No matter where we look the top story in the news is the Medicare prescription-drug benefit for senior citizens.
What's New in Myeloma Research:
- NVP-LAQ824 is a potent novel histone deacetylase inhibitor with significant activity against multiple myeloma
Laurence Catley, Ellen Weisberg, Yu-Tzu Tai, Peter Atadja, Stacy Remiszewski, Teru Hidehsima, Nicholas Mitsiades, Reshma Shringarpure, Richard LeBlanc, Dharminder Chauhan, Nikhil Munshi, Robert Schlossman, Paul Richardson, James Griffin, and Kenneth C Anderson
Histone deacetylase (HDAC) inhibitors are emerging as a promising new treatment strategy in hematological malignancies.
- The recurrent IgH translocations are highly associated with non-hyperdiploid variant multiple myeloma
Rafael Fonseca*, Carina S Debes-Marun, Elisa B Picken, Gordon W Dewald, Sandra C Bryant, Jerry M Winkler, Emily Blood, Martin M Oken, Rafael Santana-Davila, Natalia Gonzalez-Paz, Robert A Kyle, Morie A Gertz, Angela Dispenzieri, Martha Q Lacy, and Philip R Greipp
88% of patients with hypodiploidy (16/18) and 90% of patients with tetraploidy (9/10) tested had an IgH translocation.
- Thalidomide, age, and future use in multiple myeloma
An Inside Blood Article discussing the finding that patient age is a prognosticator that influences not only response and progression-free survival but also overall survival.
- New insight into myeloma lytic bone disease
An Inside Blood Article on research in which investigators demonstrate that MIP-1 alone is sufficient to produce osteolytic bone lesions.
What's New in Clinical Trials:
If you would like to browse trials currently open for enrollment, visit the Clinical Trials page of the IMF web site. Among the links, you will find CenterWatch and EmergingMed. The IMF has entered into partnerships with them to assist you in matching trials to your particular patient profile (i.e., stage of disease, previous treatment, how well you are able to carry out the activities of daily living, etc.) and by doing so, increase your chances of being eligible. You can also learn more about clinical trials by reviewing material from the National Cancer Institute.
Quality of Life Update:
- Support Group Leader Retreat - June 27-29, 2003
The IMF understands that support group leaders need support too! That's why we're pleased to once again offer this exciting, supportive program at Duke University in Raleigh, NC. The Leader Retreat is designed to help group leaders from across the country and around the world get together and exchange ideas, suggestions and success stories, while learning new skills and making new friends.
If you are interested in joining a support group, use the IMF's worldwide support group directory to find one that meets near you. You can also join our online support group.
If you have a topic of particular interest that you would like us to feature, if you are starting a support group, or if you are in a support group that is doing something to make a real difference in the lives of mutiple myeloma patients and their families and friends, let us know.
Upcoming Seminars and Conferences:
FUNdraising Made Easy
You know you want to do something, but deciding on what to do can be confusing. The IMF can help.
June 22, 2003
Curries Hair, Skin & Nail Salon, Glen Mills, PA
July 19, 2003
West Hartford, CT
- Robert Kyle Lifetime Achievement Awards Dinner
August 2, 2003
The International Myeloma Foundation is proud to present its first Robert A. Kyle Lifetime Achievement Award to Robert A. Kyle, M.D., Professor of Medicine & Laboratory Medicine, Mayo Clinic, in recognition for his outstanding life work, clinically and in research, in the field of myeloma. The award will be presented in subsequent years to honor other professionals for their work in the field.
- Ribbon of Hope Making A World of Difference Anniversary Gala
October 4, 2003
Paul Allen's Experience Music Project Museum in Seattle, WA
The evening promises to be the best ever, both creatively and financially! The EMP is Seattle's most unique architectural wonder. The Frank O. Gehry-designed building houses a new interactive museum that combines performance space, technology and revolutionary architecture in a facility created to celebrate the heritage and anticipate the future of American popular music.
- Third Multiple Myeloma Quilt of Courage is Online
The third quilt is finished and on the web. Like the two before it, it is both beautiful and moving. Take a look for yourself.
Those of you who have ordered quilt squares for the 4th quilt and have not yet returned them, please do so at your earliest convenience. We cannot put the quilt together and up on the web site until all the squares are returned. If you are not able to finish your square, please advise Suzanne at SuzanneBattaglia@myeloma.org so that she can give members on the waiting list the space she is holding for you.
Items of Interest:
- BANK ON A CURE™
BANK ON A CURE™ is an innovative and powerful concept designed to establish a method to find new treatments for multiple myeloma and other related diseases as well as the possibility of new cures, while customizing care for current patients.
- Myeloma Matrix
The Myeloma Matrix provides updated information about drugs beginning with pre-clinical developments and tracks drugs as they proceed through Phases I – III of clinical trials, drugs that have been FDA approved, and information on trials that are being conducted by NCI- sponsored cooperative groups as well as other myeloma study groups. The online version is updated regularly. If you would like to have a printed copy, call the toll-free hotline (800) 452-2873.
- International Prognostic Index
The International Myeloma Foundation is proud to sponsor the International Prognostic Index (IPI) Classification for Multiple Myeloma. Nearly twenty myeloma institutions from around the world are collaborating to create an updated staging system for multiple myeloma.
- NexCura Cancer Profiler
The Cancer Profiler is a free service (no hidden fees or charges). Its tools provide you with information specific to your cancer diagnosis to help you make more informed treatment decisions along with your physician.
- Expert Opinions on Multiple Myeloma
A multimedia, CME-accredited program for physicians with the chance to see world-renowned myeloma specialists sharing their knowledge, discussing treatment choices, and comparing their perspectives on controversial issues in multiple myeloma and related diseases.
An exciting new way for myeloma patients to get involved at patient seminars.
- Myeloma At The Movies
It has been our goal to bring our Patient & Family Seminars to people around the country who might not be able to attend an actual meeting, so we have set up a video lending library.
Shop for the Cure!
Many of the internet's most popular merchants will donate a portion of your purchases to the IMF if you enter their sites using the links on our Shop For The Cure page. You can also use the special shortcut URLs listed below:
So, Shop For The Cure by using these links to the same get great service and low prices you're used to while helping support the IMF!
Help Us Help Others...
As a non-profit organization, the IMF is completely dependent on the support of our members. Please consider showing your support by making a tax-deductible donation today. Donations in honor of a friend or family member make great gifts and are a wonderful way to celebrate a special occasion. You can donate online or by calling the IMF at (800) 452-CURE. We sincerely thank you for your support.
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The Myeloma Minute is a great way to stay abreast of the latest developments within the myeloma community. We hope you'll share this information with friends, family members and physicians and encourage them to sign up for their own copy by forwarding this message. New users can register by clicking here.