- Activists call for Idaho downwind study
Recently a National Academies of Science panel met to develop a report and make recommendations to Congress about improving compensation to those who contracted certain cancers, including myeloma, as a result of their exposure to radiation released during above-ground nuclear weapons tests. (from the Twins Falls, Idaho Times-News)
- Fighting Myeloma at Sea!
In the latest installment of IMFer Jerry Eisenhower's sailing trip, the boat is hit by lightning. What next!
- Compensations available for vets
As IMFer Tom Courbat explained to us before in Myeloma Today, eleven diseases are presumed by VA to be service-related for compensation purposes for veterans exposed to Agent Orange and other herbicides used in support of military operations between January 9, 1962, and May 7, 1975, and myeloma is one of them. (from the Veteran's Corner of the Indiana Gazette)
- Myeloma Awareness Week is coming August 20-30. For us myeloma is a household word. We know about tests and treatments and clinical trials. For many others, including some physicians and other healthcare professionals and most of the public, myeloma is a mystery. Myeloma Awareness Week is the time to take the mystery out of myeloma. Contact the IMF for a packet of materials to help you spread the word.
WHAT'S NEW IN RESEARCH
- A cost-utility analysis comparing intensive chemotherapy alone to intensive chemotherapy followed by myeloablative chemotherapy with autologous stem-cell rescue in newly diagnosed patients with stage II/III multiple myeloma; a prospective randomised phase III study.
van Agthoven M, Segeren CM, Buijt I, Uyl-de Groot CA, van der Holt B, Lokhorst HM, Sonneveld P.
In study based on data from patient charts and hospital information systems, intensive chemotherapy alone is the most cost-effective. (from European Journal of Cancer.
- The occurrence of graft-versus-host disease is the major predictive factor for response to donor lymphocyte infusions in multiple myeloma
Lokhorst HM, Wu K, Verdonck LF, Laterveer LL, van de Donk NW, van Oers MH, Cornelissen JJ, Schattenberg AV
Their research suggests that GVHD is a predictive factor for response to donor lymphocyte infusions. (from Blood)
For more information, the Myeloma Matrix has a current list of all myeloma trials from pre-clinical to recently FDA approved. If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find CenterWatch and EmergingMed. The IMF has entered into partnerships with them to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.
- Nutrition: Before, During and After Cancer Treatment
People Living with Cancer
Wednesday, August 18, 2004, from 2:00 - 3:00 PM ET
Featured Experts: David Alberts, MD, Cynthia Thomson, PhD, RD, Arizona Cancer Center
- How cancer treatment affects nutrition
- Dietary guidelines for people with cancer
- Nutrition therapy
- Nutritional approaches for managing side effects
- Drug-nutrient interactions
- The role of vitamin and mineral supplements
It's not too early to start thinking about registering for the Teaneck, NJ Patient and Family Seminar, October 8-9.
If what you are looking for is reliable information from recognized experts, combined with the support you can only get by sharing the weekend with others who are going through the same thing you are, then look no further. The IMF's Patient and Family Seminars are what you need.
If you live near any these local fundraisers, why not go on over? They are always fun, and the money raised helps the IMF help others.
FUNdraising Made Easy
Suzanne Battaglia can help you plan your fundraiser, so please write, call or email (SBattaglia@myeloma.org) so that you can get on our Calendar of Events!
ITEMS OF INTEREST
BE PART OF THE CURE!
Many of the internet's most popular merchants will donate a portion of your purchases to the IMF if you enter their sites using the links on our Shop For The IMF page. So, Be Part of the Cure by using these links to get the same great service and low prices you're used to while helping support the IMF!
Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Tax-deductible donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.