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Myeloma Minute - August 18, 2004


08.18.04
WHAT'S NEWS
  • IMPORTANT INFORMATION ABOUT THE MEDICARE DEMONSTRATION PROGRAM
    The rate at which applications are being filed is slower than anticipated. Cancer patients may be choosing not to apply because of fears that they will not "win the lottery" for benefits, but those fears appear to be unfounded at this time.

  • Updates from BANK ON A CURE®
    In the United States, more than 450 Bank On A Cure® DNA collection kits have gone out so far. Studies are expanding with kits and additional clinical trials through Eastern Collaborative Oncology Group (ECOG) and Southwestern Oncology Group (SWOG). And that's not all...

  • Myeloma Awareness Week is so important, we are taking ten days to mark it: August 20-30. For us myeloma is a household word. We know about tests and treatments and clinical trials. For many others, including some physicians and other healthcare professionals and most of the public, myeloma is a mystery. Myeloma Awareness Week is the time to take the mystery out of myeloma. Contact the IMF for a packet of materials to help you spread the word.

  • IMF President Susie Novis and Chairman of the Board Dr. Brian Durie will be live in the Group Room at Vital Options during Myeloma Awareness Week
    See when and how to call and listen in in LIVE CHATS below.


  • New HealthTalk Webcast: Clinical Trials for Myeloma: Boosting the Power of the Immune System
    The collaborative efforts of researchers and patients have moved multiple myeloma into a period of active research and clinical trials into new therapeutic approaches, and the efforts have produced some promising strategies.


  • Genie in the bottle
    The enjoyment of creating art has kept Wayne Amerine working since he learned more than a decade ago that he has myeloma. He suspects that he contracted the disease as a result of inhaling the formaldehyde and fumes from toxic glues used in the production of plywood, his favorite medium. (from San Antonio Current)

  • Enlisting deadly foes to fight cancer
    Scientists are discovering that the same qualities that make viruses potent adversaries also make them powerful allies in fighting cancer. Studies in animal models have shown that an attenuated measles virus has powerful antitumour activity in myeloma. (from The Australian)

WHAT'S NEW IN RESEARCH

For more information, the Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find CenterWatch and EmergingMed. The IMF has entered into partnerships with them to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.


LIVE CHATS


SEPTEMBER EVENTS

It's not too early to start thinking about registering for the Teaneck, NJ Patient and Family Seminar, October 8-9.
If what you are looking for is reliable information from recognized experts, combined with the support you can only get by sharing the weekend with others who are going through the same thing you are, then look no further. The IMF's Patient and Family Seminars are what you need.


AUGUST FUNDRAISERS

If you live near any these local fundraisers, why not go on over? They are always fun, and the money raised helps the IMF help others.

FUNdraising Made Easy
Suzanne Battaglia can help you plan your fundraiser, so please write, call or email (SBattaglia@myeloma.org) so that you can get on our Calendar of Events!


EXCITING OPPORTUNITIES


ITEMS OF INTEREST

BE PART OF THE CURE!



Many of the internet's most popular merchants will donate a portion of your purchases to the IMF if you enter their sites using the links on our Shop For The IMF page. So, Be Part of the Cure by using these links to get the same great service and low prices you're used to while helping support the IMF!


Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

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