in sets of 10, so you can order one for everyone in your family. You can order them on the web. For more info or questions, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org. (For a more personalized tribute in jewelry, check out IMFer Kristi Difford's beautiful handmade jewelry below.)

    New Items! Multiple Myeloma Awareness Jewelry
    IMFer Kristi Difford has added two necklaces and two sets of matching earrings to her line of beautiful custom bracelets to honor those who have joined the struggle against multiple myeloma.
     


    Hot off the presses

    ....the IMF has just published it's comprehensive "How-to-FUNdraise" guide.  If you're thinking about fundraising in your community, but don't know where to start, this guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.

    See more exciting ways to help the IMF continue its important work in education, support and research.


    ITEMS OF INTEREST


    Help Us Help Others...
    As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.