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Winter 2004/2005 Volume 6, Issue 3:
Message from the IMF President
By Susie Novis
2004 saw the realization of many of the IMF’s dreams.
IMF Celebrates Landmark Success of 2004

The International Myeloma Foundation (IMF), the country’s oldest and largest myeloma organization, celebrated 2004 as a year of tremendous success for the organization, and the patients and families it serves.

2004 saw the realization of many of the IMF’s dreams. We raised more money than we have in any other single year; our membership has flourished and we can see that patients are availing themselves of our programs, website, and publications as never before; Bank On A Cure® has become a reality; and we received a major grant from the Centers for Disease Control (CDC). The organization is the most comprehensive resource for myeloma patients and has become all that we dreamed it could be when it was founded in 1990.

The IMF raised a record-breaking $4.3 million, exceeding annual donations of any previous year. The IMF focuses its attention in four areas: Research, Education, Support, and Advocacy. The outstanding support we’ve received will be used to fund the expansion of our cornerstone programs, including the IMF’s groundbreaking research project, Bank On A Cure, as well as the Junior and Senior Research grants, our many educational and support programs, our publications—Myeloma Today, the web site, and our comprehensive information packages —and our world-famous toll-free hotline.

Also in 2004, the IMF membership ranks swelled to more than 120,000 members in 113 countries. Not surprisingly, the IMF’s website received more than 28 million hits and an average of 200 people attended each IMF Patient & Family Seminar. In addition, more than 20,000 myeloma information packets were sent out to patients worldwide.

The IMF’s cutting-edge research initiative, Bank On A Cure, became a reality in 2004. Bank On A Cure is the first comprehensive, myeloma-specific, cancer patient DNA bank in history. Last year, DNA collection began from patients and institutions worldwide. Through this program, DNA samples are being collected and genetically analyzed to help develop new and more effective therapies and to better understand, and ultimately, cure myeloma.

The IMF was also extremely honored to have been awarded a grant from the Centers for Disease Control and Prevention (CDC) in September 2004. The grant exceeded $250,000 and can be renewed for two additional years at the CDC’s discretion. The IMF was thrilled to be recognized by the CDC in this manner and will use the funds to reach an even greater number of myeloma patients with the information and services they need.

Finally, the IMF would like to thank all of our supporters who helped make 2004 a success. You responded so generously to our direct mail appeal that you made it the most successful appeal ever. This year’s Gala was also a huge success, raising nearly half a million dollars. Dr. Durie was deeply touched by the outpouring of good wishes as well as by the recognition of his life’s achievement and of his dedication to helping patients through his research and clinical work.

On behalf of the IMF, its Board of Directors, and the members we serve, please accept a most sincere thank you for helping us help others as we work toward finding a cure.

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