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Myeloma Minute - May 16, 2005
05.16.05
WHAT'S NEWS
  • So, What's Up With Revlimid?
    The Unknown Patient reports from the annual meeting of the American Society of Clinical Oncology (ASCO) on the current status and potential availability of the promising new drug, Revlimid.
    (See more ASCO news below.)

  • NEW IMF WEBCASTS!


The HealthWell Foundation has recently opened the Multiple Myeloma fund to help even more patients gain access to the best health care available.  You can contact them at (800) 675-8416 or at www.healthwellfoundation.org

  • Worrisome ailment in medicine: Misleading journal articles
    Doctors and patients who rely on articles in prestigious medical journals for information about drugs have a problem: The articles don't always tell the full story. Some omit key findings of trials about a drug's safety and efficacy or inconvenient details about how a trial's design changed partway through. (from the Wall Street Journal by way of the Pittsburgh Post Gazette)

  • ASCO NEWS:

    • Thalomid Helps Myeloma Remission
      Thalidomid increases a patient's chance of achieving remission when combined with standard drug therapy, according to Dr. Bart Barlogie, director of the Myeloma Institute for Research and Therapy at the University of Arkansas and lead author of the study released at this week's meeting of the American Society of Clinical Oncology. (from The Street)

    • Kosan Presents Phase I Results on KOS-953 as Multiple Myeloma Treatment at American Society of Clinical Oncology Meeting
      Proprietary Formulation of 17-AAG Shows Early Signs of Activity and Tolerability (from PR Newswire)

    • Genmab Presents Additional HuMax-EGFr Phase I/II Efficacy Data at ASCO Conference
      Clinical and metabolic response was demonstrated by two types of scanning. Assessed by FDG-PET, 7 of 18 evaluable patients achieved partial metabolic response and 4 had stable metabolic disease one week after their fifth and last infusion.(from PharmaLive)

    • Cancer Drugs On The Way, But Who Pays?
      "This year's annual meeting of the American Society of Clinical Oncology unveils new data on an unprecedented number of drugs targeted at the genetic quirks that cause cancer. Some of these drugs will not help patients. But those that will help could lead to another problem: Their high cost could create an even bigger crisis for the U.S. health care system." (from Forbes)

    • Studies Find Disparity in U.S. Cancer Care
      New studies show that Americans generally receive high-quality cancer care but that closer monitoring is needed to explain significant geographic variations in practices.(from NY Times)

  • Imagine Moving Forward is the theme of the IMF's new myeloma bracelet. Wear one in honor, celebration, or in memory of a loved one, and when people ask you what it's for, it's a perfect opportunity to spread the word about multiple myeloma. They're only $1 each in sets of 10, so you can order one for everyone in your family. You can order them on the web. For more info or questions, contact Suzanne Battaglia at (800) 452-2873, ext. 227, or SBattaglia@myeloma.org. (For a more personalized tribute in jewelry, check out IMFer Kristi Difford's beautiful handmade jewelry.)


WHAT'S NEW IN RESEARCH

For more information, the Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find EmergingMed, with whom the IMF has entered into a partnership to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


WEBCASTS

  • People Living With Cancer: Ask the ASCO Expert Live Online Chat
    Thursday, May 19, 2005 from 2:00 - 3:00 PM ET
    Visit People Living With Cancer (www.plwc.org) for a live chat on Advances in Cancer Research: News from ASCO's 2005 Annual Meeting, covering topics such as:
    • Targeted Therapies
    • Quality cancer care
    • Using genetic markers to predict treatment response and patient outcomes
    • Cancer survivorship


UPCOMING SEMINARS AND CLINICAL CONFERENCES


UPCOMING EVENTS AND EXCITING OPPORTUNITIES

See complete list of 2005 UPCOMING EVENTS.

  • Hot off the presses....the IMF has just published it's comprehensive "How-to-FUNdraise" guide.  If you're thinking about fundraising in your community, but don't know where to start, this guide will give you the "A to Z" of fundraising ideas, and other helpful suggestions.


  • Squares Are Going Fast!
    Don't miss your last opportunity to honor your loved one in our beautiful Quilt of Courage series. If you're interested in participating, please contact IMFer Harriet Bertsche via email at bertsche@optonline.net or (914) 478-4689 ...remember, they are almost gone!  It's a wonderful way to honor mom/dad/sister/brother/friend.




  • New! Donate to the IMF with your American Express Card
     - Donate dollars
     - Donate Membership Rewards® points
     - Set up recurring donations
    For more information, contact Candace McDonald at cmcdonald@myeloma.org


  • Volume II of Cooking with the IMF
    The collection of recipes for Volume II of our very popular healthy food cookbook is being led by Marilyn Alexander, a myeloma survivor from Philadelphia. Please help us with this important project by submitting your favorite recipes.


ITEMS OF INTEREST


SHOP FOR THE IMF


Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.


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