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WHAT'S NEWS
  • REVLIMID® (lenalidomide) New Drug Application Accepted for Priority Review by FDA
    As we reported in the last Minute, Revlimid is now under consideration by the FDA for approval for a pre-leukemia condition called myelodysplastic syndrome (MDS). Last week this request was granted a priority review which means that a decision should be make within the next six months. For myeloma patients this means that Revlimid may be available "off label" by the end of the year. For the full story
    read So, What's Up With Revlimid? by the Unknown Patient from the May 15th Minute or Celgene's press release.


  • Successful Los Angeles Patient and Family Seminar Held June 24-25th
    Over 200 myeloma patients and family members gathered in LA last weekend to share experiences and learn from the fantastic faculty of Dr. Durie, Dr. Gertz, Dr. Vescio, Dr. Barlogie, David Smith from the Binding Site, and nurse Bonnie Jenkins from Arkansas. We would like to thank everyone who took part. One of the patients who attended described the meeting this way: "It was TERRIFIC and I can't stress enough how everyone should go to at least one. It was full of current information, presented quickly and by experts.  They fed us, taught us, and encouraged us!  I went, I saw, I heard, I learned...Do I know the answers?  Well they all had different opinions and approaches so we still have to be our own advocate."

    The last US seminar of 2005 will be held in Baltimore from August 19-20, 2005 click here for details or call our office on (818) 487-7455.
  • Member FUNdraiser Spotlight: Team Milers Against Myeloma San Diego Rock 'n Roll Marathon
    Tony and Kendra Goffredo always said they would run a marathon together as father and daughter, so they signed up to run in San Diego's Rock 'n Roll Marathon with 20,000 other runners.
    Together, they finished the whole 26.2 miles in 3 hours, 35 minutes (finishing 1008 and 1010 out of 20,000).  They also raised close to $3,500 for the IMF, with money still coming in.
  • Cancer Etiquette
    Even with survivors living longer and new treatments always on the horizon, some of the old fears still surface, particularly in the way people react to the news that a friend or loved one has cancer. In response, IMFer Rosanne Kalick has written a book, "Cancer Etiquette: What to Say, What to Do When Someone You Know or Love Has Cancer." It is packed with stories from other survivors and practical communication strategies for friends and family, such as when to make a joke, when to use religious comments or when to simply say nothing at all. (from The Journal News)
    Click here to purchase her book and help the IMF at the same time.

     

Imagine Moving Forward is the theme of the IMF's new myeloma bracelet. Wear one in honor, celebration, or in memory of a loved one, and when people ask you what it's for, it's a perfect opportunity to spread the word about multiple myeloma. They're only $1 each in sets of 10, so you can order one for everyone in your family. You can order them on the web. For more info or questions, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org. (For a more personalized tribute in jewelry, check out IMFer Kristi Difford's beautiful handmade jewelry.)


WHAT'S NEW IN RESEARCH

For more information, the Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


UPCOMING SEMINARS AND CLINICAL CONFERENCES

See complete list of 2005 UPCOMING SEMINARS AND MEETINGS.


UPCOMING EVENTS AND EXCITING OPPORTUNITIES

4th Annual Multiple Musicians Against Multiple Myeloma
July 17, 2005
Long Island, NY
2005 WAMP Swim-A-Thon
July 23, 2005
West Hartford, CT


Third Annual Robert A. Kyle Lifetime Achievement Award
September 27, 2005
Dr. Kenneth C. Anderson of the Dana Farber Cancer Institute is being honored for pioneering critical advances against multiple myeloma.
Boston, MA

The IMF has secured a room block at Hotel Commonwealth for the evenings of September 26 and 27, 2005. Hotel Commonwealth is within walking distance of The Harvard Club. If you would like to take advantage of the special rate, when booking please say you are part of the IMF room block. For reservations, call 866-784-4000 and rooms are on a first come first serve basis.
 

The IMF is celebrating its 15th Anniversary Gala Hollywood style with Lights, Camera, Action, Cure! on November 12th at the Beverly Hilton Hotel, home of the Golden Globes. If you are interested in being involved with this year's planning committee, we would love to hear from you. Contact Candace McDonald, Associate Director of Development at cmcdonald@myeloma.org or call at 800-452-2873 x 222.
 

See complete list of 2005 UPCOMING EVENTS.


SHOP FOR THE IMF

The Unknown Patient wants to make sure that the following is not Unknown to our Myeloma Minute subscribers. You can shop at leading internet retailers (e-tailers) like Amazon.com, and they will donate a portion of your purchase to the IMF. To do this, you access their site via special URLs we have set up. For Amazon, it's http://amazon.myeloma.org instead of amazon.com. It will take you to the same place, but any purchase you make during that visit will be credited to the IMF.
Here are a few hot titles you may be interested in:

Just published: Our own Rosanne Kalick, who co-leads the Westchester, NY support group, has written a book titled "Cancer Etiquette: What to do, what to say, when someone you love has cancer." You can pre-order now at a discount.

Oprah Winfrey's Book Club has just kicked off "A Summer of Faulkner." and you can order the boxed set of all three novels in a discounted boxed-set.

You can also pre-order the new Harry Potter book, "Harry Potter and the Half-Blood Prince."
Why not order the new ColdPlay album, "X&Y," while you are at it?

Visit our Shop for the IMF page at http://shop.myeloma.org for express links to other popular etailers who will donate a portion of your purchase to the IMF.


New Items! Multiple Myeloma Awareness Jewelry
IMFer Kristi Difford has added two necklaces and two sets of matching earrings to her line of beautiful custom bracelets to honor those who have joined the struggle against multiple myeloma.
 


Hot off the presses

....the IMF has just published it's comprehensive "How-to-FUNdraise" guide.  If you're thinking about fundraising in your community, but don't know where to start, this guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.

See more exciting ways to help the IMF continue its important work in education, support and research.


ITEMS OF INTEREST


Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.


Please call the hotline (800) 452-CURE (800-452-2873) or email TheIMF@myeloma.org if you have any questions.
Copyright 2002-2005. International Myeloma Foundation. All Rights Reserved.