We are international

Myeloma Minute - June 9, 2005
  • REVLIMID(R) (lenalidomide) New Drug Application Accepted for Review by FDA
    Revlimid is one step closer to FDA approval. This is good news for Minute readers because, if approved, Revlimid could then be prescribed off-label for myeloma patients. (from Yahoo News)
    Read the So, What's Up With Revlimid? by the Unknown Patient.

  • Two New Studies in the British Journal of Haematology Show Potential Role of VELCADE® (Bortezomib) for Injection in Treating Patients with Front-Line Multiple Myeloma
    "These data indicate that earlier use of VELCADE may improve overall response outcomes for multiple myeloma patients," said James Cavenagh, M.D., FRCP, FRCPath, principal investigator of the PAD study at St. Bartholomew's Hospital, West Smithfield, London.

  • Multiple Myeloma and Related Disorders, edited by Gösta Gahrton, IMF Chair Brian G.M. Durie, and Diana M. Samson was recently reviewed in the New England Journal of Medicine.
    The publication of this book — edited by three distinguished members of the "myeloma community" and containing contributions from Europe, North America, and Australia — has been well timed in that it offers a benchmark reference for the specialist in this field and provides the nonspecialist with a comprehensive overview of the discipline at the beginning of an exciting new period. "

  • Cancer Etiquette
    Even with survivors living longer and new treatments always on the horizon, some of the old fears still surface, particularly in the way people react to the news that a friend or loved one has cancer. In response, IMFer Rosanne Kalic has written a book, "Cancer Etiquette: What to Say, What to Do When Someone You Know or Love Has Cancer." It is packed with stories from other survivors and practical communication strategies for friends and family, such as when to make a joke, when to use religious comments or when to simply say nothing at all. (from The Journal News)
    Click here to purchase her book and help the IMF at the same time.

  • Member FUNdraiser Spotlight: JC’s Support for Myeloma Patients Grows
    You don’t meet many myeloma patients at golf tournaments benefiting the IMF. So when a team captained by Dr. Steven Johnson—a myeloma patient—won the 6th annual “J.C.” Golf Tournament in St. Cloud, MN on May 21, 2005, it became sort of a “man bites dog” kind of story.

  • Imagine Moving Forward is the theme of the IMF's new myeloma bracelet. Wear one in honor, celebration, or in memory of a loved one, and when people ask you what it's for, it's a perfect opportunity to spread the word about multiple myeloma. They're only $1 each in sets of 10, so you can order one for everyone in your family. You can order them on the web. For more info or questions, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org. (For a more personalized tribute in jewelry, check out IMFer Kristi Difford's beautiful handmade jewelry.)


For more information, the Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


Third Annual Robert A. Kyle Lifetime Achievement Award
September 27, 2005
Dr. Kenneth C. Anderson of the Dana Farber Cancer Institute is being honored for pioneering critical advances against multiple myeloma.
Boston, MA

  • The IMF is celebrating its 15th Anniversary Gala Hollywood style with Lights, Camera, Action, Cure! on November 12th at the Beverly Hilton Hotel, home of the Golden Globes. If you are interested in being involved with this year’s planning committee, we would love to hear from you. Contact Candace McDonald, Associate Director of Development at cmcdonald@myeloma.org or call at 800-452-2873 x 222.

See complete list of 2005 UPCOMING EVENTS.

Hot off the presses....the IMF has just published it's comprehensive "How-to-FUNdraise" guide.  If you're thinking about fundraising in your community, but don't know where to start, this guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.

Visit our Shop for the IMF page at http://shop.myeloma.org for express links to other popular etailers who will donate a portion of your purchase to the IMF.

New Items! Multiple Myeloma Awareness Jewelry
IMFer Kristi Difford has added two necklaces and two sets of matching earrings to her line of beautiful custom jewelry to honor those who have joined the struggle against multiple myeloma.

See more exciting ways to help the IMF continue its important work in education, support and research.


The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available. You can contact them at (800) 675-8416 or at www.healthwellfoundation.org.

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

Tell A Friend...
The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.

 related articles