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November 1, 2003 Myeloma Minute
What's News
  • Hormone injections increase stem cell production
    Harvard researchers have stimulated mice to increase their production of blood stem cells, a development with apparent human parallels that researchers hope will have immediate benefits in the treatment of blood cancers.

  • It is with great sadness that we have to announce that IMF Board member Don Springer passed away of a heart attack on Monday, October 27th. Since joining the board in 1993, Don was one of the first major supporters of the IMF and each year he held a golf tournament - the Corporate Cup Challenge - Million Dollar Shoot Out - Hole in One Tournament. He would laugh at that name because it was so long. But over the years he held at least 10 tournaments and raised approximately $200,000 to support myeloma research. Don was a big guy, funny and a true IMFer who will be truly missed.

    Don's funeral was on Wednesday, October 29th. If you would like to send a message to his family., please email it to us at TheIMF@myeloma.org and we will forward it.

  • The fourth and final Multiple Myeloma Quilt of Courage is on the web.
    If you are thinking of hosting a fundraiser - yard or bake sale, walk-a-thon, etc, you can display one or more of these beautiful Quilts of Courage at your event.

  • Have an old cell phone lying around?
    Donate your old cell phone, get a tax deduction, and become part of the cure. The IMF receives a donation for every cell phone collected. Find out how.

  • Income important in tracking health status
    Income is an important variable in the quality of health care that people receive, but key data are not collected routinely, Proposed legislation, the "Cancer Survivorship Research and Quality of Life Act of 2003," offers the perfect opportunity to begin to collect this vital information.
    (from EurekAlert)

What's New in Myeloma Research:
What's New in Clinical Trials:
(Drugs listed In alphabetical order)

If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find CenterWatch and EmergingMed. The IMF has entered into partnerships with them to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing materials from the National Cancer Institute.

Quality of Life Update:
  • QuackWatch.org
    Heard about a Miracle Cure? Something that sounds too good to be true? Check it out at QuackWatch, a non-profit organization "whose purpose is to combat health-related frauds, myths, fads, and fallacies."

  • Patient Advocate Foundation Provides Access via Website to Real Time Case Management Inquiries.
    They can assist you with issues such as access to care, insurance problems, debt crisis. Although they do not offer direct financial assistance, they do have case management intervention and can assist or intervene on behalf of a patient. Click on the "Click to Chat Now" button when you get to their site.

Upcoming Seminars and Conferences:

Upcoming Fundraisers:

FUNdraising Made Easy
You know you want to do something, but deciding on what to do can be confusing. The IMF can help. This year, our members really rallied 'round the cause, picked up the gauntlet, and raised a lot of money for myeloma research and programs.

We are already getting calls from new members who want to join in the effort and hold an event in 2004. Suzanne Battaglia is waiting for your call. She is here to help you plan and execute your event, so please write, call or email (SBattaglia@myeloma.org) so that you can get on our Calendar of Events!

See what you can do in your community to help further the goal of finding the cure!

Exciting Opportunities

Items of Interest:
  • Understanding Thalidomide Therapy on the Web
    Read it on the web or download and print the PDF document. Available in English, Spanish, French, German, and Italian.

  • The National Cancer Institute (NCI) Office of Education and Special Initiatives is looking for patients, family caregivers, and physicians who are interested in participating in telephone focus groups and in-depth interviews. Payment will be provided to all participants.
    BANK ON A CURE is an innovative and powerful concept designed to establish a method to find new treatments for multiple myeloma and other related diseases as well as the possibility of new cures, while customizing care for current patients.
  • Myeloma Matrix
    The Myeloma Matrix provides updated information about drugs beginning with pre-clinical developments and tracks drugs as they proceed through Phases I – III of clinical trials, drugs that have been FDA approved, and information on trials that are being conducted by NCI- sponsored cooperative groups as well as other myeloma study groups. The online version is updated regularly. If you would like to have a printed copy, call the toll-free hotline (800) 452-2873.
  • International Prognostic Index
    The International Myeloma Foundation is proud to sponsor the International Prognostic Index (IPI) Classification for Multiple Myeloma. Nearly twenty myeloma institutions from around the world are collaborating to create an updated staging system for multiple myeloma.
  • NexCura Cancer Profiler
    The Cancer Profiler is a free service (no hidden fees or charges). Its tools provide you with information specific to your cancer diagnosis to help you make more informed treatment decisions along with your physician.
  • Expert Opinions on Multiple Myeloma
    A multimedia, CME-accredited program for physicians with the chance to see world-renowned myeloma specialists sharing their knowledge, discussing treatment choices, and comparing their perspectives on controversial issues in multiple myeloma and related diseases.
  • Myeloma At The Movies
    It has been our goal to bring our Patient & Family Seminars to people around the country who might not be able to attend an actual meeting, so we have set up a video lending library.
  • HealthTalk's Multiple Myeloma Education Network
    The latest interview is Dr. Durie interviewing Dr. Rajkumar about promising IMF Clinical Trials.

Be Part of the Cure!

Many of the internet's most popular merchants will donate a portion of your purchases to the IMF if you enter their sites using the links on our Shop For The IMF page. You can also use the special shortcut URLs listed below:

So, Be Part of the Cure by using these links to the same get great service and low prices you're used to while helping support the IMF!

Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.

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