- Federal Cancer Policy: The Big Picture and its Consequences
The cancer community needs to reverse the current decline in the federal commitment to research and ensure that cancer patients receive fair benefits when the prescription drug benefit of the Medicare Modernization Act goes into effect in 2006. This week we examine administration’s fiscal year 2006 budget proposal and recent revelations about the increasing costs for the Medicare program.
- PET Scan Update
The on-line registry for myeloma patients on Medicare who wish to be reimbursed for PET scans should be open in mid-March, according to sources at CMS, the government agency that administers Medicare and Medicaid. The patient’s doctor must register him or her online and fill out the data report form in order for the patient to receive Medicare reimbursement. At present, the on-line registry is still in the works, so the program is not yet functioning. We will post the information on our web site and in the Myeloma Minute as soon as the registry is up and running.
Read last week's announcement from the IMF: The IMF Applauds Medicare Decision to Expand PET Scan Coverage for Myeloma Patients.
- VELCADE Approved For Use In Canada
treatment of patients with multiple myeloma (a type of bone marrow cancer) who have relapsed (failed) following front-line therapy and are refractory (unresponsive) to their most recent therapy. (from PharmaLive)
- Columbia Research Lifts Major Hurdle To Gene Therapy For Cancer
Researchers at Columbia University Medical Center have discovered a way to overcome one of the major hurdles in gene therapy for cancer: its tendency to kill normal cells in the process of eradicating cancer cells. (from bio.com)
- Jerry Eisenhower has made it back to San Diego, despite the sea's attempts to swallow the Athena.
Read the final installments of his remarkable journey.
- Vaccine hopes for blood cancers
A vaccine to help patients fend off blood cancers could be a reality in the near future. (from the BBC)
- Mayo Researchers Use Measles Virus to Fight Cancer
The measles virus has been tested against a variety of tumors in animal models where it shows a broad spectrum of activity against lymphoma, multiple myeloma, ovarian cancer, glioma and pancreatic cancer. (from Mayo Clinic)
- Medical specialists put Arkansas on the map
A nice article about Dr. Barlogie and the crew at UAMS. (from the Baxter, Arkansas Bulletin)
- UARK 2003-18, A Phase I Study of KIR-ligand mismatched Natural Killer Cells Transfused before Autologous Stem Cell Transplant in Relapsed Multiple Myeloma
Purpose: To evaluate the ability of natural killer cells from a family member to kill myeloma cells combined with a standard autologous peripheral blood stem cell transplant(transplant using the patient’s stem cells).
- Phase II Study of High-Dose Cyclophosphamide and Rituximab in Multiple Myeloma
The primary purpose of this trial is to measure the event-free survival in patients with myeloma following treatment with high-dose cyclophosphamide and rituximab. Patients will be eligible for this trial if they have primary refractory myeloma, high risk myeloma is first remission or relapsed myeloma that is sensitive to salvage therapy. Preclinical studies from our laboratory have shown that although malignant plasma cells comprise the bulk of the tumor in myeloma, they have little ability to replicate and self-renew. These studies have also identified the presence of a small population of so-called cancer stem cells. These cancer stem cells resemble B cells and have the ability to self-renew and differentiate into malignant plasma cells. Thus, this trial seeks to combine high-dose cyclophosphamide with rituximab, targeting both the malignant plasma cells and the cancer stem cells in an effort to eradicate them. Patients will receive therapy for 6-8 weeks at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins and then must return for follow-up assessments at 2,3,4,6,9, and 12 months following therapy for laboratory assessments. The trial is taking place at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins University, Baltimore, MD. Contact Dr. Carol Ann Huff at firstname.lastname@example.org or at 443-287-7104.
For more information, the Myeloma
Matrix has a current list of all
myeloma trials from pre-clinical to recently FDA approved. If you would like
to browse trials currently open for enrollment, visit
Trials page of the IMF web site. Among the links,
you will find EmergingMed,
with whom the IMF has entered into a partnership to
assist you in matching trials to your particular patient
profile (i.e., stage of disease, previous treatment, how
well you are able to carry out the activities of daily
living, etc.) and by doing so, increase your chances of
being eligible. You can also learn more about clinical
trials by reviewing materials from the National
- The IMF is celebrating its 15th Anniversary Gala Hollywood style with Lights, Camera, Action, Cure! on November 12th at the Beverly Hilton Hotel, home of the Golden Globes. If you are interested in being involved with this year’s planning committee, we would love to hear from you. Contact Candace McDonald, Associate Director of Development at email@example.com or call at 800-452-2873 x 222.
- Dallas Patient & Family Seminar - February 11-12, 2005
- Atlanta Patient & Family Seminar - March 18-19, 2005
- Melbourne Patient & Family Seminar - April 15, 2005
Following the 10th International Myeloma Workshop in Sydney
- See complete list of 2005 UPCOMING EVENTS.
After considering the public comments and any
additional evidence they will make a final
determination and issue a final decision
think of walking or running a
Join the IMF Team Milers
Against Myeloma and help raise awareness and
dollars for cancer research at the Rock-n-Roll
Marathon on June 5, 2005 in San Diego, California. If
interested in joining Team Milers Against
Myeloma, email Candace McDonald, Associate
Director of Development at firstname.lastname@example.org.
II of Cooking with the IMF
of recipes for Volume II of our very popular healthy
food cookbook is being led by Marilyn
Alexander, a myeloma survivor from Philadelphia.
Please help us with this important project by
submitting your favorite
- It's almost time for Valentine's Day, and if
you are looking for something special for that special
someone, look no further. Many of the internet's most
popular merchants_places you would patronize
anyway_will donate a portion of your purchases to the
IMF if you enter their sites using the links on our
For The IMF page or the special links
on Valentine's Day Jewelry
and Herman Adler sell jewelry at wholesale prices and
want to remind you that if you tell them you are an
IMFer when you make a purchase, a portion of the
proceeds will be donated to the IMF.
You don't have to look "Sideways" to
love wine and to appreciate IMFer Caethe Goetz'
adorable vests for wine bottles. A portion of each
sale will be donated to the IMF.
Tuohy's CD of his Song "I'm Not
Michael Tuohy wrote this uplifting
song for his two young children to reassure them that
he would win his battle with cancer. There are two
versions on the CD, on one there is a gentle acoustic
version and on the other Michael rocks. 100% of the
proceeds of this CD are being donated to the
Multiple Myeloma Awareness Bracelet
Kristi Difford makes these beautiful custom bracelets
to grace the wrists of those who have joined the
struggle against Multiple Myeloma. Kristi will be
traveling this year (lucky woman!), but will take
orders from January 18 through February 9, from March
13 through April 13, and from May 6 throughout the
Catlett Card Series
The Catlett Cards are
designed by Irma Catlett in memory of her husband Lou.
All proceeds go to support the programs of the
Help Us Help Others...
As a non-profit
organization, the IMF is completely dependent on the
support of our members. Tax-deductible donations in
honor of a friend or family member make great gifts and
are a wonderful way to celebrate a special occasion. You
online or by calling the IMF at (800) 452-CURE. We
sincerely thank you for your support.
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