We are international
Donate
TEXT SIZE   

Call the IMF Hotline. We are here for you. The IMF Office is open from 8:00AM - 5:00PM PST, Monday-Friday.

If you have a question, call the IMF InfoLine at (800) 452-CURE (800-452-2873) in the US and Canada. The InfoLine is open from 9:00 - 4:00 PT Monday - Friday. Elsewhere call (818) 487-7455. You can also contact us via the web.
IMF - Home Page
previous     next      view all

The International Myeloma Foundation (IMF) Secures the Introduction of a Federal Resolution Recognizing March 2015 as “National Multiple Myeloma Awareness Month”

Myeloma Awareness Month is wrapping up this year with the introduction of a national resolution (H. Res. 174) to designate March as "National Myeloma Awareness Month.” The resolution would add to the immense successes of patient advocates across the country who have already received proclamations for their individual states, counties, and cities. The resolution sponsor, Rep. Brian Higgins (D-NY), has been a strong ally of the IMF for the past several years, and has also been the lead sponsor of the Cancer Drug Coverage Parity Act since its inception in 2009. The IMF thanks Rep. Higgins for his leadership, along with the two other original sponsors, Rep. Eleanor Norton (D-NY) and Rep. Alcee Hastings (D-FL).


Improving the Immune System in Myeloma Patients
Dr. Brian Durie writes this week about emerging monoclonal antibody therapies that show promise in boosting the immune system in myeloma patients. As myeloma evolves, it reduces normal plasma cells and often reduces the ability for a patient to fight infections. In order for the immune system to bounce back, the myeloma cells must be killed.

International Myeloma Foundation Honors Prof. Dr. Pieter Sonneveld With 2015 Robert A. Kyle Lifetime Achievement Award

The International Myeloma Foundation (IMF) — improving the quality of life of myeloma patients while working toward prevention and a cure — will present the 13th annual Robert A. Kyle Lifetime Achievement Award to Prof. Dr. Pieter Sonneveld during a ceremony in Vienna, Austria on June 9, 2015.


Lowering the Cost of Cancer Drugs
The IMF this week joins in the discussion about the high cost of cancer drugs after the recent article in Mayo Clinic Proceedings about steps that can be taken to lower these costs. In this week’s blog, IMF Chairman Dr. Brian Durie cites challenges in the plan laid out in Proceedings. He also presents some alternative ideas of his own as to how best to get affordable drugs into the hands of the patients that need them.

ICYMI: Click here for the replay of Understanding the Immune System in Myeloma teleconference
Learn about the latest information regarding a robust immune system’s effects on long-term remission by tuning in to the IMF’s first Living Well with Myeloma teleconference of 2015. “Understanding the Immune System in Myeloma,” a 60-minute presentation hosted by Dr. Brian Durie, will be broadcast Thursday, Mar. 19 at 7 pm ET/4 pm PT

Throughout March tweet using #DiscoverMyeloma and Takeda Oncology will donate $5 to the IMF
We are so thrilled that Millennium: The Takeda Oncology Company is a part of Myeloma Awareness Month. They are doing something very special and donating $5 to the IMF for every #DiscoverMyeloma Tweet sent this month. There are no restrictions on how many times you can Tweet using this hashtag and be counted. The goal is to spread as much awareness as possible by posting myeloma facts and starting an educational movement.

IMF Chairs Tokyo Flow Workshop
Next Generation Flow Cytometry made its debut in Japan last weekend at a Tokyo workshop hosted by the IMF. NGF was developed with the support of the IMF’s signature Black Swan Research Initiative® and is a crucial step on a pathway to a cure. Previously, the key efforts among Japanese researchers have focused on Next Generation Sequencing, but IMF Chairman Dr. Brian Durie and others demonstrated how NGF represents a vast improvement in disease detection.

Profiles in Courage: Patients Share What It's Like to Have Myeloma
Are you a myeloma patient with a story to share? A story shared with one person can help spread awareness, but a story shared online can reach thousands. As myeloma patient Bibi Moe, diagnosed in 2003, notes, “my story can give hope to all new patients and their families.” Since her diagnosis she has been elected to the board of the Danish Multiple Myeloma Association and devotes “all my energy to working for other patients and their families here in Denmark.”

Kyprolis® Meets Primary Endpoint of PFS in Head-to-Head Clinical Trial
The myeloma drug Kyprolis® (carfilzomib) has met the primary endpoint of progression-free survival (PFS) when compared with Velcade® (bortezomib) in patients with relapsed myeloma, according to Amgen/Onyx’s recent ENDEAVOR clinical trial interim analysis. Data from this kind of “head-to-head” clinical trial comparing different myeloma treatments “help considerably… to determine the best new treatment paradigm,” IMF Chairman Dr. Brian Durie writes in his blog this week

“Knowledge is Power” - Key Message of Myeloma Awareness Month

It is officially Myeloma Awareness Month (?#‎MAM?)!

The IMF first declared this global event in 2009, with the notion that increasing awareness of the disease could lead to early diagnosis and increased funding for researching.

This year, we are pushing the "Knowledge is power" message.

"The majority of patients have never heard of myeloma before their diagnosis," IMF President and Co-Founder Susie Novis said. "The IMF is proud to lead the charge in raising myeloma awareness across America and around the world."


previous     next      view all